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Hep C Discussion Forum -> On Treatment -> Started Tx today.............Confused schedule...........
Post Info TOPIC: Started Tx today.............Confused schedule...........
chatterbox


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RE: Started Tx today.............Confused schedule...........
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My alarm 7:30 am and 7:30 pm .......rib and some vitamins 12 hours apart

Other alarm 6am, 2pm, 10pm Victrellis  should be 7-9 hours apart.

Monday alarm 6pm take tylenol, get shot out of fridge

Monday alarm 6:30pm take Peg



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Debra

 

Geno type 1a1b

Began Peg/Rib 4/16/2012  

Began Victrelis May 14, 2012            4 week and 8 week labs undectable

12 weeks und. 16 weeks und. Week 17 Cut peg, added Neopogen 5+months und.!
K2


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Hi Andismile good bye , good luck with your tx.

My alarm setting are as follows;

7am-Riba & Vic

2pm-Vic

9pm-Riba and vic.

works ok for me no sleep issues after first couple of days.  After reading this  I suppose I should move 9pm riba to 7pm. Will read Steffs link to see if it is a real issue, But 3 alarms keeps things simple enough.

Kristy. X



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genotype 1a. started pegasus and riba on 25/03/2012 added victrelis after 4 weeks, treatment naive. CHC. 4 weeks UND & continue to be so far. Finish tx 6/10/12. Fingers crossed for SVR.
Kellyw


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Whoa Judy. I thought I had it bad, 1 interferon, 2 neupergin and one procrit ea week. You have an additional! I certainly relate to bruised thighs and tummy.

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Kelly 2b dx 8/11. Tx begun 12/30/11. Apparently had it for decades.
Judy S


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Hi Andi, and welcome.  Many of us have our phone alarms maxed out for our various tx meds.

My schedule:

7:00 am - Victrelis & Ribavirin

2:30 pm - Victrelis

7:00 pm - Ribavirin

10:00 pm - Victrelis

Interferon injections Friday nights; Neupogen injections Sat nights; Epogen injections will come next week; that will be Sun nights.



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Geno 1a; VL 4.7 million in Feb 2012. Started PegIntron & Ribavirin 3-9-12. Added Victrelis 4-6-12. UND since Week 8. Stopped tx Wk 23. UND 4 Wks post-tx. Relapsed 12-weeks-post.

52 y/o F, started Epclusa 11-10-19, F0/F1.  EOT 2-1-2020. UND. All liver function tests normal.
Margo


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andi68 wrote:

No, this is my first time doing Tx.  Kinda scary but so far I'm okay. I was half asleep when my partner woke me up toremind me of my meds and did my shot with no problem lol.  How are you doing on your Tx?

 

Thx

You should put reminders in your phone, very helpful. In a few weeks you'll tend to forget things and missing or being late for your incivek is not good. Good luck!

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Geno 1b, relapsed in 2009 a week before my treatment was to be over. Started triple therapy on April 28th, 2012. UND at week 4,8,12,24,3 months post tx.
andi68


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No, this is my first time doing Tx.  Kinda scary but so far I'm okay. I was half asleep when my partner woke me up toremind me of my meds and did my shot with no problem lol.  How are you doing on your Tx?

 

Thx



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Kellyw


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OMG Steff. I have had a preference for fatty foods since I startedtx. Before I was a veggie and rice only person with a sweet tooth. I bought butter and cheese andmayo for the first time in years since I've been on tx. I feel a little better about it now it was helping me? Yeah I just hope I can go back!

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Kelly 2b dx 8/11. Tx begun 12/30/11. Apparently had it for decades.
greenqueen


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Hi All,

According to the info leaflet, it should be taken 12 hours apart. It should also be taken with food, preferably with a high fat content to help absorption and prevent gastric problems. I'm sure the folk on Triple Therapy have had enough of fatty foods, though!

Some more info here about the Riba

http://hepatitis.about.com/od/treatment/p/ribavirin.htm

Love Steff xx



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Geno 3a. 24 wks tx 20/10/05 - 06/04/06. Achieved SVR.
kr


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My PA says it doesn't matter when you take the Ribavirin just 5 a day in my case



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Margo


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I have the same scheduale! Incivek at 7am, 3pm and 11pm. Ribavirin around 8am and 8pm. Pegasys every Friday evening because I have someone to watch the kids on Saturday just in case I don't feel well.

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Geno 1b, relapsed in 2009 a week before my treatment was to be over. Started triple therapy on April 28th, 2012. UND at week 4,8,12,24,3 months post tx.
elizabeth


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Does anyone know why the riba has to be 12 hours apart.  When my husband was reduced from 1200 to 600 (3 pills / day), we thought it would make more sense to take a pill every 8 hours so they'd be evenly spread in the body throughout the day.  But the PA insists on 2 pills in the morning and 1 pill 12 hours later.  That just makes no sense whatsoever to me.  We're doing it that way but it still makes no sense.



