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Post Info TOPIC: Results at last.


Guru

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RE: Results at last.
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Hi Lesley, I didn`t ever see a copy of my results either, it seems to be the way it`s done over here.  confuse

All the best of luck with getting through to your nurse, hope you get some info very soon.

Take care, hugs, Jill xxx

Love your new pic! smile



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Jill 

(70 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 



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Hi Jill & Kaz

No Ive not seen any results personally. Nor have I ever, unless I stole a peek @ the screen during nurses appointments.

You're right I will ring my nurse (or try to) after the previous tries I'm not so sure will be able to contact her. But try I will

Lots luv Lesley xxxxxxxxxxxxxx

 



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You got your health, You got your wealth!!



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Missycat- They have tests that can measure down to 2. I've done the one that goes to 5. The most common is the 43 one, but that one can't count under 43, but can detect anything over 7. So it may be that your doc only does a test that goes to 12, but I've been on treatment twice, and never had a 12 test done on me. You  can't assume everyone is getting the same test you are. Look up heptimax, and quantasure.

http://www.questdiagnostics.com/hcp/topics/heptimax/heptimax.html

http://www.dynacare.com/dos/dos2_show.php?uc=140639&db=h



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 2nd time on tx Started 3 combo ( Incivek) 8/6/11 VL 2,940,000 Biopsy 2/2 w/bridging and some necrosis/Fibrosis/Inflammation.  4th week det, but in und range, 6th ,9th  13th, 19th, 23 ( under 5)-UNDETECTABLE Going for 30 weeks


Guru

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Hi Lesley, I`m so sorry you haven`t been given clear information today, but I agree with Kaz, you really need to speak to the specialist and get some clarification as soon as you can. 

So did you get a copy of the blood results, or see a copy?  And when he said `consider it gone` did he say you had SVR?  That`s the crucial thing you need to know - either you still have it or you don`t.  To be honest it sounds like it has gone, but you need to check that to put your mind at rest.

Try not to worry till you know the facts Lesley - though I know that`s easier said than done.  Let us know what he says.

We`re here for you.  Hugs, Jill xxx

 



__________________

Jill 

(70 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 



Senior Member

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Oh Lesley when i saw" results at last" i didn't think you would still be kept wondering you poor thing....all i know is my nurse said they don't/cant detect anything under 12 so you are considered cured

Why don't you or your husband ring your nurse see if you can find out anymore, the consultants all seem to be up themselves don't they..

big hugs

love

kazxxxxxxxxxx



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Lift the hearts of those around you, share the goal that's in your sight. Keep strong, if i can do it anyone can! tx finished virus free :))))



Senior Member

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Hi folks,

Now I know why i'd not had my viral load results.

I saw specialist today & he told me to consider it gone, but there are still a few remaining dont know how many.

I'm to have another test done in 3 months & see spesh again in 6 months.

GUTTED!

When I asked he just told me not to think about it. I was in & out in about 2 minutes. Thats the only time my husband never went with me. Think could have done with him being there.

Anybody out there had the same thing happen with genotype2?

I dont think I would be offered treatment again cos of something my nurse said, and the new meds victrellis etc are only for geno1.

Its a bit hard not to think about it at the mo as I'm feeling a bit bewildered.

Anyway all you lovely peeps keep on fighting & lots of luv & good luck to you all.

Lesley xxxxxxxxxxxxxxxx



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