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Hep C Discussion Forum -> On Treatment -> skin elasticity/pigmentation changing???
Post Info TOPIC: skin elasticity/pigmentation changing???
LanaiSurferGirl


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RE: skin elasticity/pigmentation changing???
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forgot to say that the dermatologist tells his patients going through lymphoma to get the cetaphil restoraderm because the interferon messes with their skin too.

I got it without a perscription at the drugstore.



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geno 1a, mother & brother also hep c +...mom got a blood transfusion and passed it along.  Started tx with incivik 11/23/11 and brother started 2/8/2012.  Both of us und. at 4,8,12 and me at 24.  I am going 36 wks and brother is going 48 weeks.
LanaiSurferGirl


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I saw the dermatologist today and for the elasticity issue and those of you with delicate skin:  He said that the interferon weakens the skin and hair so skin is "less durable" because of the drug.  Cetaphil has a product that is a body wash and lotion form called "restoraderm".  You can get it at most drug stores.  I bought both the wash and lotion for about $18 each...that is in Hawaii so it is probably less in the mainland.

As far as my hyperpigmentation issues it is melasma, most likely brought on by my IUD rather than the treatment drugs.

Just thought you should know.  I showered with the body wash and used the lotion after and my skin feels amazing....so much better than the coconut oil I was using.  It feels tighter, more elastic, and more durable. :)



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geno 1a, mother & brother also hep c +...mom got a blood transfusion and passed it along.  Started tx with incivik 11/23/11 and brother started 2/8/2012.  Both of us und. at 4,8,12 and me at 24.  I am going 36 wks and brother is going 48 weeks.
sungoddess


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I agree Alan. I'm about 2 weeks from half way and I'm continuing treatment until someone tells me otherwise. I try to have a fairly positive attitude but this rash/ swelling thing really has me down. Thanks for listening

Bev



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Geno 1a, VL 289,000 at start of Tx Nov 2/11. Und after 4 wks on Interferon, Ribavirin, and Victrelis, Finished Tx June 25/12. Still und. Virus back Sept 2012 VL over 1 million.

Started Harvoni Sept 22/16. VL 2 million. F score 2.

10/24/16:HCV UNDETECTABLE. Alt 21, Ast 21.

EOT: Dec 14/16  

SVR: May 2017
news


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I heard that, and nobody wants to be a science experiment. But if I had listed each little wierd thing I noticed in treatment (like I intended to do) it would be a strange tale indeed. At some point I just began thinking "OK, another wierd treatment side effect", and just moved on. My typical "whatever" attitude. But I really feel like as long as we get labs on time, and get to the doctor's office on some realistic schedule, hopefully nothing serious will sneak up on us.

Alan



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Geno 1A  Started Pegasys/Ribavirin/Incivek Nov. 20, 2011 .  Completed July 28, 2012 (36 weeks). For a treatment history, see:  https://jshare.johnshopkins.edu/xythoswfs/webview/_xy-9921874_1

SVR on January 14, 2013!!
sungoddess


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I have also heard about edema and liver problems. I had a biopsy not long before treatment and was at Grade 1 Stage 1 with no sign of cirrhosis. I had some blood work done last week by GP and get results tomorrow. They tested for lymph, thyroid, diabetes and general blood panel. The swelling has me concerned. I feel like a science experiment gone wrong.  Cheers.

Bev



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Geno 1a, VL 289,000 at start of Tx Nov 2/11. Und after 4 wks on Interferon, Ribavirin, and Victrelis, Finished Tx June 25/12. Still und. Virus back Sept 2012 VL over 1 million.

Started Harvoni Sept 22/16. VL 2 million. F score 2.

10/24/16:HCV UNDETECTABLE. Alt 21, Ast 21.

EOT: Dec 14/16  

SVR: May 2017
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That coconut oil sounds like the ticket. I wish I had thought of that.

My ankles, in fact the whole lower leg, has been swelling a bit during the day and going down at night for a while, way before treatment. I just figured it had something to do with the condition of my liver. I do believe edema in the extremities is a listed symptom of some stage of liver damage, which almost all of us have. Treatment might make it worse, but I have had it for years.

