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Hep C Discussion Forum -> General Discussion -> looking for info-Hemochromatosis
Post Info TOPIC: looking for info-Hemochromatosis
Mary Jane


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RE: looking for info-Hemochromatosis
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mallani wrote:

Hi Maddog, Chronic HCV can often cause high serum Fe levels. The liver stores iron as Ferritin, and when liver cells are damaged by the virus, this Fe is released into the blood. If you look at the link Tim posted, you will see that hemochromatosis can be easily excluded by blood tests eg serum Fe, transferritin and Fe binding capacity. In 1989, I had a liver FNA (fine needle aspiration) to exclude hemo. as my transferritin was high. I now get my Fe studies done once a year. At present they are all normal, so I don't have a low Fe diet( I enjoy my steak!).

 Thanks Malcom for sharing, your brain is bigger than mine..  glad you can eat red meat.. it gives me issues sometimes maybe because I don't have a gallbladder?  MJ



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Do not go where the path may lead, go instead where there is no path and leave a trail.Ralph Waldo Emerson

1a - VL 22 million  F2- IL28B- CT / Inck-Riba- Peg triple therapy 9/15/12 UND 4/8/14  8 wks BT ..3/1/2013 done! 3wks Post UND
mallani


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Hi Maddog, Chronic HCV can often cause high serum Fe levels. The liver stores iron as Ferritin, and when liver cells are damaged by the virus, this Fe is released into the blood. If you look at the link Tim posted, you will see that hemochromatosis can be easily excluded by blood tests eg serum Fe, transferritin and Fe binding capacity. In 1989, I had a liver FNA (fine needle aspiration) to exclude hemo. as my transferritin was high. I now get my Fe studies done once a year. At present they are all normal, so I don't have a low Fe diet( I enjoy my steak!).



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
hrsetrdr


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maddog wrote:

when my dr told me i tested + for hvc he also said that i might have Hemochromatosis. i have been reading on this disease also and some of the symptons are the same. can anyone help with this.

 See this link:

 

http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0001368/



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"hrsetrdr"=Tim

Treatment halted on Aug.8,2012 due to vision problem.  6 month post tx labs

Aug.2013 SVR

Be strong when you are weak, brave when you are scared, and humble when you are victorious.
- Unknown

 

 
maddog


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when my dr told me i tested + for hvc he also said that i might have Hemochromatosis. i have been reading on this disease also and some of the symptons are the same. can anyone help with this.



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it all about the journey
Mary Jane


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Hey Maddog,

One thing I have learned along the way is that HEP C livers cannot distribute iron very well.  Therefore it can build up in your liver over time and cause its own set of problems...     

 

peace and love MJflowerpot.gif



-- Edited by Mary Jane on Monday 3rd of September 2012 04:15:45 AM

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Do not go where the path may lead, go instead where there is no path and leave a trail.Ralph Waldo Emerson

1a - VL 22 million  F2- IL28B- CT / Inck-Riba- Peg triple therapy 9/15/12 UND 4/8/14  8 wks BT ..3/1/2013 done! 3wks Post UND
LC


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Hi maddog, I think I may have drank some wine with your username on it in my younger years. biggrin

Interesting condition you have, I didn't know the body could make too much iron.  Too little has always been my problem.  Looks like that may have actually worked in my favor in this instance...



-- Edited by LC on Monday 3rd of September 2012 12:41:33 AM

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Genotype 1a, VL 1,151,923.  51 years old.  Started treatment on AbbVie TOPAZ II clinical trial Oct 10, 2014!  Undetected at weeks 2 and 4! 
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