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Hep C Discussion Forum -> On Treatment -> well this sucks. virus is back.
Post Info TOPIC: well this sucks. virus is back.
Lindsay


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RE: well this sucks. virus is back.
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Many prayers are going out to you!  I know there are no new treatments right now, but I know some are in the pipeline for the next few years. Maybe one of them will work if you decide to give it a try.  Hang in there and I hope the results of the biopsy come back ok.

Lindsay



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Supporter for my fiancee LadyAlaise (Renee).  Where else would I be but beside her on this journey?!?
Kellyw


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I'm so sorry to hear your news. I will hope one of the new tx's come along quickly

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Kelly 2b dx 8/11. Tx begun 12/30/11. Apparently had it for decades.
Shep


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Hey Taz
Hang in there! They are developing newer tx all the time. I was in my doc's office yesterday and on the counter was an application for the drug trial that Jime's doing the 7977. It was dated May 8.



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Diagnosed 1996 genotype 1b VL alot tx starting 12/23/11 Victrelis UND week 8!!! 28 weeks of tx

Completed tx 7/6/12--still UND!!!!
Margo


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TazKat wrote:

i am gento type 1A

Thanks. Taz, don't get discouraged. Go get 2nd opinion and go to the best. Pay out of pocket for a consultation if you have to, but go the knowledgeble one. I was treated before and on the treatment, my lymph nodes became enlarged. She told me might have lymphoma, she scared the living hell out of me, scedualed CT same day and oncologist app. I was 27 with small kids, i buried myself that day. Turned out to be the bodys reaction to meds. Made me go 48 weeks of treatment while it took me to respond later in the beginning and I relapsed.. Switched doctor this time by recommendation and very happy. Which state to you live in?

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Geno 1b, relapsed in 2009 a week before my treatment was to be over. Started triple therapy on April 28th, 2012. UND at week 4,8,12,24,3 months post tx.
Judy S


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LanaiSurferGirl - do you know what grade and stage your bx showed?  My only bx was in 2000 and it was also the Worst pain ever!  I got the referred shoulder pain.  My recent CT Scans also show Splenomegaly and Portal Hypertension....that's how they know I have cirrhosis.

TazKat - my dr also says 5 yrs before newer tx but I keep hearing differently from others.



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Geno 1a; VL 4.7 million in Feb 2012. Started PegIntron & Ribavirin 3-9-12. Added Victrelis 4-6-12. UND since Week 8. Stopped tx Wk 23. UND 4 Wks post-tx. Relapsed 12-weeks-post.

52 y/o F, started Epclusa 11-10-19, F0/F1.  EOT 2-1-2020. UND. All liver function tests normal.
TazKat


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I HAD A BIOPSY IN 2010 & it showed stage 3 fibrosis. hopefully the liver scan will tell what is what. are there new drugs coming out without the protease inhibitor?



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TazKat Genotype 1A null responder x 3 riba & iterferon twice, relapsed from Incivek 2012 with only 12 weeks left to do. stage 4 mild cirrhosis 4/25/2014/ started sovaldi riba & interferon.. finished treatment 7/17/14  results 7/25  cleared..

 

 
TazKat


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i am gento type 1A



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TazKat Genotype 1A null responder x 3 riba & iterferon twice, relapsed from Incivek 2012 with only 12 weeks left to do. stage 4 mild cirrhosis 4/25/2014/ started sovaldi riba & interferon.. finished treatment 7/17/14  results 7/25  cleared..

 

 
LanaiSurferGirl


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I feel so bad for you...I hate coming on here to read that people have relapsed!!  How do you know which stage of cirrhosis you have?  I had a biopsy in 2002 that showed fibrosis but in 2007-current, imaging studies (CT scans and ultrasounds) have confirmed I have cirrhosis by splenomagaly (enlarged spleen) and portal vein hypertension.  Did you have a biopsy that confirmed it?  

My biopsy experience was the worst pain I have ever felt in my entire life...the nurse literally said "you will know we are in the right spot when you feel pain".  It was extremely painful, my whole right side was numb, and I was nauseous.  This is why I have not had another since then and even if I did, it wouldn't change the fact that I had hepatitis C.



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geno 1a, mother & brother also hep c +...mom got a blood transfusion and passed it along.  Started tx with incivik 11/23/11 and brother started 2/8/2012.  Both of us und. at 4,8,12 and me at 24.  I am going 36 wks and brother is going 48 weeks.
Judy S


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Thank you Margo!

Taz is geno 1.  I am geno 1a.

Taz, your bio doesn't mention if you are 1a or 1b? 



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Geno 1a; VL 4.7 million in Feb 2012. Started PegIntron & Ribavirin 3-9-12. Added Victrelis 4-6-12. UND since Week 8. Stopped tx Wk 23. UND 4 Wks post-tx. Relapsed 12-weeks-post.

52 y/o F, started Epclusa 11-10-19, F0/F1.  EOT 2-1-2020. UND. All liver function tests normal.
Margo


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God, I ment 1a or 1b?

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Geno 1b, relapsed in 2009 a week before my treatment was to be over. Started triple therapy on April 28th, 2012. UND at week 4,8,12,24,3 months post tx.
Margo


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By the way are you genotype 1 or 2?