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bauhaus76


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hi! i take my peg... fridays...riba 600mg at 9 oclock and other 400 mg 12 hours later at 21.00 at night again,incivo at 7.00,15.00,and 23.00,i must say guys i sleep like a baby until now,my shot at friday ,i take it in the morning so that i can battle sx trough the day..at night i feel a bit calm again and the first night its the only night where i have a poor sleep the days that follow i feel beter ...few sx until now(thank God) im on my 2de week...im starting to understand that we all react different to the meds.ROUND 3-FIGHT!!



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hep c 1a on triple therapy with incivek UND at week 12 ,week 24...going for 48 weeks.
LadyAlaise


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Hi Andi; I too at the moment don't work etc;
At first I was very regimented about my meds; now however wth brainfog, sfx, etc (I'm on antideppressant & sleep med) my sleep schedule is way out of wack (be watchful for that further in, I'm in week #25 out of 48) so I do my best to take my riba 12 hours apart. I have missed some morning doses due to oversleeping my alarms; and kept my NP aprised; I thankfully have not missed two doses in a row. Do your best NOT to miss doses! (LOL it's like my daily mantra)
I take my pegasys shot every sat evening just before sunday morning so I can most likely sleep through the first part of the sdfx of the shot.
I try my best to keep busy during the days ( I usually spend a good chunk of the day researching genealogy), and try to get a small walk in daily with my dog. It's not always easy; I know some here on the forum have been holding up full & part time jobs as well as going to a gym through all this (KUDOS to you my friends!) I however, couldn't imagine having to do that all trhgouh this.
Everyone reacts differently to the meds and while some will have the harder side effects and others not, and still some get the more rare; for me the key has been having a good support network around me, lots of WATER, and to take it one day at a time.
As incredulous as it sounds to me; in some ways; I have gotten used to tx; and at first it does take some getting used to the med schedule; once you find a system that works for you stick to it and it becomes like habit :)
Welcome to the forum!
~Fight the good fight Precious~ (Preed from Titan A.E.)

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Genotype 1A, Genotype (from parents) CC, Viral Load=7,514,000 (as of 12/6/11) Started Triple Therapy TX: 12/17/2011.UND @ 4-48 Wks Taken Off Incivek @ 6 wks due to Rash Response. Finished TX 11/17/12. SVR year 1
wnose


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7 am 3 pm 11 pm sounds fine.

 

Injecting the Pegasys on Monday night is odd though...unless your work week ends on Monday, of course. Side effects of pegasys usually show up the following day or the day after, which is why I always took it on Fridays.



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Diagnosed Geno 1a, 1992. Relapsed after riba-peg trmt in Aug 08. Oct 22 2011: Incivek 3rx @ 18 million VL.

Day 10: <15. --------------------->>>>>>12 OCT 2012: SVR!!! 
krowdog


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Hi Andi,

Cograts on starting, you'll find lots of help and advice here on the forum.

Regarding your riba, I was specifically told by Walgreens Infusion Services,  who dispensed my meds,  that the riba was twice a day, separated by a minimum of 8 hours between doses. So, in theory, you could take your second dose as early as 3:00 pm.

I used the same schedule as you propose, except I  took my second riba dose with a light meal around 6 pm.

Best of luck,

Brad

 

 



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(Geno 1a, Incivek Triple Tx, 6 month post TX - 9/20/2012 = SVR!!!)
JoAnneh


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Pharmacy suggest I move RIBA from 8 to 4 and I will once my
4 week lab comes in! I am starting to have trouble sleeping at night.
I take sleep aid as necessary. U must get your rest Andi!
Have u ever tried tx before?
Joanne

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JoAnne

Genotype 1a, Triple therapy w/Invicek started May 19, 2012

DET 4 wk. UND 2,6,12,24 48 treatment. Achieved SVR 2013!
Suzanneaz


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I cant keep on a schedule but heres my goal. 7am/7pm copgsus does keep you awake. I take Vic when Im on track at 11pm 7am 3pm.
My water pills before noon. Im waiting for ssi, boy what a weird agency.

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Hep 1A. 550,000. Starting tx on 1/06.

 
andi68


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I began my Tx today, Incevik, Peg, Rib....I had a schedule made out but after speaking to a nurse whom informed me that the best time to take Rib is at dinner time since it will keep me awake....

the schedule I had made out was Inc & Rib at 7am  Inc @ 3pm 11pm Rib & Inc w/ Peg every Monday night @ 11.....

What's the best schedule to take these medications for someone on disability and not working?



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mallani


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Hi Andi, Everyone finds their own schedule but it takes time. Riba. is meant to be taken every 12 hours, and Incivik or Victrelis every 7-9 hours. This gives the most effective blood levels. I take Vict. and Riba. at 7am, Vict. at 2pm, Riba. at 7pm and Vict. at 10pm. I have not had any sleep problems.

There is usually a wheel in the pack( of Riba. and Peg.) which gives suggested schedules.

 

 

 

 

Geno 1b, cirrhotic, currently at week 13 on Vict. Undet. at weeks 8 and 12



-- Edited by mallani on Tuesday 12th of June 2012 08:13:55 AM

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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
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