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Post Info TOPIC: Anal Itching and Other Anorectal Complaints


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RE: Anal Itching and Other Anorectal Complaints
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Daook wrote:

I think I have narrowed down my contraction of the HCV to a public bathroom on Piccadilly Circus, in London town back in 1973. I was in the US Army and in a drug induced stuper. hmm


I think I was in the stall next to you...

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25 yrs HepC. type 1a geno. 6mill viral load,3.5 out of a 4 liver biop.started Sept.19, 2012,Tx.Rib.,Incivek, Peg,4wk. Vl 61,undetected @12 wks,undetec.Wk 24



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ive never made any bones about it here that my hcv was more than likely drug use. for sure. BUT i do have a whole lot of tattoos, so that is also a possibility too. i make sure 'straight' kindof people think its due to my tattoos.got some i did myself. done a few on others.  but i was honest with my family, specially now im clean is no shame to admit... in fact they realized they should be proud of me for makin it thru those years of iv addiction.... oh yeh. when i told my work about it, i said tattoos, and my workmate said ''well you do have a few''' so no worries there.

 

 

 



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kiwi. genotype 1. started pegasus and riba on 10 nov. VL 17.6 million. (4 weeks VL 1368)  week 15 UNDETECTED... :)



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Hi Lorna, this is still the same thread, there just haven`t been any more replies posted since I moved it here to the "General Discussion" area from the "Knowledge Base" area where it was originally posted.  Sometimes we think it`s appropriate to move threads to this area when the conversation becomes more generalised. 

Sorry for the confusion!  Maybe in future it would be better if we (the admin team) just moved a thread without commenting on it.  smile ~ Jill xx



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 



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I'm interested in this post but it was moved to general discussion and I can't find it in general discussion?

 



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God's Peace Lorna



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Moving this to General Discussion.  Jill xx smile



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 

LC


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Bills wrote:
Interesting thread here
I agree it's hard to admit this and I think there are more here that did contract with drug use than say it. Transfusions is an easy out, who would know right
I was not a pro but,  I was there I just realized right away I would get lost in no time at all It was too good and I knew it. I consider my self lucky some of the people I know are dead from aids. It's not my first choice to to say where I got hep C    But it is the first question asked by anyone I'v told dependant on who they are I give a different answer
I trace it back to early 80's I can't think of anything else it really could have been
I tested positive for HVC in ? 2003 ? Life insurance blood test
Did't really do anything till 2008 It appears I had it for 25yrs+  by the way   LC      my first round of Ribv & Interferon did take about 6 months MRI's X-Rays Endoscope both ways  Eyetest Mental Stability testing  and they wanted to see if I would really stop drinking
I left that doctor something felt wrong about his approach he was a gasto doc that did liver also.  Then I went to a Liver Hep C  research treatment center ( that does Transplants just in case ) glad I did been there for 4 years now and Alcohol free It was hard but I made it so far     I  feel worse than I did when I was drinking biggrin but I'm glad to be free of it I don't intend to go back I would hate myself more than ever I couldn't accept the failure but that's me and my perfectionism         Favorite saying     I'd drink to that if my liver wasn't shot  I wonder if I had it to do over would I drink so much? Most likely I would   It's the Hep C that's killing my liver not drinking biggrin   It's scary and can overwhelm you But it's our only choice and Success is getting better everyday  so keep going LC the'll be lots of support for you here

Bill S

The early eighties are probably when I got it as well, I'd say 1983 or 84 because that was the worst of my drug experimentation, and a time I was running around with a couple of people I wish I had never met. cry

I got a call from the health department today and I was instantly put off when she asked about how they thought I might have gotten it.  hmm  I know they are just doing their jobs and I shouldn't be getting salty, but it just seems like a lack of privacy for some stranger to call and wake me up asking about that.

I will miss drinking but I am sure I will be better off without it.  Nice to meet you Bills, I am sure we will be chatting in the weeks ahead! smile

 



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Genotype 1a, VL 1,151,923.  51 years old.  Started treatment on AbbVie TOPAZ II clinical trial Oct 10, 2014!  Undetected at weeks 2 and 4! 



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Interesting thread here
I agree it's hard to admit this and I think there are more here that did contract with drug use than say it. Transfusions is an easy out, who would know right
I was not a pro but,  I was there I just realized right away I would get lost in no time at all It was too good and I knew it. I consider my self lucky some of the people I know are dead from aids. It's not my first choice to to say where I got hep C    But it is the first question asked by anyone I'v told dependant on who they are I give a different answer
I trace it back to early 80's I can't think of anything else it really could have been
I tested positive for HVC in ? 2003 ? Life insurance blood test
Did't really do anything till 2008 It appears I had it for 25yrs+  by the way   LC      my first round of Ribv & Interferon did take about 6 months MRI's X-Rays Endoscope both ways  Eyetest Mental Stability testing  and they wanted to see if I would really stop drinking
I left that doctor something felt wrong about his approach he was a gasto doc that did liver also.  Then I went to a Liver Hep C  research treatment center ( that does Transplants just in case ) glad I did been there for 4 years now and Alcohol free It was hard but I made it so far     I  feel worse than I did when I was drinking biggrin but I'm glad to be free of it I don't intend to go back I would hate myself more than ever I couldn't accept the failure but that's me and my perfectionism         Favorite saying     I'd drink to that if my liver wasn't shot  I wonder if I had it to do over would I drink so much? Most likely I would   It's the Hep C that's killing my liver not drinking biggrin   It's scary and can overwhelm you But it's our only choice and Success is getting better everyday  so keep going LC the'll be lots of support for you here
Bill S
LC wrote:

Daook wrote:

This might sound strange but I had so many good times while destroying myself. Problem is, I'm paying the price for the "fun" now.

