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Hep C Discussion Forum -> General Discussion -> EVERYONE YOU NEED TO SIGN THIS PETITION Now
Post Info TOPIC: EVERYONE YOU NEED TO SIGN THIS PETITION Now
Cinnamon Girl


Guru

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Posts: 5629
Date:
RE: EVERYONE YOU NEED TO SIGN THIS PETITION Now
Permalink Closed

Marilyn, for your information, this petition has been going round on this forum since last April and many of us have signed it.  Everyone here is doing their best to beat this virus and lend support and encouragement to each other and we can do without you coming on here accusing our members of not being interested in doing anything.   Our members are brave and courageous people and to insinuate anything else is a huge insult.

We do not appreciate you coming on here scaremongering and trying to spread false information, and to be honest you`re starting to make a nuisance of yourself.  We will not allow this to continue, and therefore you will not be allowed to post here again.

Thread closed.  ~ Jill

 



__________________

Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
Marilyn


Member

Status: Offline
Posts: 7
Date:
Permalink Closed

Hi Bill, I have signed this petition.  I came to this site to try and get more people to sign it.  I am not sure how long the petition has been on line.  But the I guess you call it a "thread"  on the thread or subject I wrote to it  seem like they all  said they signed it.   I have no idea how many members you have here but as of yesterday only 10000 signagures have been counted.  Now with 2.3 million people with hepatitis, and this is also back AIDS Found. something is not adding up.    The word is not getting out there! What else are members on this site doing to get more signatures on the petition?  Or are we satisfied with Gilead holding back a cure to heal us because of corportate greed?  MY husband and I have developed a 8"x11" poster that Margaret (organizer of site) thinks is awsome.  I have started posting them at any bulletin board, dry clearners, Chinese Rest., pet stores, supermarkets etc. that I can think of to get us more signatures.  I agree with you...we need this cure and we need it now.  It does not have the side effects of all the other treatments because it done without Interferon and Ribavirin.  I just seem to get the feeling that people here are not interested in doing anything.  I would be glad to send anyone a poster that they can copy and distribute in there area the same way that I am doing.  I understand there are a lot of sick people here, just as I am, but atleast I want to fight for what is best in my body.  If I had listened to a GI years ago, I would have had the biopsy, been in a treatments that has a poor out come and result in other side effects that last for the rest of your life along with the hep. I am not trying to be bold here and I am sure you all know Interferon is cancer drug and Ribavirin side effects are just as bad.

 

This need more exposure and we need it now.



__________________
Marilyn A. Leisz
jrc


Senior Member

Status: Offline
Posts: 207
Date:
Permalink Closed

Thank you for signing the petition "Gilead Sciences: Please collaborate with Bristol Myers for the Cure for Hepatitis C NOW!"



__________________

Geno 1 A Started Tx w/ Victrelis  8-3-11, Viral Load  21.2 Million,  Und Weeks 4 Through 28 ,End Of Tx 2-15-2012 !SVR
cmerduran


Member

Status: Offline
Posts: 43
Date:
Permalink Closed

up up up...

i think this topic must be constant...

it will take 5 min. of your life... 



__________________
Murat
28.07.12: HCV-RNA +, VL:7.1m, 1b
02.08.12: incivo-riba-pegasys started
24.07.13: HCV-RNA: WEEK 3, 12, 24, 36, 50 UND(SVR!!)
*all men have fears but the brave, put down their fears and go forward... sometimes to death, but always to victory.
Bills


Guru

Status: Offline
Posts: 648
Date:
Permalink Closed

 

 

EVERYONE  YOU NEED TO SIGN THIS PETITION for Gilead sciences to get off their a$$ RIGHT NOW  and release 7977 that is a big stumbling block

 http://www.change.org/petitions/gilead-sciences-please-collaborate-with-bristol-myers-for-the-cure-for-hepatitis-c-now

Along the side or that page is all the reasons why BUT if this turns around quick and thats the Key 100,000 signatures and pushes the release of 7977 it paves the we of the power we will have over the drug companies No just us but all reaseach that becomes a choice about money and markting WHILE WE CONTINUE TO DIE AND  GET SICKER

Sign it and passit on to anyone you have told about you condition    OK????? Thanks

Bill S



-- Edited by Bills on Sunday 2nd of September 2012 02:40:54 PM



-- Edited by Bills on Sunday 2nd of September 2012 02:44:15 PM

__________________

Bills

Harvoni started 12-12-14 for 24 wks PrevTX Geno 1 stage 3 cirrhosis - non resp Int/ ribv. Started Trial  in Aug 2011 -July 2012 into Incivek relapsed  Feb 2013 Had 72 weeks on interferon & Riba.

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