Alan



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Geno 1A  Started Pegasys/Ribavirin/Incivek Nov. 20, 2011 .  Completed July 28, 2012 (36 weeks). For a treatment history, see:  https://jshare.johnshopkins.edu/xythoswfs/webview/_xy-9921874_1

SVR on January 14, 2013!!
sungoddess


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I've been using coconut oil. It is a white solid in the jar but melts easily in your hands. I got it from a health food store in Canada for approx $12, probably a little cheaper in the States and a little goes a long way. I now have lizard hands and have been asked if it is eczema. Rash is also inching up my neck and should be nearing my face in time for my family Easter dinner. Ugg. Perhaps they will be so alarmed by my hair loss they wont even notice my hands! One can only hope ); . I am wondering if anyone else has noticed swelling in the body parts with the worst rash? My lower legs, ankles, and hands are the worst but even my arms are swollen a bit. I  did a little reading on line and cant find any relation to edema and the tx meds or the antihistamine I'm taking. I go to GP tomorrow for puffiness issues. Its not a great time to be a girl.



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Geno 1a, VL 289,000 at start of Tx Nov 2/11. Und after 4 wks on Interferon, Ribavirin, and Victrelis, Finished Tx June 25/12. Still und. Virus back Sept 2012 VL over 1 million.

Started Harvoni Sept 22/16. VL 2 million. F score 2.

10/24/16:HCV UNDETECTABLE. Alt 21, Ast 21.

EOT: Dec 14/16  

SVR: May 2017
wilsondog


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As much as I want my pricey Emu oil or Dr. Hauschka remedies to address the Inciveck rash, nothing touches it like good 'ol  generic hydracortizone ointment!



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wilsondog
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Seester -

* Note Alans comment about lizard hands.  

My skin is tight, dry, and rash has fully commenced after week 6. Splotchy, red, misshaped - and above the skin, like eczema. Great summer to look forward to. blankstare 

All over legs, hips, light case on arms, and back.  -  bought some Jasons Nat. Aloe and Eucerin to ease - hoping it heals up after tx.

I was looking into Aloe juices and coconut water to help - any thoughts there?? A lil pricy (at your local Whole Wallet)

 

- Danny



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geno 1a, cirrhosis, started triple incivek therapy 2/7/2012 - twice previous nonresponder

UND - wk. 4 =)
LanaiSurferGirl


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thanks!  Yes, drinking tons of water, hydrating the skin, and staying out of the sun....this might just be me getting older too :)



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geno 1a, mother & brother also hep c +...mom got a blood transfusion and passed it along.  Started tx with incivik 11/23/11 and brother started 2/8/2012.  Both of us und. at 4,8,12 and me at 24.  I am going 36 wks and brother is going 48 weeks.
Shep


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Yes water is essential--my mouth completely dries out over night and I do keep water next to me. It helps to noursish from the inside out

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Diagnosed 1996 genotype 1b VL alot tx starting 12/23/11 Victrelis UND week 8!!! 28 weeks of tx

Completed tx 7/6/12--still UND!!!!
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Amen on the water. I even keep some by the bed at night, so when I wake up to pee I can drink some more water. Crazy, huh? But it helps. Renee, I love the new look. Treatment has been good to you. Alan

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Geno 1A  Started Pegasys/Ribavirin/Incivek Nov. 20, 2011 .  Completed July 28, 2012 (36 weeks). For a treatment history, see:  https://jshare.johnshopkins.edu/xythoswfs/webview/_xy-9921874_1

SVR on January 14, 2013!!
LadyAlaise


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Water. Water. Water. For Dryness at least. Can't have too much water.

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Genotype 1A, Genotype (from parents) CC, Viral Load=7,514,000 (as of 12/6/11) Started Triple Therapy TX: 12/17/2011.UND @ 4-48 Wks Taken Off Incivek @ 6 wks due to Rash Response. Finished TX 11/17/12. SVR year 1
Shaun


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When I was on TX my complexion was all splotchy and had a sickly palor on my body and face.  Since I have stopped my skin looks normal (going on 7 weeks post tx).  Parts of my body felt like eczema when I was on tx, especially on my legs and forehead, that has cleared up since. 

