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Hep C Discussion Forum -> On Treatment -> About to start triple therapy with boceprevir aka victrelis.. Had to tell someone!
Post Info TOPIC: About to start triple therapy with boceprevir aka victrelis.. Had to tell someone!
mallani


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RE: About to start triple therapy with boceprevir aka victrelis.. Had to tell someone!
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Hi Nicole, a VL of 1.5 million is not particularly high, probably intermediate. A low VL is <800,000 i.u. but this varies. The starting VL does not seem to make a great deal of difference in treatment response. At your age the side effects should be OK but these are variable. Good luck with treatmentsmile



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
Bouba


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Same but with Incivo. First takes and shot tomorrow. Cheers! : handshake

 



-- Edited by Bouba on Thursday 25th of October 2012 01:53:05 PM

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58 yo male, HCV since 1981. Gen 1B (IL28B, CT). Diagnosed 1999,  VL before tx 100'000. Biopsy A2, F3 fibrosis. Naive, SOT (with Incivek) Oct 26, 2012. UND @ week 4, 12, 18, 24, UND 12 and 24 weeks post-RX
iggle


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If you can, reach out to family and friends for support. I made the mistake of not doing so right away when I needed them.



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Biggyb


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I work 4 days from 9-5 as a delivery driver. I work thursday-sunday, so i take my dart Sunday night. By Thursday i am pretty good to go..Except for the irritability that all my co-workers are noticing.



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58 yo..Relapsed in 99 and again in 2004. Started triple therapy with Victrelis July 22,2012.  genotype 1a. week 8,12,16,24 VL Undetectable..E.O.T -- 6-22-2013,,,EOT + 24., UND. 

SVR !!!

 

~Bob~
gatekeep


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I work rotating 12 hr day/ night. I take incivek and that's the worst part. Drink lots of water.

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25 yrs HepC. type 1a geno. 6mill viral load,3.5 out of a 4 liver biop.started Sept.19, 2012,Tx.Rib.,Incivek, Peg,4wk. Vl 61,undetected @12 wks,undetec.Wk 24
libgirl07


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No they arent the same.  But one of the girls on my shift knows about my hcv and that i'm about to start tx so shes going to work with me.  I only work every 3rd weekend so i'm trying to map out how i wanna work this..



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Genotype 1a

1/18/13 -  VL 1.5mil triple therapy with boceprevir

2/3/14 - relapsed. 1.7ml

 

6/28/14 - started solvadi interferon and ribavirin for 12 weeks

7/28/14 - week 4 undetected dosage reduction of rib and peg

 

11/2/14 und 4 weeks post eot

 

g

 
Neil_Canuck


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Good luck with treatment.  Are your 3 days of work always the same? If they are try to have your Tx start day well away from work days. Most people, myself included, feel Sx the 2 days after the shot. I do my shot Friday night and about 17 hours later on Saturday the Sx start. Sunday I'm usually just reallly tired and by Monday I'm relatively okay again. You definitely don't want to start your 3 days work the day after....lol. If the days of work change you'll have to do a bit of juggling to set it up right.



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58 yrs, cirrhotic, Genotype 1b 48 weeks Victrelis triple, SOT 7/13/12 victrelis started week 5. Starting VL 4,000,000  Wk 8 33 copies  Wk 24 UND, EOT UND 6 months post Tx DET. The battle goes on.
libgirl07


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I'm 28 was diagnosed at 18.  Tried SOC for I think 9 months and my mothers insurance dropped me because I turned 19.  My doctors cant find any viral load labs after i started disbelief..  So any who..    My viral load is 1.5 mil and log pcr is 6.18.  I'm starting as soon as I get my meds and can get into an education class.  I'm excited and scared at the same time.  When I did the tx before I was only 18.  The only things i really remember are being tired my hair thinned and i was super depressed.  Maybe a few times I was nauseous and vomitted.  I was in high school yet then and also worked at a store.    Now I have a 5 year old live on my own and work 36 hours a week but I do twelve hour shifts.  I worry about how it will effect my ability to function at work but I'm just going to try to stay motivated and push through.  I need my health insurance! haha.  But I'm also thinking about going into hiding for however long it takes.  I dont want to tell anyone else about it and I think they'll know i'm sick if they see me on tx.  The people i want to know pretty much all know and are supportive.   I'm ready to get this show on the damn road!    Any advice?    And also does anyone know if my levels are high?  I tried looking it up but the terms doctors use are a little harder for me to understand.   THANKS and i'm super greatful for finding this site I feel like it really motivated me to get tx stop being in denial and accept myself with this virus.  

 

Oh yea last biopsy I had was about 4 years ago and it showed mild damage and mild inflammation.  I got a bunch of labs drawn bmp cbc lfp ptinr all those things and everything was normal.  My doctor seems to feel its best to not wait for newer tx and start now.



-- Edited by libgirl07 on Saturday 13th of October 2012 02:41:35 PM



-- Edited by libgirl07 on Saturday 13th of October 2012 03:50:34 PM

__________________

Genotype 1a

1/18/13 -  VL 1.5mil triple therapy with boceprevir

2/3/14 - relapsed. 1.7ml

 

6/28/14 - started solvadi interferon and ribavirin for 12 weeks

7/28/14 - week 4 undetected dosage reduction of rib and peg

 

11/2/14 und 4 weeks post eot

 

g

 
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