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Hep C Discussion Forum -> On Treatment -> What About After Treatment?
Post Info TOPIC: What About After Treatment?
AlexNY


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RE: What About After Treatment?
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lol. Thats all that have been on my mind. I'm counting day for PTE lol



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I'm Alex. Diagnosed with hep c 12 years ago. Genotype 1a. Started tx on 1/31/12 Ironically, I'm an RN. VL 15.9 (!) mil.  Wk 5, 8, 12, 16, 20 - all UND :)
Shaun


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I have had a little post tx anxiety and still have a touch of insomnia but otherwise feel normal. I finished tx about valentines day. I'm back to normal weight and working out. Did a three day snowboarding trip in early April. The side effects take weeks to fade but every week you feel better and better.

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wnose


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2 weeks after tx and I'm happy to report my appetite is back with a vengeance. I was eating but with little gusto during tx. Last weekend I had a huge rack of ribs, and later today I'm going to have a nice 2 inch ribeye. I haven't been as active as you guys...even after incivek was over, I spent the next 3 months mostly on the couch/bed.

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Diagnosed Geno 1a, 1992. Relapsed after riba-peg trmt in Aug 08. Oct 22 2011: Incivek 3rx @ 18 million VL.

Day 10: <15. --------------------->>>>>>12 OCT 2012: SVR!!! 
news


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Thanks, Randy. That is he sort of response I was hoping for. You and I enjoy a lot of the same sort of activities, and I hope to follow your example. And Kim and Shep, nothing says we all have to drift apart right away. At least we'll all have the six month observation period. Well, this old slayer did communications for the MS Walk with my ham radio club this morning, now some chores for my sweetie, and into week 23 I go. Best to all my virus-butt kicking buddies. Alan

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Geno 1A  Started Pegasys/Ribavirin/Incivek Nov. 20, 2011 .  Completed July 28, 2012 (36 weeks). For a treatment history, see:  https://jshare.johnshopkins.edu/xythoswfs/webview/_xy-9921874_1

SVR on January 14, 2013!!
Hep Me


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Ha! What a grin Alan. I've been through many addictions in my life but jonesing for Riba or Peg were not one of them.

Here's a sneak preview... Just one week after tx it felt like a huge weight had been lifted off my chest. By the second week I went camping and found enough strength to maintain a campfire, walk the shores of Lake Michigan and follow my wife around antique stores (big endurance test there). Week three found me fishing for salmon on Lake Michigan and vomiting profusly (as apparently the sx had not all worn off yet - it was the first time I've ever been seasick). Before the year was out I had cut firewood for the winter, done short spurts on my mountain bike, went deer hunting, and most important of all, gained a new appreciation for life.

You are gonna love it man.

Take care,
Randy

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"Ah but I was so much older then, I'm younger than that now."  Bob Dylan
innerview


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krowdog wrote:
news wrote:
 Is there such a thing as "post-teatment depression"? ....

Alan

 More like "post-treatment elation"!!!

Brad

 I am ready for that PTE!!!  I can hardly wait! I still have 12 weeks to go on tx and it feels like it may take some months after to get to feeling healthy, energized, creative, excited and joyful again. 

May PTE  be with you all!



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Peace, Mark

1A, stage 2/3, TT, began TX with Incivo 1/31/12, Week 4 VL<15, week 7 UND, week 12 UND, week 18 UND!!! End of Tx July 31 VL UND!!!  I had to do 26 weeks total and was on half Riba and half Interferon for most of Tx. 12 week post Tx VL UND!
alohaKim


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news wrote:

So what will I do when I finish? There is going to be a huge vaccuum. Yes, I will rejoice in my good fortune, embark on a healthy and liver-friendly life style, etc. But what else? Where will all the attention be pointed? I have no clue. Is there such a thing as "post-teatment depression"? Wouldn't that be a mess?

