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Hep C Discussion Forum -> On Treatment -> Don't Know How to Describe My Feelings
Post Info TOPIC: Don't Know How to Describe My Feelings
Judy S


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RE: Don't Know How to Describe My Feelings
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Thank you, Brad!  Yes, PegIntron and I are getting along much better these days.  Never again had a shot like that first one.....thank goodness!   :)



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Geno 1a; VL 4.7 million in Feb 2012. Started PegIntron & Ribavirin 3-9-12. Added Victrelis 4-6-12. UND since Week 8. Stopped tx Wk 23. UND 4 Wks post-tx. Relapsed 12-weeks-post.

52 y/o F, started Epclusa 11-10-19, F0/F1.  EOT 2-1-2020. UND. All liver function tests normal.
krowdog


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Scout, great to hear your Und!

And Judy, I guess your getting used to your pegasys, compared that first monster shot reaction you had to deal with.  I hope it keeps getting easier for you.

To all, happy (virus) hunting!

Brad

(geno 1a, Incivek triple Tx, Und since wk 4, currently in wk 24 of 24)

 



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(Geno 1a, Incivek Triple Tx, 6 month post TX - 9/20/2012 = SVR!!!)
Judy S


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I do my 4-week Lab on Wednesday.  3 more days......can't wait!  I don't start Victrelis until Apr 6.  I'm SO curious to see what my labs will show.  my VL was 4 million before TX.

I've learned that a combo of Excedrin Extra Strength plus Ativan really DOES help my migraines and Occipital Neuritis after PegIntron injections!  Coupled with forcing myself to eat food, including meat, which I very rarely eat.  Have to take Zofran every now and then but I've been holding down ALL food and meds, yay!  And lots of water and Crystal Light.  Really helps!!



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Geno 1a; VL 4.7 million in Feb 2012. Started PegIntron & Ribavirin 3-9-12. Added Victrelis 4-6-12. UND since Week 8. Stopped tx Wk 23. UND 4 Wks post-tx. Relapsed 12-weeks-post.

52 y/o F, started Epclusa 11-10-19, F0/F1.  EOT 2-1-2020. UND. All liver function tests normal.
mavenchick


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MAAAAAAAAAAAAAAAAAAAAAAD!!!!!

Congrats Pamigo!  

Keep kicking goals like that and you will be a winner!



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Genotype: III, Treatment started: 5 March 2012, Peg-Interferon + Ribavirin for 24 weeks, Viral load at start of tx 6.9 million, 4 week UND WOOT WOOT!
Scout


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Glad to hear your numbers are good. I've just taken my 4 week blood work and UND with normal ALT & AST. My sides have been manageable and I'm looking at 12 & 24 right now. 3 drug protocol , incivek, peg, riba.

 

 

 

 

1A UND @ 4 weeks



-- Edited by Scout on Monday 2nd of April 2012 01:13:11 AM

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Geno 1a, Viral load at 2 4, 8, 12 and 16  weeks, UND, Triple therapy Incevek done,   Peg & Riba Done, UND and making plans for the future!!
pamigo


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Thanks again my friends.
Let's all keep going....

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Geno 1a, 30+ yrs, Non-Responder 3 times intron/ribo TX in 90s and 00s. Triple Incevik on 2/9/12. ~stopped treatment due to side effects. Started Harvoni 11-18-14 VL @ 6.8m reduced to 70 @ wk 2..so far so good. 4 wk Undected! whew! SVR 4, 3/23/15
news


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Inspireme, That is exactly the reason. Genotype 1has always been tougher to treat than the others. So the triple tx is usually for 1a and 1b . Be thankful you are 2b. Alan

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Geno 1A  Started Pegasys/Ribavirin/Incivek Nov. 20, 2011 .  Completed July 28, 2012 (36 weeks). For a treatment history, see:  https://jshare.johnshopkins.edu/xythoswfs/webview/_xy-9921874_1

SVR on January 14, 2013!!
inspireme


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Thanks Brad!

