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Hep C Discussion Forum -> On Treatment -> Fire in the hole has turned to shards of glass!
Post Info TOPIC: Fire in the hole has turned to shards of glass!
scotu


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RE: Fire in the hole has turned to shards of glass!
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It does get better!  Especially when viral load is undetectable.

My "fire in the hole" came near the end of taking the Telpravir, and continued almost to the end of treatment,  learned to take a lot of baths.  Actually lead to a fistula and surgery.  Doc also prescribed several (prescription strength) ointments.

Hang in there...



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ScotU - Age 61, Geno 1A, Diagnosed 1999. Cirrhosis (so no more biospy's), but decent MELD score.  Too many studies, trials, and treatments to remember!  24 Week Harvoni (w/ Ribavirin) Trial - SVR @ 24 Post - 8/28/15
gatekeep


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" passing glass" I made the BIG mistake of eating whole nuts( peanuts, cashews,ect) and trail mix for the fat. Worst Pain Ever! Watch in big fiber IMO .

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25 yrs HepC. type 1a geno. 6mill viral load,3.5 out of a 4 liver biop.started Sept.19, 2012,Tx.Rib.,Incivek, Peg,4wk. Vl 61,undetected @12 wks,undetec.Wk 24
gatekeep


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I had my NP from a drug company laughing uncontrollably when she asked me to describe the pain. My reply was in a very serious tone " Medieval" she told me she had been doing Hep work for years and never heard it put so perfectly. Her remedy , More water Bland soft diet Hydro cortisone/ lanocain inserted rectaly. Gentle washing ( baby wipes) Warm soothing shower bath. I drink over a gallon of water. I have done all the above. I still sometimes get the fire. No two days are the same. Hope you feel better. Brian

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25 yrs HepC. type 1a geno. 6mill viral load,3.5 out of a 4 liver biop.started Sept.19, 2012,Tx.Rib.,Incivek, Peg,4wk. Vl 61,undetected @12 wks,undetec.Wk 24
iggle


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I don't miss these days! Once you finish incivek this gets much better. Try your best to manage the side effects until then.



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wilsondog


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I'm telling you witch hazel is the only relief I've found for the burning! It's so soothing and brings immediate relief. If the burn continues after the bathroom, wear a pad that has been soaked in witch hazel then kept in the freezer!

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wilsondog
iggle


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my doctor told me to take miralax and a script for hydrocortisone cream. i'll update people if it works well for me.



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12Step Guy


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Question? Has anyone found any sort of food consumption to mitigate the fire? Such as higher fiber? Low acid foods (good bye Jalapenos) Mass quantities of oatmeal or ????



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Genotype 1a, IL 28 = CT  Interferon and riba 48 wks in 99, Daily Peg and Riba 18 months in 2007, Started Incivek, Peg, Riba 6/21/12. 4th stage cirrhosis. Last Dart will be May 23 2013.
iggle


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i have been dealing with this and it really sucks. doc told me to use tucks and that gives some relief, but the fire seems to keep coming back.



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Karen


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This may sound strange but it works great for fissures "Mary Kay Extra Emollient Night Cream".  My doctor recommended this product after seeing the amazing results in her clinic.  Not sure how well it will relieve "fire" and "glass" discomfort but worth a try as it seems to protect and promote healing of the area. Good news, no risk of constipation from taking internal meds.



-- Edited by Karen on Monday 18th of June 2012 01:42:45 PM

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Geno Type A1- VL 16.2m - F1-F2 Moderate Fibrosis - Started treatment 4/16/13 Sofosbuvir/Ledipasvir 6 months -  UND week 4 (5/14/13) - EOT 10/1/13 - 12wk blood draw 12/20/13 UND - 24wk/final blood draw March 2014
davesf


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Ouch, Kate, I am so sorry.  I know what you are going through.  I had hemmorhoids.  After reading up on treatment symptoms I decided to get my back end in prime shape before I started.  While getting them banded, we discovered that I had had a fissure for a long time.  That required some outpatient surgery and about 6 weeks healing time.

Hopefully yours will heal on it's own as is common.  But still it's the last thing you need right now; there's enough back end discomfort already.

