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Hep C Discussion Forum -> On Treatment -> results.?? not sure
Post Info TOPIC: results.?? not sure
kiwi


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RE: results.?? not sure
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hahaha yeh, maybe we are all just zombies in real life but now we have an excuse. hee hee.

ah well. about to have shot 28, only 20 to go. hahaha yeh, only. right...

i assume im gettin the results in the post, coz no return call from nurse and she said she would only ring with a problem.

all i know is my wbc are less than half of the lower end of the scale for us humans... and my haemoglobin is down as well.

makes sense bein a zombie i guess.

k2 yeh i had some work stuff, didnt care. sent it late. of course lost the plot last week and hit someone with a bottle (holy shyte was that really me.?) 2 days off work this week, cant really be bothered with much at the moment. thank god its winter and i can just hibernate happily in my own little nest...

with my purple pooch of course. oh and btw i do have 1 cat, 1 chicken, and 1 goat. as well as our 1 dog purple and oh me, 1 human... im half of noahs ark...

thanks for the smiles people. we just gotta laugh eh bunch of cheesehead, zombie, sloth, dont mess with us, on treatment humans... ah we rock.!!



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kiwi. genotype 1. started pegasus and riba on 10 nov. VL 17.6 million. (4 weeks VL 1368)  week 15 UNDETECTED... :)
chatterbox


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Hahaha. Zombie. Cheesehead. I have felt like this before treatment. Am I alone. I sure hope this goes away with the virus. My son graduates high school in a month and I need to be all there!

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Debra

 

Geno type 1a1b

Began Peg/Rib 4/16/2012  

Began Victrelis May 14, 2012            4 week and 8 week labs undectable

12 weeks und. 16 weeks und. Week 17 Cut peg, added Neopogen 5+months und.!
K2


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kiwi wrote:

 

OH AND WALKING DEAD. HAHA, i can picture a group of zombies like us wandering around, very slowly and having frequent rests. lol ya gotta laugh.

yeh thats me first thing in the morning, no wait, that could be any time of the day...

 


Bahahahahaha, ZOMBIES

Shep- zombie princess. gorgeous, none the less i'm sure. 

Kelly- Classic!!!

I reversed my car into a building the other day (ever so slowly), punched my cruise control buttons another day(broke them), submitted a report for work (a month late). Generally I feel like a brain dead sloth.

Kiwi- By all means just ask. It's your health, your results!

See, I know I want to say more but I can't think anymore atm so bye for now. AARRGGGHHH

 

 



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genotype 1a. started pegasus and riba on 25/03/2012 added victrelis after 4 weeks, treatment naive. CHC. 4 weeks UND & continue to be so far. Finish tx 6/10/12. Fingers crossed for SVR.
Phil G


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Good job, Kiwi. If you don't ask, you'll never know, they won't either, nothing will change, and it will continue to eat our lunch.

When this is all over, and I loose the tx excuse, I am afraid I am going to have to admit I'm a natural-born for-life cheese head.



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Geno 1A, VL 1.9 mm, SOT 12/2/11 - Pegintron/Ribavirin/Victrelis, UND since wk 8, EOT 6/15/12 (28 wks), SVR 11/30/12
news


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Good morning, Kelly. Swiss cheese brain or not, you rule. Week after week you keep plugging along, and now you are down to the wire. Before long this whole thing will be just another accomplishment. We're a strong group of slayers, and a lot of my strength comes from "nose-to-the-grindstone" folks like you who just do it. Good weeks, bad weeks, terrible weeks. Just more knotches on the pistol grip. So next time you go the wrong way out of the doctor's office and end up in the parking lot on the opposite side of the building from your car, smile, put your chin up, and strut right back past that door and wave at everybody inside. Not everybody can do what you are doing. Alan

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Geno 1A  Started Pegasys/Ribavirin/Incivek Nov. 20, 2011 .  Completed July 28, 2012 (36 weeks). For a treatment history, see:  https://jshare.johnshopkins.edu/xythoswfs/webview/_xy-9921874_1

SVR on January 14, 2013!!
Kellyw


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Went to see my hep nurse today, turned out my appointment was yesterday. They could not reschedule on the spot so I appilogized for being a ditz walked out and turned the wring direction, had to pass the door again and I heard a patient chuckle, don't blame them it was funny looking no doubt but felt like this is all catching up. I think the annoying part for me is when I am at the point where I can say I have one month left, my head tells me it will be a piece of cake the worst is over then I do more Swiss cheese brain stuff... And either sleep 12 hours a night or 4. Anyway just going along. I liked picturing purple ther getting a head rub.

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Kelly 2b dx 8/11. Tx begun 12/30/11. Apparently had it for decades.
Shep


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Hey Kiwi
I am the zombie princess! Been feeling a bit tired, fatigued and exhausted myself lately. Sat down on the couch the other day & the next thing I knew I was horizontal and stayed that way for an hour. Didn't wanna move, wasn't gonna move and couldn't move.

Had a visit with the ole doc today also--my WBC has dropped --so he reduced my Pegasys. RBC are low but steady and the thyroid is normal again for the 1st time in months!

Hugs to you & Purple

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Diagnosed 1996 genotype 1b VL alot tx starting 12/23/11 Victrelis UND week 8!!! 28 weeks of tx

Completed tx 7/6/12--still UND!!!!
kiwi


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thanks guys. yeh, i gave purple a pat, and yeh she is right here.

apparently the lab cant give me results, they said patients read into stuff they dont know about haha. but im gonna go see my gp today and try and get copies, and arrange to have them sent to me. if its possible.

im going back to work today, had two days off. feel a little better, but also feel guilty for having time off work. cant win eh..