Why do some have a third medication? Just a different type of hep C?



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inspireme


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No, I am on Peg and Riba. I am type 2 B.



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Cinnamon Girl


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Pamigo, that is brilliant!  You`re off to an excellent start, keep on going!  smile

~ Jill xx



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
Judy S


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Oh yes, I get a migraine for 3 - 4 days after injections, and also my eyes get very achey.  I can't move my eyes from side-to-side without pain.  The injections really aggravate my occipital neuritis.



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Geno 1a; VL 4.7 million in Feb 2012. Started PegIntron & Ribavirin 3-9-12. Added Victrelis 4-6-12. UND since Week 8. Stopped tx Wk 23. UND 4 Wks post-tx. Relapsed 12-weeks-post.

52 y/o F, started Epclusa 11-10-19, F0/F1.  EOT 2-1-2020. UND. All liver function tests normal.
Judy S


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Pamigo, I am SO happy for you!!  Life-changing, wonderful news.   :)



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Geno 1a; VL 4.7 million in Feb 2012. Started PegIntron & Ribavirin 3-9-12. Added Victrelis 4-6-12. UND since Week 8. Stopped tx Wk 23. UND 4 Wks post-tx. Relapsed 12-weeks-post.

52 y/o F, started Epclusa 11-10-19, F0/F1.  EOT 2-1-2020. UND. All liver function tests normal.
JoAnneh


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Inspireme, Are u taking triple tx? If so which one? Joanneh

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JoAnne

Genotype 1a, Triple therapy w/Invicek started May 19, 2012

DET 4 wk. UND 2,6,12,24 48 treatment. Achieved SVR 2013!
inspireme


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Does und mean you will never have hep c again( unless Gawd forbid you got it again from another source)? I just had my 4 week VL labs today....nervous....fifth shot tonight....anyone else feel wierd in their eyes...like complete exhaustion.... I can't explain it....

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krowdog


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Yep, a 4 week Und is HUGE, and it looks pretty certain you'll get it!

Awesome!!!!

Brad

(Geno 1a, Incivek triple Tx, In wk 24 of 24)



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(Geno 1a, Incivek Triple Tx, 6 month post TX - 9/20/2012 = SVR!!!)
kmiller


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So excited for you!

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kiwi


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i know exactly how ya feel, i had a big cheesy grin on my face coz i got a text sayin ''good news, undetected'' i was driving with the youth i work with at the time, and it was all i could do not to go '''yaaaa fkn hooooo''

awesome aint it. this stuff works... pleased for ya...



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kiwi. genotype 1. started pegasus and riba on 10 nov. VL 17.6 million. (4 weeks VL 1368)  week 15 UNDETECTED... :)
pamigo


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Thanks guys....
I am still trying to absorb the ramifications.
Whew!

Pamigo

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Geno 1a, 30+ yrs, Non-Responder 3 times intron/ribo TX in 90s and 00s. Triple Incevik on 2/9/12. ~stopped treatment due to side effects. Started Harvoni 11-18-14 VL @ 6.8m reduced to 70 @ wk 2..so far so good. 4 wk Undected! whew! SVR 4, 3/23/15
krowdog


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Inspireme,

For type 1 Hep...

Undetectable at week 4 means your chances of SVR (considered permanent cure) go way up, and usually your treatment can be shortened, if you do not have cirrhosis.

If I remember, it breaks down *about* like this , for non non cirrhotics, treatment naive or relapsers, who complete Tx.  (Don't quote me on this. This is just from memory, and I don't feel like researching it..you can if you want ;)

A around 60% will be und @ wk 4, and ~ 90% of those will  SVR = 54%+

Of the 40% remaining, ~ 50% of those will SVR                          =~20%

                                                                                Total SVR=~74%+

Again this is rough, but shows the importance of cEVR (complete early viral response, or Und by wk 4).  If not, you still got about a 50/50 chance.

