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Hep C Discussion Forum -> On Treatment -> No good
Post Info TOPIC: No good
kmiller


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RE: No good
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J Stay strong we are all here for you.

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JLynch30


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Posts: 292
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Thank you - I let myself be sad for one day and then I refuse to let it get to me... thanks again for all your support



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John   non-responder  

Undetected at week 2 on solvaldi/rib/interferon:  stayed through week 12 but virus came back as soon as I stopped.  on   Harvoni and ribravirin 24 weeks undetected after two. 8/2/15  12 week EOT  UNDETECTED!  SVR

1991-2015 RIP

 
Cinnamon Girl


Guru

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Posts: 5629
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Oh John, you`re off tx too, so sorry it hasn`t worked for you, you must be so disappointed.  hmm 

You`ve got a lot of determination to have done tx 4 times, you`ll get there in the end I`m sure! 

Wishing you all the best of luck, take it easy for a while and let yourself rest and recover.

Keep us posted!  Jill xx



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
Anna Christie


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Posts: 137
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So sorry it went up. That is a big blow. It is good u are looking into trials. You could call hepatology depts at big teaching hospitals and see if they have anything coming up in the future. I was asking my hepatologist who practices in New Orleans about a friend of mine who was a non-responder and triple did not seem to be working for. She said they had a couple of trials comoing in the future that would help her. She said for her to call the dept. and ask for information. She sounded hopeful about future treatments for non-responders.   Hugs!!!



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fortunate1


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Posts: 16
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Here is a link to clinical trials all over the world. It is a searchable data base.

http://www.clinicaltrials.gov/



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Isiscat2011


Guru

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Posts: 1724
Date:
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I'm sorry JLynch, but on the positive side, there are definitely studies and clinical trials ongoing and upcoming. At least one of our members, whose viral load also did not respond adequately, is starting a clinical trial tomorrow.  He wrote about it in a thread called "Biopsy yesterday for 7977."   In the meantime, take good care of your liver, and be well.

 



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Diagnosed in 2011, Incivek triple in 2011, tx discontinued, Genotype 1a, CT, VL 7mill, cirrhosis dx in 2012, age 67, waiting for new DAAs.
JLynch30


Senior Member

Status: Offline
Posts: 292
Date:
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Taken off as my viral load went from 5000 to 1 million.  Let me know if yo uknow any studies!!!



__________________

John   non-responder  

Undetected at week 2 on solvaldi/rib/interferon:  stayed through week 12 but virus came back as soon as I stopped.  on   Harvoni and ribravirin 24 weeks undetected after two. 8/2/15  12 week EOT  UNDETECTED!  SVR

1991-2015 RIP

 
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