Alan

 Oh, I absolutely cannot wait until THAT is my problem!!!  wink

 I agree with Shep, one of the hardest things for me will be missing out on the friendships I've made with you all.  For example, the week Shep was waiting for her labs I checked the forum each day with her in mind, and  when she posted her UND status I cried tears of joy for her.  Over-emotional sx??  Umm, maybe.  lol!   But I am also thrilled that so many of us are clearing the virus and are able to move on with life.  It is an extraordinary thing that we are all here for each other now.  I cherish each & every one of you!   

Brad- love the climbing pics! 



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Genotype 1a, non responder to Peg/Riba in 2005. Started triple therapy 1-27-12 with Victrelis.  UNDETECTABLE as of 8wk labs (after 4 weeks of Victrelis) 4-3-12. UND at week 8, 12, 16 & 20 of tx. Completed triple therapy Oct 2012. relapsed 10/2012
krowdog


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news wrote:
 Is there such a thing as "post-teatment depression"? ....

Alan

 More like "post-treatment elation"!!!

Brad



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(Geno 1a, Incivek Triple Tx, 6 month post TX - 9/20/2012 = SVR!!!)
Shep


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Oh WoW! Must be something in the air--I was having some "what's it gonna be like after tx" thoughts today myself. It does become the overconsuming, overwhelming ordeal which seems endless but all you can focus on is the end. But then what happens? How do you get back to normal? And what in the world is normal. So much has changed since I started this particular journey.
I have been making post -tx plans for things like---working in the yard and garden. traveling over the summer--but what really concerns me is that I will lose touch with my dragon-slaying partners. These relationships have become very important and I know we will all move on--which is how it should be.

Brad-I love your pictures--they are inspiring. I want to get out and climb things, ride bikes, mow my own lawn, dig holes, plant stuff. And your post-tx thoughts here are also inspiring.
Alan--I can't image you every being down--you are a trooper and so up-beat!

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Diagnosed 1996 genotype 1b VL alot tx starting 12/23/11 Victrelis UND week 8!!! 28 weeks of tx

Completed tx 7/6/12--still UND!!!!
news


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Something occurred to me today. Since November 20, 2011 I have been involved in the most intense process I have ever imagined. Multiple daily doses of several drugs, at least one injection every week, refrigerated medicines, fatty meals and snacks at medicine time, side effects management to beat the band, many trips to the lab for draws, many doctor visits, many days where I wanted to die so I could get better, etc.

So what will I do when I finish? There is going to be a huge vaccuum. Yes, I will rejoice in my good fortune, embark on a healthy and liver-friendly life style, etc. But what else? Where will all the attention be pointed? I have no clue. Is there such a thing as "post-teatment depression"? Wouldn't that be a mess?

Alan



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Geno 1A  Started Pegasys/Ribavirin/Incivek Nov. 20, 2011 .  Completed July 28, 2012 (36 weeks). For a treatment history, see:  https://jshare.johnshopkins.edu/xythoswfs/webview/_xy-9921874_1

SVR on January 14, 2013!!
krowdog


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Great question News. 

For 6 months I spent my time focused on all things TX related.  Doc appts, food, symptoms, making excuses for my brain fog ;) , this forum, etc.  I told myself everything else can wait until I finish.  This is no easy thing we do. Well, I've finished,  so now what?

My first reaction was what you said, a healthy lifestyle.  I'm overcompensating there a little, but that's ok.  In the last 2 weeks I'm getting out a lot, climbing some, catchin' sun, and really enjoying it.  But in addition, my plans and goals are beginning to replace my fixation on TX.  Also, I look around the house and see the projects I put off until after TX. 

I dont think you'll get a huge vaccuum.  I think your attention will gradually find other, "normal" things to focus on.

And that's a wonderful thing.

Brad

(The avatar pic was my last outing on Sunday...Fun fun fun!)



-- Edited by krowdog on Friday 20th of April 2012 02:38:34 AM

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(Geno 1a, Incivek Triple Tx, 6 month post TX - 9/20/2012 = SVR!!!)
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