And yes, everyone feels weird, almost everywhere, while on tx.  For me, tired aching eyes and headache always hit after my shot.

Good luck on your V/L!!!

 

Brad

(geno 1a, Incivek triple Tx, Und since wk 4, In week 24 of 24)

                                                                      

 Note: This is for incivek.  For Victrellis, the important week is 8.



-- Edited by krowdog on Saturday 31st of March 2012 05:42:07 PM



-- Edited by krowdog on Sunday 1st of April 2012 06:01:24 AM

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(Geno 1a, Incivek Triple Tx, 6 month post TX - 9/20/2012 = SVR!!!)
Shep


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This is really great news!! It does kind of take your breath away!
Awesome!
Shep

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Diagnosed 1996 genotype 1b VL alot tx starting 12/23/11 Victrelis UND week 8!!! 28 weeks of tx

Completed tx 7/6/12--still UND!!!!
jrc209


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congratz an awesome feeling

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Geno 1 A Started Tx 8-3-11, Viral Load  21.2 Million,  4 Week Lead of Soc ,9-1-11 <43 On Soc alone started victrelis 9-3 ,8 week pcr vL und.Week 12 Vl Und, Did Week 24 PCR Results UND @ Week 24!!! 1-11-12,End Of Tx 2-15-2012 !!
TazKat


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YAY!!! That is wonderful news!!



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TazKat Genotype 1A null responder x 3 riba & iterferon twice, relapsed from Incivek 2012 with only 12 weeks left to do. stage 4 mild cirrhosis 4/25/2014/ started sovaldi riba & interferon.. finished treatment 7/17/14  results 7/25  cleared..

 

 
news


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This means you are almost certain to UND at 4 weeks, and get locked in to a 24 week program (rather than 36 like me). Way to go. Kicking that virus butt. I love it.

Alan



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Geno 1A  Started Pegasys/Ribavirin/Incivek Nov. 20, 2011 .  Completed July 28, 2012 (36 weeks). For a treatment history, see:  https://jshare.johnshopkins.edu/xythoswfs/webview/_xy-9921874_1

SVR on January 14, 2013!!
Kellyw


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Wow. Well done

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Kelly 2b dx 8/11. Tx begun 12/30/11. Apparently had it for decades.
innerview


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Awesome!!! It feels good, ay? I cried when I got my results of Undetected at week 7.

Really happy for you Pamigo!




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Peace, Mark

1A, stage 2/3, TT, began TX with Incivo 1/31/12, Week 4 VL<15, week 7 UND, week 12 UND, week 18 UND!!! End of Tx July 31 VL UND!!!  I had to do 26 weeks total and was on half Riba and half Interferon for most of Tx. 12 week post Tx VL UND!
pamigo


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Brothers and Sisters,

I have just gotten back from the doc and reviewed 2 weeks labs. I don't know I might break down, scream, explode, breath, cry or something. In two weeks of trible tx incevik labs went from ~5 million to detectable but <25. After all the years of trying....wow!

I am in shock. I know things could change, but I am going to bask in this almost unbelieveable information. I had to have the NP pinch me...I swear. I feel so blessed at this moment.

My thoughts are to all you guys that are in the fight of our lives. And for all my friends that may have setbacks in success and treatments, the strong possibilities of new/good regimens are just around the corner. I know that was always in my mind if I had gotten other results.

As we all know SVR is the gold standard and that is not guaranteed even with these incredible early results. Wow Again, I can hardly believe it. I test again in two week, I will keep posted.

I so apprecieate all of you more than I can express. Thanks for doing this with me, it is comforting.

Wow!

Pamigo



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Geno 1a, 30+ yrs, Non-Responder 3 times intron/ribo TX in 90s and 00s. Triple Incevik on 2/9/12. ~stopped treatment due to side effects. Started Harvoni 11-18-14 VL @ 6.8m reduced to 70 @ wk 2..so far so good. 4 wk Undected! whew! SVR 4, 3/23/15
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