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Hep C Discussion Forum -> On Treatment -> Well, It Figures...
Post Info TOPIC: Well, It Figures...
LanaiSurferGirl


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RE: Well, It Figures...
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Alan, I am sorry that you didn't get to ride today and about your legs/Adam going over the handlebars but glad you got to participate!

My husband is back from deployment and we have had a great few days of hanging out.  He is taking me on a surprise birthday trip tonight he planned when he was still in Afghanistan...I have an amazing husband :)

aloha,

Meghan



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geno 1a, mother & brother also hep c +...mom got a blood transfusion and passed it along.  Started tx with incivik 11/23/11 and brother started 2/8/2012.  Both of us und. at 4,8,12 and me at 24.  I am going 36 wks and brother is going 48 weeks.
davesf


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Alan, congrats and thank-you for a successful ride despite the set-backs!



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All Done Poisoning the Dragon that Used to Poison Me

Genotype 1b  Incivek Combo
Shep


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Alan--you truly are amazing! Glad you are resting today

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Diagnosed 1996 genotype 1b VL alot tx starting 12/23/11 Victrelis UND week 8!!! 28 weeks of tx

Completed tx 7/6/12--still UND!!!!
JoAnneh


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Alan, amazing feat! Rest up!
Glad u r still w us:)
JoAnne

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JoAnne

Genotype 1a, Triple therapy w/Invicek started May 19, 2012

DET 4 wk. UND 2,6,12,24 48 treatment. Achieved SVR 2013!
news


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Well, today is Sunday, another very sunny, warm Maryland morning. I elected not to ride today. I made my 62 miles yesterday, but just barely. The sun was incredibly bright, and my legs broke out in a splotchy, puffy rash that looked serious. I wore long sleeves, and a scarf behind my helmet, and gloves, but there is nothing I can do about the legs. Even SPF85 sun dope didn't seem to help. So today is R&R day. Adam is working with bike repair guy. Yesterday at mile 46 he went over the handlebars when his back wheel came loose and locked up. He hit hard, and got a few patches of road rash. He's all patched up today and twisting wrenches for Mt. Airy Cycle. So all is well, even if we didn't get as many miles as we wanted. Alan

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Geno 1A  Started Pegasys/Ribavirin/Incivek Nov. 20, 2011 .  Completed July 28, 2012 (36 weeks). For a treatment history, see:  https://jshare.johnshopkins.edu/xythoswfs/webview/_xy-9921874_1

SVR on January 14, 2013!!
Shep


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I am so excited for you! Sounds like you are taking all the precautions. Just pay attention to what your body is telling you! Have a great ride!

Super Alan!

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Diagnosed 1996 genotype 1b VL alot tx starting 12/23/11 Victrelis UND week 8!!! 28 weeks of tx

Completed tx 7/6/12--still UND!!!!
news


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Thanks, guys. Yeah, JoAnne, there is no way I could have sat on a bike saddle in the first twelve weeks. Too much irritation. But now I'm ok. Got most of the stuff packed into the car today. Getting excited. The obvious differences this year are: 1). Long sleeve white T-shirt for both days. 2). Number 50 sun screen for the whole body. 3). A small, floppy cooler with two ice packs to keep my Pegasys shot kit cool until Saturday night. 4). Three water bottle cages on the bike instead of the usual two. 5). A scarf rigged to the back strap of the helmet to shade my neck and ears. So you see, I am trying to do this the right way. The only penalty for goofing it up is taking a ride in the SAG wagon. I am a ham radio operator and will be able to call for support from anywhere on the course. The biggest problem will be convincing Adam that I really should stick to a metric century (63 miles) on Saturday. He wants me to go 100. But it ain't happening. I promise a complete report and pics early next week. Alan

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Geno 1A  Started Pegasys/Ribavirin/Incivek Nov. 20, 2011 .  Completed July 28, 2012 (36 weeks). For a treatment history, see:  https://jshare.johnshopkins.edu/xythoswfs/webview/_xy-9921874_1

SVR on January 14, 2013!!
Cinnamon Girl


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Best of luck Alan, what an amazing thing to do!!  smile  I am so impressed with your strength and endurance, I could just about walk from the sofa to the kitchen most of the time on tx!

Looking forward to hearing all about it and seeing the pics, just make sure you take good care of yourself.  You`re a sensible guy, I`m sure you`ll be fine. 

Enjoy the ride!  sprint.gif

~ Jill xx



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
JoAnneh


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Alan, just curious...doc is playing u to ride this hard?
First, I couldn't sit on the bike w side effects from fire in the hole:) and I can't tolerate any Sun or heat.
I bet your wife is shaking her head;)
Be smart and rest
Keep us posted, JoAnne

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JoAnne

Genotype 1a, Triple therapy w/Invicek started May 19, 2012

DET 4 wk. UND 2,6,12,24 48 treatment. Achieved SVR 2013!
Shep


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Yea Alan! I am very happy for you and really,really impressed about this bike ride. I can't muster the energy to pump up my tires. Hope you have a great ride and we need a full report (with photos!). Take care

__________________

Diagnosed 1996 genotype 1b VL alot tx starting 12/23/11 Victrelis UND week 8!!! 28 weeks of tx

Completed tx 7/6/12--still UND!!!!
news


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Thank You, Shep and JoAnne

Count on the stories and pictures. Happens every year. And I think the 800mg Riba dose has helped me get some energy back. Monday-Tuesday after my shot are a little bad, but Saturday-Sunday are fine, as days go in treatment. Thanks for the good wishes.

