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Hep C Discussion Forum -> On Treatment -> Took the wrong medication tonight.
Post Info TOPIC: Took the wrong medication tonight.
Shep


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RE: Took the wrong medication tonight.
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Love it Kiwi! Judy--I let out a sigh of relief--glad this one went more smoothly

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Diagnosed 1996 genotype 1b VL alot tx starting 12/23/11 Victrelis UND week 8!!! 28 weeks of tx

Completed tx 7/6/12--still UND!!!!
kiwi


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                         wink.gif    wink.gif

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sharp shooting hee hee..



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kiwi. genotype 1. started pegasus and riba on 10 nov. VL 17.6 million. (4 weeks VL 1368)  week 15 UNDETECTED... :)
Judy S


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Good idea Kiwi......I'll shoot for some kind of design with these lovely new red circles on my tummy, lol!  Thanks guys.......SOOO good to know I'm not alone with these interesting sx.

Alan.....mine is also never itchy or dry or raised at all...it's just there.  Which, in itself, is a big plus if it doesn't bother me, lol.  So yours takes about 3 weeks to vanish, huh?

Sorry to have freaked you out with the weird sx.  That was rough......I thought that might be the end, lol!  My body must be particularly sensitive to Interferon.  Yeah....fun stuff, LOL!

So I injected 0.3 at 10:00 yesterday morning (CA time) and was OK until about 7:00 pm.  Then got low-grade fever and the cold again, but NO shaking, No nausea, No dying feeling this time!  My body hurt and legs felt like they do after I run 5 miles straight.  I went into a coma-like sleep and woke to alarm at 8:00 this morning just to take my 3 Ribas, then back to sleep until 12:30 pm!  I could just barely hear the phone ringing several times downstair this morning....couldn't open my eyes or move at all.  This Interferon is heavy stuff!

I do notice pain at my right, lower ribs and also around the back, all around liver area.  Hope that means Interferon is working, not killing my liver more.  I will think positively.

Hugs to you all,    Judy  : )



__________________

Geno 1a; VL 4.7 million in Feb 2012. Started PegIntron & Ribavirin 3-9-12. Added Victrelis 4-6-12. UND since Week 8. Stopped tx Wk 23. UND 4 Wks post-tx. Relapsed 12-weeks-post.

52 y/o F, started Epclusa 11-10-19, F0/F1.  EOT 2-1-2020. UND. All liver function tests normal.
kiwi


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haha i asked the question about the red marks, and its common alright. it shows up a bit better after a warm bath, but i can generally see at least 4 ot 5 red marks of various shades as they fade gradually. im going for a flower shape round my belly button, lol, but it lets me figure out where i shot up last time....

so. red marks are normal mate. dont worry bout it....

have a good evening.. (well its sunday evening here in new zealand,,, so sending a hug.)

 

kiwi



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kiwi. genotype 1. started pegasus and riba on 10 nov. VL 17.6 million. (4 weeks VL 1368)  week 15 UNDETECTED... :)
Judy S


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Very good to know, Kim; thank you!  Makes things easier for sure.

Either I screwed up last night's injection or the Redipen was faulty.  I'm not sure, but I only got a couple of drops of PegIntron, if that.  Called the Kaiser nurses this morning at 8:00 and they said I need to inject again.  They tranfered me to Pharmacist, who said same thing.

So I used one of the 2 Redipens I have in fridge and injected 0.3 this morning at 10:00.  NO SX other than heavy feeling and super tired; that's it!  Whoo-hoooo!!  My Dr said if 0.3 is good, then next week I go up to 0.4 and then back to 0.5.  I'm happy.

Btw, I have a 2-inch diameter red circle around my injection area on belly from Friday the 9th.  When I did my first dose.....0.5.  But nothing where I injected today......or yesterday's Fail.  Is this normal??



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Geno 1a; VL 4.7 million in Feb 2012. Started PegIntron & Ribavirin 3-9-12. Added Victrelis 4-6-12. UND since Week 8. Stopped tx Wk 23. UND 4 Wks post-tx. Relapsed 12-weeks-post.

