Hep C Discussion Forum

Members Login
Username 
 
Password 
    Remember Me  
Chatbox
Please log in to join the chat!
Hep C Discussion Forum -> On Treatment -> Pegintron Redipen
Post Info TOPIC: Pegintron Redipen
Michael H


Newbie

Status: Offline
Posts: 4
Date:
RE: Pegintron Redipen
Permalink  
 

...will keep you posted on Genotype... I'm going to ask for a re-check when I go in for the next round of tests.   Thanks for sharing.. 



__________________
Michael H


Newbie

Status: Offline
Posts: 4
Date:
Permalink  
 

Excellent info, thanks!  I'm going to request another Genotype test when I go in for bloodwork... not sure if they'll do that or not, if the insurance will cover it etc etc... They tell me if there were two types at the same time they should both show up, but all they see is the 2B.... I'm just always pessimistic... Really appreciate the insight, hope all's well with you.



__________________
Judy S


Senior Member

Status: Offline
Posts: 360
Date:
Permalink  
 

Hi Michael.  We've got a couple of things in common.

I used the PegIntron Redipen; removing the cap won't cause any med to leak out.  It will always leak out when primed; that's normal.  I did my injections Friday evenings and was most sick by Sunday.

My genotype went from 1b (1999) to 1a (2011), 12 years later.  They double checked last year and found that it is 1a, but I've got all of my records, showing both.  My dr says it could be that I had both but back in 1999 it only picked up 1b.



__________________

Geno 1a; VL 4.7 million in Feb 2012. Started PegIntron & Ribavirin 3-9-12. Added Victrelis 4-6-12. UND since Week 8. Stopped tx Wk 23. UND 4 Wks post-tx. Relapsed 12-weeks-post.

52 y/o F, started Epclusa 11-10-19, F0/F1.  EOT 2-1-2020. UND. All liver function tests normal.
tomyboy


Senior Member

Status: Offline
Posts: 142
Date:
Permalink  
 

My husband did the treatment back then too of three shots a week and it kicked his ass and didn't work.  He attempted again in the early 00's and no success.  He did 8 weeks of triple therapy redi-pen and couldn't complete it but he said the size gauge needle it so small it gave minimal pain. Side effects occurred a few days later, but I am curious if you got an answer to how your geno type changed.  I have never heard this occur before.  Wishing you luck with your treatment to recovery. 



__________________

Geno type 1,��after 20 YEARS Harvoni finally arrived....after six prior treatments...�Began harvoni for 24 weeks.....30 days viral count....STILL 0.......Tom now HEP C and Cancer FREE

Michael H


Newbie

Status: Offline
Posts: 4
Date:
Permalink  
 

Really appreciate the feedback!


__________________
Phil G


Senior Member

Status: Offline
Posts: 303
Date:
Permalink  
 

I used the Redipen and didn't screw it up in 28 chances. But like you, I had those doubts whether I did it right more than once. The next week normally made up for it. I used the printed instructions each time just to keep me honest as my mind tends to wonder with or without tx. My sx also appeared consistently after 14-18 hours. Some days better than others, most not too bad if you don't mind the onset of the flu.



__________________

Geno 1A, VL 1.9 mm, SOT 12/2/11 - Pegintron/Ribavirin/Victrelis, UND since wk 8, EOT 6/15/12 (28 wks), SVR 11/30/12
Bouba


Senior Member

Status: Offline
Posts: 171
Date:
Permalink  
 

Am on Pegasys... Felt almost no sx after the 1st shot. The 2nd one knocked me out for 2 days 12 hours after the shot. All by the book but nothing major that I could not cope with. Hope every next one will go better. 



__________________

58 yo male, HCV since 1981. Gen 1B (IL28B, CT). Diagnosed 1999,  VL before tx 100'000. Biopsy A2, F3 fibrosis. Naive, SOT (with Incivek) Oct 26, 2012. UND @ week 4, 12, 18, 24, UND 12 and 24 weeks post-RX
Biggyb


Guru

Status: Offline
Posts: 820
Date:
Permalink  
 

I use the pen, takes me almost 2 days to feel sx.



__________________

58 yo..Relapsed in 99 and again in 2004. Started triple therapy with Victrelis July 22,2012.  genotype 1a. week 8,12,16,24 VL Undetectable..E.O.T -- 6-22-2013,,,EOT + 24., UND. 

SVR !!!

 

~Bob~
Michael H


Newbie

Status: Offline
Posts: 4
Date:
Permalink  
 

Good morning!  New here, hoping someone has an experience with this Redipen similar to mine, I can't get any info from the manufacturer.

A little background, diagnosed in 1995 with Hep C, Genotype 1A.  Back then, they tried straight Interferon... I believe I was the first case this particular doctor had ever dealt with.  Not a good experience.

When that didn't work, two years later I went to a specialist who tried Infergen.  Levels undedectable but returned positive shortly after treatment.  After discussing, he recommended waiting on a more effective treatment, eat well, avoid alcohol. etc etc.  Biopsies have been clear, so all's good.

Fast forward to now, I started the Pegintron with Ribavirin last week.... so far so good, aside from the usual flulike symptoms.  What's crazy is when they tested my blood for this latest battle, it's Genotype 2B. 

Question 1: Anybody ever heard of Genotype changing or maybe they got it wrong 15 years ago? Dr thinks it's possible I got rid of the 1A and picked up 2B... I've never tested clear, and I've been overly cautious with everything since initial diagnoses, so I don't know.

Question 2: Don't bore yourself reading this unless you've had some time using the Redipen!  Last night, I was doing the dose, and I removed the needle cap BEFORE dialing in my dose... I did the step backwards according to instructions..  My question, anyone know if this causes the medicine to leak out before injection?   I don't feel nearly as bad this morning as I think I should after a dose, so I'm wondering...   Spoke with someone at Merck this morning, nobody seems to know exactly how the thing works.

 

Thanks in advance for your help, prayers for success with every one of you.



__________________
Neil_Canuck


Senior Member

Status: Offline
Posts: 228
Date:
Permalink  
 

Welcome Michael

It's normal for a wee bit of the liquid to leak out. The only way to discharge the whole load is by pressing the end cap where the dosage gets dialed in. It takes a fair bit of force to push it in.

Additionally, not everyone feels effects right away. For me it's consistently 17 hours after shot. Then can last the next day as well.



-- Edited by Neil_Canuck on Monday 5th of November 2012 04:20:24 PM

__________________

58 yrs, cirrhotic, Genotype 1b 48 weeks Victrelis triple, SOT 7/13/12 victrelis started week 5. Starting VL 4,000,000  Wk 8 33 copies  Wk 24 UND, EOT UND 6 months post Tx DET. The battle goes on.
Page 1 of 1  sorted by
 
Quick Reply

Please log in to post quick replies.
Hep C Discussion Forum -> On Treatment -> Pegintron Redipen
Legal Disclaimer:

THIS FORUM, IT'S OWNERS, ADMINISTRATORS, MODERATORS AND MEMBERS DO NOT AT ANY TIME GIVE MEDICAL ADVICE AND IN ALL CASES REFER ANYONE HERE TO SEEK APPROPRIATE MEDICAL ADVICE FROM THEIR DOCTOR.