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Hep C Discussion Forum -> On Treatment -> Help with Restless Leg Syndrome (RLS)
Post Info TOPIC: Help with Restless Leg Syndrome (RLS)
K2


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RE: Help with Restless Leg Syndrome (RLS)
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Thanks Bill, but I usually am a very good sleeper and am inclined to steer clear of any ongoing drugs. I saw the doc yesterday she said it could still be a result of tx drugs in my body. I dont know, as I have had episodes of this before tx and I have had no real issues the last couple of weeks since tx finished. Then this all of a sudden, it bothers me during the day also. Any way she gave me some mild sleepers to try for a few days and hopes that will get me through until the RLS passes. Lets hope.



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genotype 1a. started pegasus and riba on 25/03/2012 added victrelis after 4 weeks, treatment naive. CHC. 4 weeks UND & continue to be so far. Finish tx 6/10/12. Fingers crossed for SVR.
2willy


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My wife has suffered from this for years found out about it because she could break windows and collapse roofs when snoreing, safe she does not use a computer.  Anyways she was tested for sleep apnea and the RLS is what was found.  She takes prescribed Pms-Ropinirole .25mg  Take two tablet before bedtime.  Other name on prescription was Ropinirole Hydrocloride.

Bill



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Geno type 1  rib and peg September 2012 , 5 weeks tripple and viral down to < 15 und april Aug 25 finished stay at peg 3 rib and eprex + blood transfussion finished treatment Aug 25 2013
K2


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I'll try the warm shower, I do the others and only have caffine via  two coffee's in the morning.

 



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genotype 1a. started pegasus and riba on 25/03/2012 added victrelis after 4 weeks, treatment naive. CHC. 4 weeks UND & continue to be so far. Finish tx 6/10/12. Fingers crossed for SVR.
Margo


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Just read about that today...
Warm showers, massage and stretching before going to bed. Decrease the caffeine use during the day.

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Geno 1b, relapsed in 2009 a week before my treatment was to be over. Started triple therapy on April 28th, 2012. UND at week 4,8,12,24,3 months post tx.
K2


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I had RLS  occasionally before tx. No problen on tx. But now it is back again really badly. whilst on tx I was taking codine (panadine forte) two, at the most four a day, I was worried it was a withdrawal but it has been a week since I have had any at all and I certainly have no cravings for it. This is driving me nuts, I slept better on tx because I was so tiredblankstare

Any sugestions or similar experiences?

Edit- pescribed by doc and approved by gastro.



-- Edited by K2 on Tuesday 23rd of October 2012 11:34:07 PM

__________________

genotype 1a. started pegasus and riba on 25/03/2012 added victrelis after 4 weeks, treatment naive. CHC. 4 weeks UND & continue to be so far. Finish tx 6/10/12. Fingers crossed for SVR.
Iris Dragonfly


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Tee he-he-he, You guys are cracking me up, that trail will fill in sex, I mean in a sec.   evileyebiggrin Iris



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in the silence of the woods, you will not be alone- Chief Seattle

60 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)
news


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I can see it now. A new facial expression named "the RLS Grin".biggrin

Easy to get, hard to get rid of.

Alan



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Geno 1A  Started Pegasys/Ribavirin/Incivek Nov. 20, 2011 .  Completed July 28, 2012 (36 weeks). For a treatment history, see:  https://jshare.johnshopkins.edu/xythoswfs/webview/_xy-9921874_1

SVR on January 14, 2013!!
krowdog


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Bet you'd have no trouble recruiting for THOSE trials!

Where do I sign???

Brad

(Geno 1a, Incivek triple TX, in week 23 of 24!!!)



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(Geno 1a, Incivek Triple Tx, 6 month post TX - 9/20/2012 = SVR!!!)
Isiscat2011


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innerview wrote:

 I like all of the suggestions, thank you all, but this one is definitely worth serious investigation. biggrin

Hahaha......maybe a clinical trial should be started to explore this idea further.  wink 

Imagine the data:  98% reported vast improvement in RLS.....and could not stop smiling.



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Diagnosed in 2011, Incivek triple in 2011, tx discontinued, Genotype 1a, CT, VL 7mill, cirrhosis dx in 2012, age 67, waiting for new DAAs.
innerview


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wilsondog wrote:

At risk of being completely frank here, there have been studies that have concluded the only sure cure for restless legs is a good strong orgasm! Seriously, it works!