52 y/o F, started Epclusa 11-10-19, F0/F1.  EOT 2-1-2020. UND. All liver function tests normal.
news


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Hi, Judy

For me, the injection site red patch is an every week thing. Never itchy, never dry and scaly, never a problem at all. But a pretty pink red color about one inch all the way around the actual site. It usually takes a day or two to appear. And when I sit in a warm bath it is even brighter and more obvious. I always have a couple of these in some stage of disappearing. It helps me to move from place to place each week. By the third Sunday they are almost all gone. I would classify this a totally normal, and in fact it is an indicator that (for me, anyway), the shot went well.

I am so glad you have not had the trouble you had last week. Your account of the trip to the ER had me so freaked out I couldn't rest. It's just so amazing the differences we can see from one week to the next. There doesn't seem to be any rhyme or reason. That;s why it's so much fun, right?

Alan



-- Edited by news on Sunday 18th of March 2012 02:19:21 AM

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Geno 1A  Started Pegasys/Ribavirin/Incivek Nov. 20, 2011 .  Completed July 28, 2012 (36 weeks). For a treatment history, see:  https://jshare.johnshopkins.edu/xythoswfs/webview/_xy-9921874_1

SVR on January 14, 2013!!
alohaKim


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Judy,
I get my meds from the Chemo pharmacy inside the chemo clinic at my hospital, so I really trust what they tell me. I specifically asked about the Victrelis staying in the fridge. They told me that it's fine to keep it with you the day you're taking it. They said keep it in fridge until the day you're using it, so just remove one bottle per day. I have you in my thoughts tonight. Hope you get through this shot easier than last week! Keep us posted.

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Genotype 1a, non responder to Peg/Riba in 2005. Started triple therapy 1-27-12 with Victrelis.  UNDETECTABLE as of 8wk labs (after 4 weeks of Victrelis) 4-3-12. UND at week 8, 12, 16 & 20 of tx. Completed triple therapy Oct 2012. relapsed 10/2012
Judy S


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Never mind the dart question.....I just found the Club on here, lol!



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Geno 1a; VL 4.7 million in Feb 2012. Started PegIntron & Ribavirin 3-9-12. Added Victrelis 4-6-12. UND since Week 8. Stopped tx Wk 23. UND 4 Wks post-tx. Relapsed 12-weeks-post.

52 y/o F, started Epclusa 11-10-19, F0/F1.  EOT 2-1-2020. UND. All liver function tests normal.
Judy S


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Thank you so much, Shep.  Well, last time it took 2.5 hours for sx to come on, so I'll let you know tomorrow.  I just did the injection about 30 mins ago.  I know I didn't get much interferon......if any.  I watched it drip out on my sterile setup and my heart sank, lol.  Hope I don't die with only Riba for a week.

Do you mean that you actually play darts or are you referring to the injection as a dart?  I'm getting a little spacey, sorry, LOL.  I'm so sorry for your best friend.  Has she tried triple therapy?



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Geno 1a; VL 4.7 million in Feb 2012. Started PegIntron & Ribavirin 3-9-12. Added Victrelis 4-6-12. UND since Week 8. Stopped tx Wk 23. UND 4 Wks post-tx. Relapsed 12-weeks-post.

52 y/o F, started Epclusa 11-10-19, F0/F1.  EOT 2-1-2020. UND. All liver function tests normal.
Shep


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I bet you did fine--it does take a little time to get used to giving yourself the shot and especially after the ordeal you went through. I would have been shaking in my boots--you are a brave girl. You got through the 2nd shot. I have developed a little Friday Night Dart ritual which helps keep me calm. Also my best friend--who has done this 3 x--without success--and she was going to be a nurse (once upon a time)--she guided me through the 1st couple of shots. Can't say I have done a perfect job every time--but I have gotten more confidence.

Anxious to know how you are fairing!