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Geno 1b, relapsed in 2009 a week before my treatment was to be over. Started triple therapy on April 28th, 2012. UND at week 4,8,12,24,3 months post tx.
Margo


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http://mobile.businessweek.com/news/2012-04-12/gilead-bets-on-hepatitis-c-data-to-back-pharmasset-deal

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Geno 1b, relapsed in 2009 a week before my treatment was to be over. Started triple therapy on April 28th, 2012. UND at week 4,8,12,24,3 months post tx.
Margo


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One of few! http://m.seekingalpha.com/article/494271-achillion-will-soar-higher-on-new-hepatitis-c-drug-in-2013

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Geno 1b, relapsed in 2009 a week before my treatment was to be over. Started triple therapy on April 28th, 2012. UND at week 4,8,12,24,3 months post tx.
Judy S


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Margo, your post just popped in.  I'll be checking to see if you have found a link; I'd be very interested.  Thank you.



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Geno 1a; VL 4.7 million in Feb 2012. Started PegIntron & Ribavirin 3-9-12. Added Victrelis 4-6-12. UND since Week 8. Stopped tx Wk 23. UND 4 Wks post-tx. Relapsed 12-weeks-post.

52 y/o F, started Epclusa 11-10-19, F0/F1.  EOT 2-1-2020. UND. All liver function tests normal.
Judy S


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That is Exactly what I was going to ask, Taz.  Do you qualify for newer tx if you are no longer tx naive and cirrhotic?  I am crushed by your news; I'm so very sorry.  I know you had that horribly painful broken tooth sticking into your gums.  I've had the virus for 27 years and I know that things are limited for us long-timers.  Please don't give up hope......they are constantly gaining ground on our virus and all of its types; I have faith.

Jim, that is Really good to hear!  Can you provide any more info?



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Geno 1a; VL 4.7 million in Feb 2012. Started PegIntron & Ribavirin 3-9-12. Added Victrelis 4-6-12. UND since Week 8. Stopped tx Wk 23. UND 4 Wks post-tx. Relapsed 12-weeks-post.

52 y/o F, started Epclusa 11-10-19, F0/F1.  EOT 2-1-2020. UND. All liver function tests normal.
Margo


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TazKat wrote:

doc says it would be 5 yrs b4 they have something else that does not have the protease inhibitor.  that i can't do anymore.. cry

I just read recently about the new medication, I'll try to find the link for you. It's an addition to these 3.

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Geno 1b, relapsed in 2009 a week before my treatment was to be over. Started triple therapy on April 28th, 2012. UND at week 4,8,12,24,3 months post tx.
JIme


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Not true. 7977 will be approved within 2 years.  Many other drugs out there also.  You proved you can clear the virus on triple tx. The oral meds will be the new soc in a few short years. 

Stay the course.  There is hope.



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jim

GT1a, St2 Lv2 last biopsy 2002, VL  11.4m,  start triple tx 9/30/11

VL 470 @4wks.....VL 22,000 @8wks  stopped tx

Round 2-  Started 3/16/12   PSI-7977, BMS-790052, Riba Undetectable day 14

Did 24 weeks Still UND 12 weeks post tx, SVR24!!!!!!! 2/14/13

 

 

 

 

 
TazKat


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doc says it would be 5 yrs b4 they have something else that does not have the protease inhibitor.  that i can't do anymore.. cry



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TazKat Genotype 1A null responder x 3 riba & iterferon twice, relapsed from Incivek 2012 with only 12 weeks left to do. stage 4 mild cirrhosis 4/25/2014/ started sovaldi riba & interferon.. finished treatment 7/17/14  results 7/25  cleared..

 

 
Iris Dragonfly


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Kathy, I'm so so sorry this is happening to you. Hang in there girl, the new treatments are working there way to the surface.

Stages within a stage makes sense to me, can you find out? As for eating well, that can never hurt. My prayers are with you, please feel free to pm me anytime. Blessings, Iris



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in the silence of the woods, you will not be alone- Chief Seattle

60 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naďve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)
Margo


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That's crazy...don't give up talk to your doctor on other options that will be available very soon. I also relapsed last time, I know exactly how you feel...

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Geno 1b, relapsed in 2009 a week before my treatment was to be over. Started triple therapy on April 28th, 2012. UND at week 4,8,12,24,3 months post tx.
K2


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no I am soooo sorry for what you must be feeling right now. You have my prayers.



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genotype 1a. started pegasus and riba on 25/03/2012 added victrelis after 4 weeks, treatment naive. CHC. 4 weeks UND & continue to be so far. Finish tx 6/10/12. Fingers crossed for SVR.
TazKat


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after doing 32 weeks of treatment. off of it for three weeks & viral load is 582,000  i just can't believe this. no treatments or anything out there. will have a liver scan monday. i am stage 3 of 4 fibrosis. which i am still trying to figure out are there different stages within a stage. did that make any sense? i have a friend in hospice right now who is 58 that is dying from all liver crap. geex. what can i do? what to eat? that may help.. i am fooling myself i guess.. prayers please..



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TazKat Genotype 1A null responder x 3 riba & iterferon twice, relapsed from Incivek 2012 with only 12 weeks left to do. stage 4 mild cirrhosis 4/25/2014/ started sovaldi riba & interferon.. finished treatment 7/17/14  results 7/25  cleared..

 

 
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