Hey Brad,

It's a metric century (63) on Saturday, then a half century (50) on Sunday. My knuckles will be dragging the ground by Sunday night. So I took Monday off, too, for a recovery day. I'll let you know how I do. I just have to pay attention to the body and heed its warnings. When I get titred I'll stop.



-- Edited by news on Wednesday 6th of June 2012 11:27:21 PM

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Geno 1A  Started Pegasys/Ribavirin/Incivek Nov. 20, 2011 .  Completed July 28, 2012 (36 weeks). For a treatment history, see:  https://jshare.johnshopkins.edu/xythoswfs/webview/_xy-9921874_1

SVR on January 14, 2013!!
JoAnneh


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Alan, amazing what we will do for our grand babies!
My hat is off to you please be smart! Congratulations for saying yes to such a task. Like Phil I couldn't do it! Keep us posted and rest up as needed;) JoAnne

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JoAnne

Genotype 1a, Triple therapy w/Invicek started May 19, 2012

DET 4 wk. UND 2,6,12,24 48 treatment. Achieved SVR 2013!
krowdog


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Two WHOLE days, just to do 1 1/2 century ride???  Well, since you're on TX, we'll cut ya' some slack ;))

Honestly Alan, I admire you.  This will be grueling on TX.

Congrats on the $1300.00, too! 

I bet it would darn near take an act of god to stop you from doing this, but it's good for the heart (the spiritual one).

Keep it up,

Brad

 

 



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(Geno 1a, Incivek Triple Tx, 6 month post TX - 9/20/2012 = SVR!!!)
news


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Thanks, guys. The labs came back with a note from the CRNP...."Labs look great...enjoy the bike tour!" so I officially have permission to participate. It never ceases to amaze me what the doctors and nurses consider normal bloods for us. Anyone else would be sent to the emergency room for labs like these. But not us. I'll get the numbers into the spreadsheet soon to share with you. By this evening I feel a lot better. Just poked around the yard today cleaning up and helping in the garden. I have the week off so we have been sleeping in and getting the work done before it gets too hot. So Friday afternoon off we go to the Eastern Shore and a weekend of fun for a good cause. Alan

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Geno 1A  Started Pegasys/Ribavirin/Incivek Nov. 20, 2011 .  Completed July 28, 2012 (36 weeks). For a treatment history, see:  https://jshare.johnshopkins.edu/xythoswfs/webview/_xy-9921874_1

SVR on January 14, 2013!!
mallani


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Alan, I'm very impressed you could do something like a charity bike ride. There is no way I could do that- I cannot even hit golf balls due to dizziness. My Hb is 10 at 12w. and really the Sx have not improved since I started the Vict. Good luck- you give me hope that I may improve.

 

 

1b, VL 1.28m, undet.at week8



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
Phil G


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Hey Alan, You know as well as anyone else that good days and bad days come and go with no obvious explanation. The added stress of having to perform on tx, especially something that physical, would probably eat my lunch. Rest and taking it easy is always a good idea. You'll be fine. I am going to an 8pm concert (Buddy Guy/Johnny Lang) in the big city one week after finishing tx, and I am already worrying about whether I'll make it thru the late night, and all I have to do is stay awake and enjoy it.



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Geno 1A, VL 1.9 mm, SOT 12/2/11 - Pegintron/Ribavirin/Victrelis, UND since wk 8, EOT 6/15/12 (28 wks), SVR 11/30/12
news


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Went to get Week 28 draws yesterday morning, as I am starting my eighth box of Pegasys. Waiting for the results now. It's important to me this week because in a few days I go to Chestertown, MD for the MS 150 Bike Tour, a charity ride 150 miles long in two days. I expect to take a bit of a short cut and get 63 miles Saturday and 50 on Sunday. But this morning I wake up stiff, sore, and short of breath, with not much stamina. I hope these labs don't show my hematocrit is too low again. Been on 800mg/day riba for weeks now, and feeling fine. Maybe this is just the pre-event jitters. The gransdson is going to freak out if I can't pedal, since between us we have raised $1300 for the cause. I think I better take it easy the rest of this week, and pray for good news on the labs. Alan

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Geno 1A  Started Pegasys/Ribavirin/Incivek Nov. 20, 2011 .  Completed July 28, 2012 (36 weeks). For a treatment history, see:  https://jshare.johnshopkins.edu/xythoswfs/webview/_xy-9921874_1

SVR on January 14, 2013!!
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