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Diagnosed 1996 genotype 1b VL alot tx starting 12/23/11 Victrelis UND week 8!!! 28 weeks of tx

Completed tx 7/6/12--still UND!!!!
Phil G


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The little Vic bottles are so handy for all kinds of things. And all all those fine stryrofoam coolers and ice packs building up in the garage. What perks!



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Geno 1A, VL 1.9 mm, SOT 12/2/11 - Pegintron/Ribavirin/Victrelis, UND since wk 8, EOT 6/15/12 (28 wks), SVR 11/30/12
Judy S


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I got the Vic after I bought that huge pill organizer, then realized they already had their own, little, daily bottles!  But they need to be kept refrigerated constantly, right? 

Well, I just did my second PegIntron injection.  My dr reduced me from 0.5 to 0.3 for today after my severe sx that landed me in hospital.  I don't know what I was thinking.....the redipen clicked as I was injecting and I thought I was done, but then realized the plunger wasn't all the way down....it's difficult to push down completely.  I accidentally lost some, right onto the plastic package.  I stuck myself again to get the remainder but wasn't much left.  I wonder if I got any at all? 



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Geno 1a; VL 4.7 million in Feb 2012. Started PegIntron & Ribavirin 3-9-12. Added Victrelis 4-6-12. UND since Week 8. Stopped tx Wk 23. UND 4 Wks post-tx. Relapsed 12-weeks-post.

52 y/o F, started Epclusa 11-10-19, F0/F1.  EOT 2-1-2020. UND. All liver function tests normal.
Shep


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And all those little bottles of Vic are recyclable--at least where I live. Couldn't stand the amount of package & trash I was creating

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Diagnosed 1996 genotype 1b VL alot tx starting 12/23/11 Victrelis UND week 8!!! 28 weeks of tx

Completed tx 7/6/12--still UND!!!!
alohaKim


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Judy, I also have the AM/PM pill organizer for my riba & Vitamin D3. I was going to buy one for the Vic, but Victrelis actually comes prepackaged for daily dosing. It comes in a big box, with 28 small bottles of pills inside- 1 bottle per day. So you can just take out the bottle and carry it with you for the day. It's pretty convenient, actually. But of course you should do whatever works best for your schedule. Good luck. I've only missed two doses of riba during my 7 weeks of tx so far. I think that's pretty good, all things considered.

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Genotype 1a, non responder to Peg/Riba in 2005. Started triple therapy 1-27-12 with Victrelis.  UNDETECTABLE as of 8wk labs (after 4 weeks of Victrelis) 4-3-12. UND at week 8, 12, 16 & 20 of tx. Completed triple therapy Oct 2012. relapsed 10/2012
kiwi


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yup when i started on tx, i got weekly one, with am and pm on it... i put my riba and my morning anti depressant in there... its really handy to keep track... only once i forgot... and in the morning i was like, oh crap, ive missed a dose... only time tho....

gettin used to takin so many pills tho.... cant imagine being on triple. jeez peg and riba are bad enough...

 



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kiwi. genotype 1. started pegasus and riba on 10 nov. VL 17.6 million. (4 weeks VL 1368)  week 15 UNDETECTED... :)
Judy S


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That is so scary but thank goodness it won't kill us....good to know!  I worried about doing just that weeks before starting tx so I bought one, clear organizer for Sun - Sat for Riba, and then a gigantic one with Morn, Noon, Eve, and Bed for each day of the week for the Victrelis.  I keep the Riba one on one counter, and the Vic one will be in fridge when I start that next month.

I'm attaching a pic of the organizers here, lol; that Vic one is huge!



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__________________

Geno 1a; VL 4.7 million in Feb 2012. Started PegIntron & Ribavirin 3-9-12. Added Victrelis 4-6-12. UND since Week 8. Stopped tx Wk 23. UND 4 Wks post-tx. Relapsed 12-weeks-post.

