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Hep C Discussion Forum -> General Discussion -> Very Very Depressed today!!
Post Info TOPIC: Very Very Depressed today!!
mallani


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RE: Very Very Depressed today!!
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Kathy, an ALT of 160 is nothing to worry about. Your doc is correct in that you cannot have any more Inciv or Vict. However, try to follow the advice and get on a 7977 trial. New drugs will be available soon, so don't despairsmile



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
JIme


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She may be right with treating with another protease but 7977 is not a protease. Ask about trials. Where do you live ?

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jim

GT1a, St2 Lv2 last biopsy 2002, VL  11.4m,  start triple tx 9/30/11

VL 470 @4wks.....VL 22,000 @8wks  stopped tx

Round 2-  Started 3/16/12   PSI-7977, BMS-790052, Riba Undetectable day 14

Did 24 weeks Still UND 12 weeks post tx, SVR24!!!!!!! 2/14/13

 

 

 

 

 
TazKat


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The only thing is THEY are the biggest hep treaters in my city.. wonder why she told me that? hmmm.. she was ticked a tad when i quit, but she was not in my body!! she is a 125 lb fit woman. i really like her but.... that is why i am asking u guys if ur docs said no more protease inhibitors ever????   disbelief



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TazKat Genotype 1A null responder x 3 riba & iterferon twice, relapsed from Incivek 2012 with only 12 weeks left to do. stage 4 mild cirrhosis 4/25/2014/ started sovaldi riba & interferon.. finished treatment 7/17/14  results 7/25  cleared..

 

 
Greg


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Hi Taz,

A very quick post before I run out the door for work, We love you, hang in there,  things will turn out as Jime said there are trials available and other doctors as well.

Thinking of you,

Greg



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The mind is like a parachute it works best when it is open. "The Dalai Lama" My blog: http://greghcv.wordpress.com/
Genotype 1a, started tx 1st Feb 2011, for 48 wks. Week 24 PCR 26/07/11 Non-Responder
New TX start date 12th Sept 2016 Harvoni x24 weeks.  VL 7.4 Mil. Week 4 "Undetected"
JIme


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Don't beat yourself up Taz. It's not worth it. Screw it. What's done is done.

Get the choppers done and you will feel better. I did.

I think your Dr is misinformed. I failed tx with telaprivir and started a trial with 7977 four months later. Try to get on a trial if possible.

There are links are on here somewhere. You'll have to search or maybe I will find them later and post them.

Hang tough Taz. Things will get better. Just get through one hour at a time if you have to. We're here for you if you need us.

Stay in touch.




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jim

GT1a, St2 Lv2 last biopsy 2002, VL  11.4m,  start triple tx 9/30/11

VL 470 @4wks.....VL 22,000 @8wks  stopped tx

Round 2-  Started 3/16/12   PSI-7977, BMS-790052, Riba Undetectable day 14

Did 24 weeks Still UND 12 weeks post tx, SVR24!!!!!!! 2/14/13

 

 

 

 

 
TazKat


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my alt is 160 my ast 108  that is the most they have ever been since i have kept up with those numbers. well i would have finished treatment 2 weeks agao had i styed on it. but the tooth was killin me. well tooth is still in my mouth. decided to have all the upper (most are capped) pulled & just get dentures. so i am really feeling down cuz i didn't tough it out for 11 more weeks thatg i had left. i really thought i was going to lose my mind there for a few weeks. so the doc's office in a certain tone of voice "Well we just can't treat u again" until   possibly 5 yrs or more. ARE there any meds being investigated for us relaspers that now i uinderstand CAN"T be treated with protease inhibitors anymore.. had i really know this i may would toughed it out but head was hurting so bad everyday with tooth. it finally calmed down a bit. hind site is so freaking 20/20  hmm crying.gif



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TazKat Genotype 1A null responder x 3 riba & iterferon twice, relapsed from Incivek 2012 with only 12 weeks left to do. stage 4 mild cirrhosis 4/25/2014/ started sovaldi riba & interferon.. finished treatment 7/17/14  results 7/25  cleared..

 

 
LC


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Oh cheer up, there are new drugs in the works that are going to fix you up.  I honestly believe we are seeing the start of the "golden age" for HCV treatment.  Maybe you can get into a clinical trial like JIme said.

Doctors are sometimes full of sh*t, you know. hmm Mine told me if I started and but didn't stay with the Incivek treatment, no other doctor would want to treat me. doh 

http://hepatitiscresearchandnewsupdates.blogspot.com/2012/09/hcv-update-selected-highlights-key-new.html

If you get too sad and depressed, see a Dr to get treated for that ok?  I think it might be a side effect of what you were on.  *hugs*



-- Edited by LC on Monday 17th of September 2012 09:38:11 PM

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Genotype 1a, VL 1,151,923.  51 years old.  Started treatment on AbbVie TOPAZ II clinical trial Oct 10, 2014!  Undetected at weeks 2 and 4! 
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