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Hep C Discussion Forum -> On Treatment -> Anybody pay out of pocket?
Post Info TOPIC: Anybody pay out of pocket?
packerfan24


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RE: Anybody pay out of pocket?
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Well I have healh insurence and I still did not have to pay a penny. No co-pay nothing. Thanks to the programs that are out there.

Ken

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Packerfan24
Sed3


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Hmmm...if only there were a way for people without health insurance to get medication and treatment...

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Type 1B - Unknown for 30 years, diagnosed September 2011, started treatment February 2012

8 weeks Incivik - stopped early due to rash.

Continuing Pegasys and Ribavirin until January 2013 - 48 weeks

Undetectable from week 4 --> present
JIme


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Regarding passing on extra meds, I got some in the beginning from somebody and I passed some on when I had to stop early. It worked for me. It's not PC but I know there are people who can't afford it and don't have insurance. What about them? This was all done on the QT. We didn't want anybody to get in trouble.

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jim

GT1a, St2 Lv2 last biopsy 2002, VL  11.4m,  start triple tx 9/30/11

VL 470 @4wks.....VL 22,000 @8wks  stopped tx

Round 2-  Started 3/16/12   PSI-7977, BMS-790052, Riba Undetectable day 14

Did 24 weeks Still UND 12 weeks post tx, SVR24!!!!!!! 2/14/13

 

 

 

 

 
davesf


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I think this will change from doc to doc on an individual basis.  Legally-probably not allowed as they cannot verify the chain of authenticity while it was in your possession.  Compassionately-Docs know they can give out samples of drugs provided by insurance company-some won't see this as any different.



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All Done Poisoning the Dragon that Used to Poison Me

Genotype 1b  Incivek Combo
davesf


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My doctor is fine with me bringing in my last over Riba.  We've talked about the emergencies some on the forum have had in getting timely refills (insurance/pharmacy isssue) during TX.  He said he would be happy to have some on hand in case a patient rums out.



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All Done Poisoning the Dragon that Used to Poison Me

Genotype 1b  Incivek Combo
wilsondog


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Thanks Alan, I did ask and they said they don't do that.  Maybe someone will reach out.  

Are you done yet?  I finished a week ago and wish I could say I feel better, but I seem to have a virus that won't quit (but it's NOT HepC!).  I spike a fever each evening, higher than when I was on treatment...102,103.

GI says unrelated to tx, dermatologist says unrelated to folliculitis from hairloss, and primary says must be a virus!  I am on an antibiotic from dermotologist, so I do believe this too shall pass, eventually!

Be careful how quickly you jump back to life.  I am told that the interfuron has some protective qualities that go when it stops, leaving us suseptable to whatever virus comes along.  I really am a very healthy person typically, but this has kicked my butt!

Be well, Kate 



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wilsondog
news


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You might contact your doctor and see if they need it. I received a call out of the blue one evening, and it was my nurse calling to ask if I had left over, unused Procrit. I said I had one vial that I was asked not to use. She asked me to bring it in. Apparently they sometimes give "samples" to folks who need something but can't get it. Or sometimes a patient might suddenly exhibit very low hematocrit, and they can give the shot right there at the office. They also had quite a supply of ribavirin in various strengths to give out. So I would ask if your doctor's office might be able to use it. Alan

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Geno 1A  Started Pegasys/Ribavirin/Incivek Nov. 20, 2011 .  Completed July 28, 2012 (36 weeks). For a treatment history, see:  https://jshare.johnshopkins.edu/xythoswfs/webview/_xy-9921874_1

SVR on January 14, 2013!!
wilsondog


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My curiosity comes from the fact that I have alot of Ribaviron left over because it was reduced 2/3 of the way through treatment, and it seems such a waste to just throw it away!  It's probably kind of weird and perhaps not even legal to give it away, but if someone were in need and I dumped them I would feel awful. It's rediculous what drug compaies get for this stuff!

Kate



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wilsondog
Phil G


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I also had left over riba, and took it to my doctor's office to use for the next guy with insurance or other issues. And like Kate, they said they don't do that. Actually, they said they CAN't do that. I would have loved to send it to someone, but I also recall similar threads regarding legality. So I did trash them.

And I had about a $400 copay per month times two for Pegintron and Victrelis. Fortunately, I have a $1000 max for the calendar year which I hit real quick. After that, it was free.



-- Edited by Phil G on Sunday 22nd of July 2012 01:11:00 AM

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Geno 1A, VL 1.9 mm, SOT 12/2/11 - Pegintron/Ribavirin/Victrelis, UND since wk 8, EOT 6/15/12 (28 wks), SVR 11/30/12
mallani


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In Australia, Inciv. and Vict. have not been approved. However Merck have made Victrelis available, free of charge, to a number of top Liver Units. Perhaps they are trying to get an edge over Vertex. We pay about A$15 a month for the Peg. and Riba.



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
52baddog


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I think if you have no insurance, then the drug companies can give you discounts. You should check with your doctor and some charities.



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Geno type 1b, F1 vl 640,000 enrolled in Gilead's sofosbuvir/ledipasvir -week 1 66, week 2 <25
JIme


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I was considering it when my insurance company said no. Then my Dr and her staff did an incredible job of helping me get the meds for very little. The cost in ridiculous. With no guarantee, unless I was very sick, I would wait for the orals meds to be approved if I could.

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jim

GT1a, St2 Lv2 last biopsy 2002, VL  11.4m,  start triple tx 9/30/11

VL 470 @4wks.....VL 22,000 @8wks  stopped tx

Round 2-  Started 3/16/12   PSI-7977, BMS-790052, Riba Undetectable day 14

Did 24 weeks Still UND 12 weeks post tx, SVR24!!!!!!! 2/14/13

 

 

 

 

 
Cinnamon Girl


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That`s an interesting question Kate and I`m bringing this up again to see if anyone replies.

Wishing you all the best in your post tx recovery.  smile

~  Jill xx



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
wilsondog


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Just wondering if anyone has to actually pay for their meds directly?



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wilsondog
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