I remember alot of them well, but not all (see drug induced stuper''') hahahaha!!!!

If I make it to 80, I'll be happy. aww


May God bless your honest little heart! biggrin  I didn't want to be the only one on here admitting to doing drugs.  disbelief My 2nd ex-husband was also HCV, so I don't know if I got it from him (by getting freaky) or my druggie days. confuse

Yeah, getting high was a party while it lasted, and I bet I will be happy to see 80 years of age too.  It sure sucks to have to tell my sons that their mom could have given them HCV due to a reckless youth and they need to get checked...  no  I don't think I'll be able to forgive myself for that bit of stupidity.

 


 



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Bills

Harvoni started 12-12-14 for 24 wks PrevTX Geno 1 stage 3 cirrhosis - non resp Int/ ribv. Started Trial  in Aug 2011 -July 2012 into Incivek relapsed  Feb 2013 Had 72 weeks on interferon & Riba.

LC


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I feel great, but then again, I am not starting treatment for another 2-3 months.  biggrin  I don't know if my Doc wants my liver to dry out a bit or trying to get his own ducks in a row on this. confuse  I am poking around trying to learn what I can and come up with a strategy.

I have a liver ultrasound tomorrow but I don't go back to see my Doc until Oct 25th.  I am glad to hear you're feeling alright and I hope you stay that way along time. smile 

 



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Genotype 1a, VL 1,151,923.  51 years old.  Started treatment on AbbVie TOPAZ II clinical trial Oct 10, 2014!  Undetected at weeks 2 and 4! 



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LC wrote:

Oh I knew better, but I was just kind of messed up in my head and immature in my late teens and early twenties.   cry

I think if you are disabled due to treatment of HCV, you can draw disability - http://www.allsup.com/about-ssdi/ssdi-guidelines-by-disability/hepatitis-c.aspx but I don't know much about it.



-- Edited by LC on Monday 27th of August 2012 08:09:30 PM


I'm not disabled, I would just like to get something from the VA(biggrin).

I actually feel pretty good today. I am making sure my fat intake is right on the money and it seems to be helping me.

How are you today?



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Geno 1a, second time around, stable viral load since 1973, timing is right for new therapy



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You know what they say "Ya live and ya learn" unless you had some guidance. I didn't.

I think lots of people on here have the "druggie" label. It's one of the most popular ways to contract the HCV.

I wish the VA would recognize it as a disability, that would help me get to 80.

hmm

 



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Geno 1a, second time around, stable viral load since 1973, timing is right for new therapy

LC


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Daook wrote:

This might sound strange but I had so many good times while destroying myself. Problem is, I'm paying the price for the "fun" now.

I remember alot of them well, but not all (see drug induced stuper''') hahahaha!!!!

If I make it to 80, I'll be happy. aww


May God bless your honest little heart! biggrin  I didn't want to be the only one on here admitting to doing drugs.  disbelief My 2nd ex-husband was also HCV, so I don't know if I got it from him (by getting freaky) or my druggie days. confuse

Yeah, getting high was a party while it lasted, and I bet I will be happy to see 80 years of age too.  It sure sucks to have to tell my sons that their mom could have given them HCV due to a reckless youth and they need to get checked...  no  I don't think I'll be able to forgive myself for that bit of stupidity.

 



__________________

Genotype 1a, VL 1,151,923.  51 years old.  Started treatment on AbbVie TOPAZ II clinical trial Oct 10, 2014!  Undetected at weeks 2 and 4! 



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This might sound strange but I had so many good times while destroying myself. Problem is, I'm paying the price for the "fun" now.

I remember alot of them well, but not all (see drug induced stuper''') hahahaha!!!!

If I make it to 80, I'll be happy. aww



__________________

Geno 1a, second time around, stable viral load since 1973, timing is right for new therapy

LC


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Daook wrote:

I think I have narrowed down my contraction of the HCV to a public bathroom on Piccadilly Circus, in London town back in 1973. I was in the US Army and in a drug induced stuper. hmm


 

Hey, I went there 30 years later!  I spent 6 weeks in London the summer of 2003.  I loved that city!  My druggie days were behind me by then, but I sure tied a few drunken binges on! biggrin  Good times....



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Genotype 1a, VL 1,151,923.  51 years old.  Started treatment on AbbVie TOPAZ II clinical trial Oct 10, 2014!  Undetected at weeks 2 and 4! 



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I think I have narrowed down my contraction of the HCV to a public bathroom on Piccadilly Circus, in London town back in 1973. I was in the US Army and in a drug induced stuper. hmm



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Geno 1a, second time around, stable viral load since 1973, timing is right for new therapy

LC


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Oh I knew better, but I was just kind of messed up in my head and immature in my late teens and early twenties.   cry

I think if you are disabled due to treatment of HCV, you can draw disability - http://www.allsup.com/about-ssdi/ssdi-guidelines-by-disability/hepatitis-c.aspx but I don't know much about it.



-- Edited by LC on Monday 27th of August 2012 08:09:30 PM

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Genotype 1a, VL 1,151,923.  51 years old.  Started treatment on AbbVie TOPAZ II clinical trial Oct 10, 2014!  Undetected at weeks 2 and 4! 



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One of the newest medications used to treat
chronic hepatitis C virus (HCV) infection is Incivek
(telaprevir). Incivek is a protease inhibitor, taken
with peginterferon and ribavirin, and used for
HCV patients with genotype 1. A common side
effect of Incivek is anorectal discomfort, including
anal itching, burning, and hemorrhoids.

http://www.hcvadvocate.org/hepatitis/factsheets_pdf/SEM_Anal%20Itching.pdf



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Geno 3a. 24 wks tx 20/10/05 - 06/04/06. Achieved SVR.

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