52 y/o F, started Epclusa 11-10-19, F0/F1.  EOT 2-1-2020. UND. All liver function tests normal.
Shep


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I did that a couple of weeks ago--just popped those Vic pills instead of the Riba--I called my pharmacy. They were so sweet & said not a big deal. So my doctor & told him. He sorta giggled at me--said I was not alone that many patients do that. He was very understanding --having to take so many pills each day. It did make me anxious for a bit thou. I am very careful about which meds I am popping now

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Diagnosed 1996 genotype 1b VL alot tx starting 12/23/11 Victrelis UND week 8!!! 28 weeks of tx

Completed tx 7/6/12--still UND!!!!
news


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I was a space cadet even before treatment, so when they gave me my starter kit, containing a pill organizer based on morning an evening doses, I went and got another with only one strip and used it for mid-day. So I had three dose events all laid out for each day. The Incivek came in weekly packs with three distinct doses for each day. They were very hard to open. So I would cut them all open and put a week at a time into the organizer. Also, I was using two of the big, blue Ribapak ribavirin each day (one with the morning Incivek and another with the 2PM Incivek), so these went in, too. I don't think I ever missd a dose, although I was an hour late once or twice. Without those pill organizers I would never have made it. The starter kit also contained a small electronic clock with 5 daily alarms! In the early days I used this each day. After a few weeks I was so married to that schedule there was no way to forget. Now, looking back, I can't believe I did it. Today it's just two riba doses with ANY FOOD I WANT. Life is good.

Alan



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Geno 1A  Started Pegasys/Ribavirin/Incivek Nov. 20, 2011 .  Completed July 28, 2012 (36 weeks). For a treatment history, see:  https://jshare.johnshopkins.edu/xythoswfs/webview/_xy-9921874_1

SVR on January 14, 2013!!
alohaKim


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I just realized I missed my Riba dose last night. Ugh! I don't know how I possibly forgot to take it last night of all nights, because last night was shot night, then I ended up having to force myself to stay up late enough to take my Victrelis. But when I came down this morning to get my AM dose out of my pill organizer there were my 3 little Sunday PM pills still sitting in the container. &%$#@!



-- Edited by alohaKim on Monday 12th of March 2012 09:21:02 PM

__________________

Genotype 1a, non responder to Peg/Riba in 2005. Started triple therapy 1-27-12 with Victrelis.  UNDETECTABLE as of 8wk labs (after 4 weeks of Victrelis) 4-3-12. UND at week 8, 12, 16 & 20 of tx. Completed triple therapy Oct 2012. relapsed 10/2012
Phil G


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You did the right thing by calling the Vic folks. Sure beats spending the rest of the night with all that anxiety and fear. It's not easy. We just do the best we can.

I'm sure everyone has a system for tracking the med schedule. I certainly have mine. My riba comes in a big bottle with a 28 day supply. I can't take pills from that because sometimes I don't know if I'm coming or going, much less whether I took my pills 5 minutes ago or not. So I count out my 5 pills the night before and put in a smaller dedicated bottle. At 6 pm, there ought to be 3 left, and at 10 pm, none. Same with the Vic, but I am already starting from a little bottle with a 1-day supply. The 10 pm time is rough and confusing, as I'm typically woken up by my cell phone from my nightly nap, and it takes me a while to figure out if its time for meds or time to go to work, or if I hit the snooze a couple of times, whether I already took them. All I have to do is look on the counter and find my little bottle with 4 Vics left, and its ok. My daily working supply doesn't go in the cabinet and never leaves the kitchen counter. I "own" that little corner. Don't touch it, clean it, or rearrange it!



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Geno 1A, VL 1.9 mm, SOT 12/2/11 - Pegintron/Ribavirin/Victrelis, UND since wk 8, EOT 6/15/12 (28 wks), SVR 11/30/12
Tio


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I would imagine taking just one pill too soon is no big deal.  I double check before I take any med, especially if I am tired or just woke up. As the carpenter's motto goes, measure twice, cut once. 



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Suzanneaz


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I had taken my Vic at 10PM and at 11;30 my riba was due, I put the wrong pills out and took 1 before I realised my mistake. The vic help line said its fine. Scary.



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Hep 1A. 550,000. Starting tx on 1/06.

 
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