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Hep C Discussion Forum -> On Treatment -> Im missing doses left and right.
Post Info TOPIC: Im missing doses left and right.
Sed3


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RE: Im missing doses left and right.
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THIS IS LIFE AND DEATH!! Or, life with a liver transplant.

You're strong, you're courageous, you're important, blah blah blah. None of that means anything in the face of a disease that can kill you. And none of that means anything in the face of your inactivity. If you had cancer, would you react the same way?

Buy 7 alarm clocks, spread them around, and get out of bed. Period. No one will do it for you.

__________________

Type 1B - Unknown for 30 years, diagnosed September 2011, started treatment February 2012

8 weeks Incivik - stopped early due to rash.

Continuing Pegasys and Ribavirin until January 2013 - 48 weeks

Undetectable from week 4 --> present
Suzanneaz


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My app is my  only way to keep things straight in my life. I dont do well with paper and ink, like the Journal provided with the started kit. I can take notes and get reminders all the time. Ive had problems with focusing on stuff for a few years now, this works for me.

 

Isiscat2011 wrote:

Suzannes:  I don't know how to say this any other way.  SNAP OUT OF IT.  You are derailing your own tx here.  You don't need a computer app. to take your meds.  You only need a plastic pill divider. 

Now, get up, take your meds, and get to the lab, love!!

 

 



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Hep 1A. 550,000. Starting tx on 1/06.

 
innerview


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So glad to hear that you are feeling a little better. Sorry to hear about the heart murmur though... I pray it turns out ok.

I'm feeling a bit better today also except not sleeping as well the past 3 nights. I'm starting to get restless leg syndrome.

Hang in there! We're going to do it!!!

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Peace, Mark

1A, stage 2/3, TT, began TX with Incivo 1/31/12, Week 4 VL<15, week 7 UND, week 12 UND, week 18 UND!!! End of Tx July 31 VL UND!!!  I had to do 26 weeks total and was on half Riba and half Interferon for most of Tx. 12 week post Tx VL UND!
Suzanneaz


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Hi I went to the PCP clinic today, and expressed my concerns of how do I know tx pain, and pain I might have due to something else going on in my body since the rambling pain moves around my body so much. I left feeling better, there were no other patients and she spent over and hour discussing with me whats going on. She goes online to gather information if she is unfamiliar with something, which is comforting to know she cares that much.

My PCP is so kind, my GI Dr has a phobia about treating Hep C, so thank god I have someone to discuss my concerns, review test results and make sure I see and understand changes that matter, of all the tests results my GI has me do, and makes me feel included in my own care plan. I left feeling much better by the end of the visit, she invited me to come to her clinic anytime with no appt when things get really bad and shed do the research to help me understand.

I have a heart murmur now, have had lots of tests, and now I have to have a consult with a Cardiologist to see what he feels is going on.

THank you for you all taking time to share your treatment and suggestions that have helped you through this. I had a good day today, which gives me hope too. :)

 



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Hep 1A. 550,000. Starting tx on 1/06.

 
Shep


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Suzanne00
I have been trying to post--but damn brain fog keep forgetting to hit submit. But I have wanted to let you know that I have been thinking about you a lot --this is so hard. Don't get overwhelmed--get to the doctor & talk to them about what's going --if you need something to help you get through it is okay. And I am so glad that you were able to say how you were feeling. That says so much--we are all here for each other. Hang in there and keep on going!
Hugs
Shep

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Diagnosed 1996 genotype 1b VL alot tx starting 12/23/11 Victrelis UND week 8!!! 28 weeks of tx

Completed tx 7/6/12--still UND!!!!
kiwi


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how ya goin girl...?  i so know the ''dont care'' feeling either. and yeh, im actually cooking a nice meal tonight, i live alone, and have been really slack on meals... and do i look worried. nope...

but yeh, most important thing is take them pills on time... everything else can slip up, but not that....

have they got you on anti depressants. ? they put me on them before i even started treatment, ( i was reluctant) but after some of my horrendously crazy mood swings, im so glad im on them, omg imagine if i wasnt... look out neighbourhood. lol

so. hang in there. and stand up for yourself girl.... you gotta...



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kiwi. genotype 1. started pegasus and riba on 10 nov. VL 17.6 million. (4 weeks VL 1368)  week 15 UNDETECTED... :)
innerview


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Suzanneaz wrote:

Thank you all for your responses. Living at the moment to swallow pills is just so hard to do. I hope I can make it. Im going up to talk to my PCP tomarrow and see what suggestions she has to keep me going. I really envy those who mustard up going to work, or ride a bike, take a stroll outside. I dont know how you have the courage, I need to get some of that. Suzanne

 Hi Suzanne!  I feel ya. I am almost in the same boat... I really am impressed with those who can continue to work through this TX. Most days I can hardly move. BUT I have been able to keep the pills going down on schedule.  Sometimes though I hesitate to take the injection but I've been able to get it in there so far.