 I like all of the suggestions, thank you all, but this one is definitely worth serious investigation. biggrin



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Peace, Mark

1A, stage 2/3, TT, began TX with Incivo 1/31/12, Week 4 VL<15, week 7 UND, week 12 UND, week 18 UND!!! End of Tx July 31 VL UND!!!  I had to do 26 weeks total and was on half Riba and half Interferon for most of Tx. 12 week post Tx VL UND!
news


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Kate,

You are exactly right. At my house we have discovered that when the "nervous kness" hit either or us, we know the solution. We discovered it quite by accident, but have benefited many times. Thankfully, there is no cumulative effect. Each case must be handled separately.

Alan



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Geno 1A  Started Pegasys/Ribavirin/Incivek Nov. 20, 2011 .  Completed July 28, 2012 (36 weeks). For a treatment history, see:  https://jshare.johnshopkins.edu/xythoswfs/webview/_xy-9921874_1

SVR on January 14, 2013!!
wilsondog


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I've had restless leg syndrome for years and have tried exercise, drugs, and everything else under the stars, including the Highland tabs.  Somehow my husband and I figured out that if we got busy, we both were able to fall asleep easily and he had no reason to be annoyed at me for keeping him awake.  In fact, he never complains when I start twitching anymore!  The great thing is you don't need a partner to get relief!  To answer Iris' question, I just do it as needed, I don't think there is a cumulitive effect, but it can't hurt!

Sleep well everybody!



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wilsondog
Iris Dragonfly


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Maybe, I'm not,...uh..."doing it "enuf, but Kate, are you saying you need to drop everything and get that "over" with before you have any relief or, doing it on a regular basis will keep the restless legs at bay??? The Hylands remedy works real well for me, (when I can get it) but I have a theory about this restless legs thing, ...so many people have it, to varying degrees. Have you all had a polio vaccine some time in your life? They never knew what the long term effects of that might be,...could this be it? I know, I know pretty wild idea, but whada ya think? Hummmm, Iris



__________________

in the silence of the woods, you will not be alone- Chief Seattle

60 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)
Kellyw


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I too get it. Seems to come and go without a pattern. It is my number one complaint. It makes me crazy. I tend to go bed exhausted barely able to lift my legs into bed, then 2 hours later I feel I have to run around the block, which of course I have no energy for.

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Kelly 2b dx 8/11. Tx begun 12/30/11. Apparently had it for decades.
krowdog


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Hi Innerview.

First off, I love the avatar.

You know, I had  some of the leg problems too, after some of my first Peg. shots.  Benedryl (diphenhydramine) helped a little. It got better after the incivek was finished.

Also wilsondog's suggestion is worth a (couple?) tries ;))

 

Brad

(Geno 1a, Invivek triple Tx, Und. since wk 4, now in week 23 of 24)

 



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(Geno 1a, Incivek Triple Tx, 6 month post TX - 9/20/2012 = SVR!!!)
wilsondog


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At risk of being completely frank here, there have been studies that have concluded the only sure cure for restless legs is a good strong orgasm! Seriously, it works!



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wilsondog
innerview


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It started a couple of nights ago. Last night didn't get a lot of sleep and today still feeling pain and irritation in the legs. Can't sit still and don't have the energy to move around. Any help or guidence appreciated.

Mark



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Peace, Mark

1A, stage 2/3, TT, began TX with Incivo 1/31/12, Week 4 VL<15, week 7 UND, week 12 UND, week 18 UND!!! End of Tx July 31 VL UND!!!  I had to do 26 weeks total and was on half Riba and half Interferon for most of Tx. 12 week post Tx VL UND!
kiwi


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i do know that epsom salts (magnesium) in a nice hot bath is good for that.... and i have heard on of 'hylands restless leg" that you can buy in the states...

after gettin clean off hard drugs, i know a little bit bout restless legs, not pleasant either. good luck.

ive had a bit of it too, specially when i am really tired... reminds me of being a kid when you are up too late.... so i turn everything off and head for bed... no fighting it.



-- Edited by kiwi on Sunday 25th of March 2012 08:35:07 PM

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kiwi. genotype 1. started pegasus and riba on 10 nov. VL 17.6 million. (4 weeks VL 1368)  week 15 UNDETECTED... :)
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