Sending you healing thoughts as I write.  Dave



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All Done Poisoning the Dragon that Used to Poison Me

Genotype 1b  Incivek Combo
Margo


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JoAnneh wrote:

Kate, no sooner than I wrote u I was better
I started having episode. Fire in hole returned.
Painful:(
Please let me know about ointment
Joanne

Hi Joanneh, sorry to hear that you have so much discomfort. I've read that taking antihistamines before bed can help relieve that. Try Benadryl before sleep. Let me know how you feel (:

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Geno 1b, relapsed in 2009 a week before my treatment was to be over. Started triple therapy on April 28th, 2012. UND at week 4,8,12,24,3 months post tx.
JoAnneh


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Kate, no sooner than I wrote u I was better
I started having episode. Fire in hole returned.
Painful:(
Please let me know about ointment
Joanne

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JoAnne

Genotype 1a, Triple therapy w/Invicek started May 19, 2012

DET 4 wk. UND 2,6,12,24 48 treatment. Achieved SVR 2013!
JoAnneh


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Oh Kate! Finally an answer to your problem.
Thank u for sharing as I have been battling pain in the area better last two days!
I hope the ointment helps instantly. Please keep us posted.
Sorry u r hurting! JoAnne

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JoAnne

Genotype 1a, Triple therapy w/Invicek started May 19, 2012

DET 4 wk. UND 2,6,12,24 48 treatment. Achieved SVR 2013!
wilsondog


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Update: I have a anal fissure!  It probably happened as I was transitioning off Insivek and was on Prednesone. It comes from having a difficult bowel movement that tears the inside of the anus and gets re-injured with each movement. I am relieved to know whats happening, but it almost makes it worse to realize I am injured rather than toughing it out because it's caused by the meds!  I have been prescribed an ointment that couldn't be filled right away because of special mixing procedures, so I'll have it tomorrow.  So, I'll let anyone who wants to know what it is.  Be careful with yourselves, this sucks!!!!



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wilsondog
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In my experience, the broken glass and sulfuric acid poop goes away a week or two after the Incivek runs out. I was better in a week and "well" in two weeks. It was my opinion that I was so raw that as things returned to normal this new type of pain started. One thing's for sure..... treatment is a thrill a minute.

Alan



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Geno 1A  Started Pegasys/Ribavirin/Incivek Nov. 20, 2011 .  Completed July 28, 2012 (36 weeks). For a treatment history, see:  https://jshare.johnshopkins.edu/xythoswfs/webview/_xy-9921874_1

SVR on January 14, 2013!!
bauhaus76


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hi guys me too!!! :(....i must say that it comes and goes its not al the time and i found something very helpfull i put a jet of cold water(from the shower)for a couple of minutes on it and it kind of goes inside again and it reliefs for a couple of times ahead!! LOL  i try to keep positive ....



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hep c 1a on triple therapy with incivek UND at week 12 ,week 24...going for 48 weeks.
Form


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I have the same happening to me. I finished Incivek 28 weeks ago. Have 8 weeks left of treatment. Lots of bleeding and pain down there. When its time to go I want to cry so I know how you feel. I have tried all the ointments with no relief.

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Davidson69


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Try TUCKs pads.



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wilsondog


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I think it's more the texture of the poop rather than the damage done to my poor butt from Incivek.  I just wondered if anyone else experienced this on the Interfuron and Ribaviron only.  It may be a matter of diet and water intake, but I'm always drinking water.  Perhaps more fruit and less bread.  I have been eating alot of bread lately.  Always something on this adventure!  I can't believe I only have 5 shots left!!!!



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wilsondog
Shaun


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wilsondog wrote:

At risk of being too graphic here, my Insivek fire poop went away when I finished that, but has been replaced with what feels like broken glass! What is up with that? I have serious pain from bleeding hemerroids too! Anyone?

 I had residual damage from the Incivek.  Still doesn't feel 100% right and Im 3 months post tx.

Ask for some hydrocortizone soppositories.



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JoAnneh


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What are u doing to help hemmoroids?

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JoAnne

Genotype 1a, Triple therapy w/Invicek started May 19, 2012

DET 4 wk. UND 2,6,12,24 48 treatment. Achieved SVR 2013!
JoAnneh


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Kate, call your doctor? Have u completed Invicek?
How long ago? My fire in the whole hurts too. Doc has me on
Prescription suppository. We got to stay on top of these symptoms so
Doctor won't take us off the medicine. Didn't u have to stop Invicek early?
These hemmoroids were already messed up from Invicek.
Let me know what foc says
Love, JoAnne

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JoAnne

Genotype 1a, Triple therapy w/Invicek started May 19, 2012

DET 4 wk. UND 2,6,12,24 48 treatment. Achieved SVR 2013!
wilsondog


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At risk of being too graphic here, my Insivek fire poop went away when I finished that, but has been replaced with what feels like broken glass! What is up with that? I have serious pain from bleeding hemerroids too! Anyone?

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wilsondog
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