I wish you well and hope that you can get on schedule and clear this virus. And believe me, I know it isn't easy, but I'm pulling for you and send you lots of healing energy!!!

Mark



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Peace, Mark

1A, stage 2/3, TT, began TX with Incivo 1/31/12, Week 4 VL<15, week 7 UND, week 12 UND, week 18 UND!!! End of Tx July 31 VL UND!!!  I had to do 26 weeks total and was on half Riba and half Interferon for most of Tx. 12 week post Tx VL UND!
Suzanneaz


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Thank you all for your responses. Living at the moment to swallow pills is just so hard to do. I hope I can make it. Im going up to talk to my PCP tomarrow and see what suggestions she has to keep me going. I really envy those who mustard up going to work, or ride a bike, take a stroll outside. I dont know how you have the courage, I need to get some of that. Suzanne



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Hep 1A. 550,000. Starting tx on 1/06.

 
Kellyw


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Suzanneaz. I totally get the apathy. Mine is directed at food and exercise. When I have my hungry days I am eating so many thing I would never have eaten before, and I JUST DON'T CARE. When I dont feel like walking I don't and I JUST DON'T CARE. When i just dont want to talk to people i dont, and dont care much . BUT you must care about taking your pills or they will pull you from tx and you will soooooo kick yourself later. It is probably something they can treat and you can feel better. Go go go tell us what happens

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Kelly 2b dx 8/11. Tx begun 12/30/11. Apparently had it for decades.
Isiscat2011


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Suzanneaz wrote:

I need to get some of that.

You already have it, Suzanneaz.  You have only forgotten that you are strong and courageous.  Dig a little deeper and you will find it again.  And, people here can help you when you are having a bad day, or even a bad week. 

You are so fortunate to reach UND in 4 weeks.  Many people here are giving it 150% and still can't get that.  To have that plus not too many adverse physical side effects is truly a gift so use it wisely.   (How's that for a guilt trip?) 

I'm going to be waiting for you to write back soon. confuse

 

 



-- Edited by Isiscat2011 on Saturday 24th of March 2012 07:03:51 AM

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Diagnosed in 2011, Incivek triple in 2011, tx discontinued, Genotype 1a, CT, VL 7mill, cirrhosis dx in 2012, age 67, waiting for new DAAs.
kiwi


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i have a pill thingy, am and pm, and lots of post it notes.... its becoming habit, i think im at shot 20 and have only missed one dose of riba...

you gota get a handle on this mate. its your life....



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kiwi. genotype 1. started pegasus and riba on 10 nov. VL 17.6 million. (4 weeks VL 1368)  week 15 UNDETECTED... :)
Isiscat2011


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Suzanneaz:  It occurred to me that you may be suffering from a more than typical amount of depression brought on by the meds.  If this is the case, please contact your doctor or someone who can help you right away. 

You already know your dosing schedule so that isn't the problem.  Whatever is going on here you need to get a handle on it b/c nobody can do that for you.  You were UND at 4 weeks, and with no severe physical sx.  If you continue like this you cannot achieve SVR and I'm sure you understand that.  I would call my doc, explain the problems you are having, and ask for help.  I know that taking your meds on time has been an ongoing problem for you so you should probably ask for another viral load count within the next couple of weeks to make sure you are still on track.

If you simply cannot do this then stop taking the meds b/c they are not helping you unless you take them as prescribed.

I wish I could help you, but that's all I got.  The rest is up to you.

 



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Diagnosed in 2011, Incivek triple in 2011, tx discontinued, Genotype 1a, CT, VL 7mill, cirrhosis dx in 2012, age 67, waiting for new DAAs.
wnose


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You have to set up a schedule that works for you. My first dose was at 8 am, followed by 4 pm, then one at midnight. 



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Diagnosed Geno 1a, 1992. Relapsed after riba-peg trmt in Aug 08. Oct 22 2011: Incivek 3rx @ 18 million VL.

Day 10: <15. --------------------->>>>>>12 OCT 2012: SVR!!! 
Isiscat2011


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Suzannes:  I don't know how to say this any other way.  SNAP OUT OF IT.  You are derailing your own tx here.  You don't need a computer app. to take your meds.  You only need a plastic pill divider. 

Now, get up, take your meds, and get to the lab, love!!

 



__________________

Diagnosed in 2011, Incivek triple in 2011, tx discontinued, Genotype 1a, CT, VL 7mill, cirrhosis dx in 2012, age 67, waiting for new DAAs.
Suzanneaz


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Im sleeping through alarms, cant drag myself out of bed to take my applesauce and Vitralis. I was undetectable. I had no bad blood content results like super anemic or worse. I wonder how this will affect my next bloodwork, I couldnt get out of bed and beg a ride to the lab this week. Im going to do something to make it next week.  I use the Android app Dario to journal my pill intake and compliance, my moods, body side affects, and note foods so I might see patterns to stop or use more.



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Hep 1A. 550,000. Starting tx on 1/06.

 
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