LadyALise is right, water seems to be the cure all for some things.  I would get severely chapped lips on tx and I read online to drink a bunch of water then put on lip balm.  After drinking 4 or 5 glasses of water, the chapped parts would feel moist.  I would then put lip balm on to seal it in. 

The worst was when I was on the telaprevir, my tongue would completely dry out at night and be stiff and hard like a piece of cardboard in the morning.

When I first started tx I was reading about drugs that make you sensitive to sunlight.  There was a special warning for ribavirin.  It is probably best to avoid sun if possible on tx.



-- Edited by Shaun on Saturday 31st of March 2012 08:55:02 AM

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Donnie130


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Thank you so much for posting this.  I started having same problems after treating and was wondering what was going on

Dee



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tanya lee


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I have same pigmentation issues espeacially on my face...and alot of dryness..i think its all because of dehydration plus certain hormonal changes due to tx..stay well



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Katie


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I feel my skin rougher and thicker in the back of my hand and in my elbow areas. Other parts are normal. 

I use lotion but don't think it helps because this side effect is caused by medication inside our body.

Katie



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Shep


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I was having quite a bit of trouble at the beginning of tx--skin was dry and I was using lotion everyday. My fingers were splitting and painful, bleeding. I was using this fancy and very expensive oat lotion. Well a few weeks ago ran out of the expensive lotion and went back to old stand by stuff from Target--and my skin is doing much better. I also use the soap with lotion in--can't think of the name. And at least once a week I take a bath with an organic bath salts that help moisturize. Of course the weather has warmed up--so the air is not dry & cold which has also helped.
I am pretty anemic myself now and I am also pretty old--56. And I also bruise easy--I feel like a delicate flower---a venus fly trap!

I would imagine that Hawaii would be difficult on the skin with tx! Hope you get some answers & results

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Diagnosed 1996 genotype 1b VL alot tx starting 12/23/11 Victrelis UND week 8!!! 28 weeks of tx

Completed tx 7/6/12--still UND!!!!
inspireme


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My skin is doing the same thing not to mention I bruise everywhere. I don't even want to wear shorts. I am so pale I asked my daughter if I look jaundiced. I usually tan...this year I will run around in sweaters....lol

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Hi, Meghan

My skin is a mess (week 19, after Incivek). The backs of my hands look like lizard skin, and there are small dark spots and a few "chickenpox" all over me. Looks like this is going to be a Summer with clothes on. Oh, well.

I use a good skin lotion all over at least every other day, and that seems to help the dryness for a couple hours, but the overall problem continues.

Alan



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Geno 1A  Started Pegasys/Ribavirin/Incivek Nov. 20, 2011 .  Completed July 28, 2012 (36 weeks). For a treatment history, see:  https://jshare.johnshopkins.edu/xythoswfs/webview/_xy-9921874_1

SVR on January 14, 2013!!
LanaiSurferGirl


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did some research and loss of skin elasticity is a symptom of anemia which I had from the drugs......hum.... I also scheduled an appointment with a dermatologist. :)



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geno 1a, mother & brother also hep c +...mom got a blood transfusion and passed it along.  Started tx with incivik 11/23/11 and brother started 2/8/2012.  Both of us und. at 4,8,12 and me at 24.  I am going 36 wks and brother is going 48 weeks.
LanaiSurferGirl


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I am wondering if anyone else is experiencing this.  Since being on treatment my skin has lost alot of elasticity.  I am only 31 and have stayed out of the sun for a while.  I have also noticed many white spots on my forehead.  I don't know if all of this is from this treatment, just happened naturally, or if it is from a low hormone IUD that I have.  Anyone experience similar side effects?

I use coconut oil on my skin and try to stay away from lotions/creams with chemicals in them unless I am out in the sun and then lather up on the sunscreen.

thanks,

Meghan



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geno 1a, mother & brother also hep c +...mom got a blood transfusion and passed it along.  Started tx with incivik 11/23/11 and brother started 2/8/2012.  Both of us und. at 4,8,12 and me at 24.  I am going 36 wks and brother is going 48 weeks.
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