 



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kiwi. genotype 1. started pegasus and riba on 10 nov. VL 17.6 million. (4 weeks VL 1368)  week 15 UNDETECTED... :)
news


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Yeah, kiwi those numbers are a bit low, and would totally explain why you feel drained. It worries me a little that she just read the numbers back, but they are just low, not dangerously low. Hopefully someone is actually watching them. 

Give purple a rub on the ears for me. I'm sure she's laying right there.

Alan



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Geno 1A  Started Pegasys/Ribavirin/Incivek Nov. 20, 2011 .  Completed July 28, 2012 (36 weeks). For a treatment history, see:  https://jshare.johnshopkins.edu/xythoswfs/webview/_xy-9921874_1

SVR on January 14, 2013!!
davesf


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Kiwi, what are the rules for dispersing lab results in your country. Can you get your copies directly from the lab or does it have to come from the doctor? (It varies here in the the USA depending on the state. In CA they can copy the results to the patient but only with the doctors permission. I have my results faxed to me direct from the lab as soon as they're available.)

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All Done Poisoning the Dragon that Used to Poison Me

Genotype 1b  Incivek Combo
Phil G


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Kiwi, my WBC and neutrophils have been bouncing from low to high just about weekly for the last 8 weeks, WBC 1.9-3.1, NEU 0.9-1.9. If I just looked at one lab, think I'd go crazy. Tired enough dealing with the HGB.

'Arent exactly 'hands on'' is a very decent way of describing my providers. I have never been called with results, even the UND's. I have to go in and ask for them, and then watch them dig thru a pile of papers to find them and then just hand them to me, but I continue to show up without fail each week. I honestly believe my dr sees them for the first time at our monthly followup appt, weeks after I get them. Please do get copies of your results. Keeping an eye on the trends has kept me somewhat sane.



-- Edited by Phil G on Tuesday 15th of May 2012 07:54:04 PM

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Geno 1A, VL 1.9 mm, SOT 12/2/11 - Pegintron/Ribavirin/Victrelis, UND since wk 8, EOT 6/15/12 (28 wks), SVR 11/30/12
Kellyw


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Hey kiwi. I have that feeling too. Like I should be able to be normal.i don't even know what normal should be any more. Feels like I forgot who I used to be. I'm wondering if anyone is keeping an eye on your labs while nurse is gone. If your counts go too low they want to put you on something to bump them up. I've been on those shots for sometime. Love the zombie visual. That seems perfect

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Kelly 2b dx 8/11. Tx begun 12/30/11. Apparently had it for decades.
innerview


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I'm with you Kiwi! Feeling pretty weak indeed. My neutrophils dropped to .4 this week so dr called me back in for more labs tomorrow. I can't take the interferon until the count goes up. My Hgb went up slightly this week from 9.3 to 9.9 (still low). but starting to feel like the walking dead.

Hang in there!

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Peace, Mark

1A, stage 2/3, TT, began TX with Incivo 1/31/12, Week 4 VL<15, week 7 UND, week 12 UND, week 18 UND!!! End of Tx July 31 VL UND!!!  I had to do 26 weeks total and was on half Riba and half Interferon for most of Tx. 12 week post Tx VL UND!
kiwi


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ast 42   alt 62 (up a bit)  haemocrit  .35 (low)  neutrophils .8 (up but still very low)  wbc 1.8 (low) lymphocytes .7 (dunno)
was the nurse at my gp. she was nice. but only giving results out, nothin else
not really sure what it means except thats why im feeling so tired out..

i know my wbc is low. and my neutrophils are low. i havent got a whole chart to compare and my hep nurse is away all month... (bleh)

my 24 week viral load hasnt come back, it always takes longer.

not really sure what it all means. but would explain why i havent been bothered to even go out the house for the last two days let alone work... jeez i gota get my act together, i feel weak and lazy but i know its the tx. but its hard not to feel weak...

battling



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kiwi. genotype 1. started pegasus and riba on 10 nov. VL 17.6 million. (4 weeks VL 1368)  week 15 UNDETECTED... :)
kiwi


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thanks mate. its so nice to know this aint in my head, sometimes i swear you feel like you should be able to get up and be normal, but i just cant...

i would say without this forum i may have lost the plot a while back, coz my healthcare providers arent exactly 'hands on' for instance, nurse away for a month, i have to ring for my own results and just am left to get on with it... (lucky my gp nurse just read out the results, no viral load yet either. waiting)

said this before, but thanks everyone, even reading, and learning makes a huge difference...

cheers :)

but when she does get back im gona request a copy of all my results so I can keep an eye on the trends as well.

OH AND WALKING DEAD. HAHA, i can picture a group of zombies like us wandering around, very slowly and having frequent rests. lol ya gotta laugh.

yeh thats me first thing in the morning, no wait, that could be any time of the day...



-- Edited by kiwi on Tuesday 15th of May 2012 10:13:37 AM



-- Edited by kiwi on Tuesday 15th of May 2012 10:15:12 AM

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kiwi. genotype 1. started pegasus and riba on 10 nov. VL 17.6 million. (4 weeks VL 1368)  week 15 UNDETECTED... :)
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