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Hep C Discussion Forum -> Post Treatment -> post treatment survey study out of the UK
Post Info TOPIC: post treatment survey study out of the UK
Cinnamon Girl


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post treatment survey study out of the UK
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Hi Meghan, I agree, sadly post tx tends to be a neglected area altogether and more attention and research is badly needed. Yes, I agree, it does make interesting reading, even so.

By the way, the survey was web-based so it wasn`t only people from the UK who took part.  Here`s a quote from the survey -

"500 respondents  completed the survey and all of them were more than 6 months post treatment. It should be noted that the survey was web-based and, as such, respondents were not solely from the UK. In addition there was a range of treatment lengths, from 4 weeks to 3 years,across the study population (47 respondents reported more than one year of treatment) and a number of people had undergone treatment more than once."

Steff (greenqueen) has posted about it too a couple of times -

http://hepcfriends.activeboard.com/t39851710/update-on-hep-c-trust-post-treatment-survey/

Also of course, it`s way too soon for any long term study of the post tx effects from the triples, so we`ll have to wait and see...and let`s hope the new interferon free tx therapies that are in the pipeline will be a lot less troublesome all round!

Thanks for bringing this up.

All the best, Jill xx










-- Edited by Cinnamon Girl on Thursday 12th of July 2012 10:29:48 AM

__________________

Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
LanaiSurferGirl


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have been in touch with a nurse educator from Vertex and he let me know about this study.  More research needs to be done on post treatment side effects/new illnesses but I am glad we have some sort of guideline.  Let's push for a bigger study to be done here.  Encourage your doc, pharmacy, and write the drug companies!

Scroll down to "post treatment survey" about a 1/3 of the way down the page here:

http://www.hepctrust.org.uk/News_Resources/resources/reports



__________________

geno 1a, mother & brother also hep c +...mom got a blood transfusion and passed it along.  Started tx with incivik 11/23/11 and brother started 2/8/2012.  Both of us und. at 4,8,12 and me at 24.  I am going 36 wks and brother is going 48 weeks.
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