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Hep C Discussion Forum -> On Treatment -> Not taking enough ribavarin!!
Post Info TOPIC: Not taking enough ribavarin!!
Adamos40


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RE: Not taking enough ribavarin!!
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Thanks for your reassurance lana

Still feeling positive my treatment will work. Had my bloods done yesterday. Had all results back except v/l. All looking good. Will get v/l results back by next Friday hopefully.

Best wishes

Adamsmile



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A weston Geno Type 1, started triple therapy October 2012, completed April 2013 UND.  December 2013 SVR
Adamos40


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He he he,

Thanks Dave. Hate to think I've been missing outsmile

Had my 4 week v/l yesterday. Should have the results in 5 days.

Thanks again for your support

All the best, Adamsmile



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A weston Geno Type 1, started triple therapy October 2012, completed April 2013 UND.  December 2013 SVR
LanaiSurferGirl


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just to let you know, I think the nurse is right.  When i was on tx I got severe anemia and had to stop taking riba for 2 weeks....my doc said it shouldn't make too much of a difference  I slowly added it back in over the next month but I think you will be just fine :)



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geno 1a, mother & brother also hep c +...mom got a blood transfusion and passed it along.  Started tx with incivik 11/23/11 and brother started 2/8/2012.  Both of us und. at 4,8,12 and me at 24.  I am going 36 wks and brother is going 48 weeks.
davesf


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Adam, I agree, don't beat yourself up.  Remember, 20% of people clear the virus on their own with no help from drugs.  And some people can't clear it with the help of all the drugs we have so far.  So I choose to infer that we all have a different scale of the assistance we need; this is why so many people can achieve SVR even when forced to reduce Riba.  So although you may have reduced your odds a little you are still very much in the game until we hear different from your blood tests.  Think of it as a free ramp-up period.  In fact you've probably been jealous of all the side effects everyone else has been having.  Now you can truly join yours peers in celebrating your new full dose Riba lifestyle.  biggrin

All the best,  Dave



-- Edited by davesf on Friday 16th of November 2012 05:47:48 AM

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All Done Poisoning the Dragon that Used to Poison Me

Genotype 1b  Incivek Combo
Adamos40


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Thanks for your kind thoughts Gill. Indeed, whats done is done. No use dwelling. Felt more foolish than anything. This has passed now. Like you say, we all make mistakes. Still hopeful for a good vl bloods Friday and longer term prospects for the tx working. Should have vl results by next wednesday. Thanks again Gill, best wishes, Adamsmile



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A weston Geno Type 1, started triple therapy October 2012, completed April 2013 UND.  December 2013 SVR
Cinnamon Girl


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Hi Adam, please don`t beat yourself up about this, what`s done is done and you can`t turn back time.  It was a mistake, we all make them, but the main thing is you`ve spotted it quite early on in your tx and you`re now taking the correct dose.  And really you should have had clear instructions on what to take

Wishing you all the best of luck with your vl results on Friday, fingers crossed it will put your mind at rest.

Just keep going! smile  Jill xx



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
kiwi


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as much as i would have LOVED to take a week off of riba, i knew it was imperative i took the maximum dose thru the whole time.

i hung it in there for 48 weeks. stubborn or stupid, i just hung it in there.

 



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kiwi. genotype 1. started pegasus and riba on 10 nov. VL 17.6 million. (4 weeks VL 1368)  week 15 UNDETECTED... :)
Adamos40


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Absolutely. Pleased your rash has cleared. Hopefully will stay cleared with the ribavarin increase. Good luck, best wishes, Adam



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A weston Geno Type 1, started triple therapy October 2012, completed April 2013 UND.  December 2013 SVR
Adamos40


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Hi, thanks for your reply.

I guess I am also at fault in not checking my meds thoroughly. I should have noticed that the ribavarin bottles were 400 & 200 mg tablets. If I'd have seen this earlier I would have checked it out earlier. Anyway, am now taking 600mg morning and night. Still hopeful that I'll clear hep c. First vl this friday.

Best wishes

Adam



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A weston Geno Type 1, started triple therapy October 2012, completed April 2013 UND.  December 2013 SVR
Biggyb


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I had a horrible rash on my back and arms,,doc reduced riba from 1200 to 600 a day. Rash cleared  up. Gonna see if he should  raise it back again..Dont want to jeapordize my chances.



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58 yo..Relapsed in 99 and again in 2004. Started triple therapy with Victrelis July 22,2012.  genotype 1a. week 8,12,16,24 VL Undetectable..E.O.T -- 6-22-2013,,,EOT + 24., UND. 

SVR !!!

 

~Bob~
mallani


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Hi Adam, no wonder your Hb hadn't dropped much! It's amazing the pharmacy didn't give you some detailed dosage instructions.

Poor Ribavirin- it's dismissed as a secondary drug. Fact is that it's essential to augment Interferon and it's been estimated it makes Inter. at least twice as effective. It's also important to try to keep to the recommended dose, particularly in the first 12 weeks. Dose reduction for anaemia is widely used, particularly in the US. Although we have had good outcomes on the forum (with dose reduction), I want all the help I can get, so I've been on 1,200 mgms/day for 35 weeks. My Hb limps along at 9.2-9.6, but I'd rather put up with that than reduce my chance of SVR. Others will disagree.



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
Adamos40


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Thanks for your reassurance. Will be taking 600mg morning and night from now on. All the best, Adam



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A weston Geno Type 1, started triple therapy October 2012, completed April 2013 UND.  December 2013 SVR
Adamos40


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Hi mate,

Thanks for your message. meant to say I have been taking 200 mg twice a day. Started on the 600 mg tonight. Will take 600 mg twice daily also. being a wopping 13.5 stones I will need it. Thanks again for your message, all the best, Adam



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A weston Geno Type 1, started triple therapy October 2012, completed April 2013 UND.  December 2013 SVR
kiwi


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nooo its important to have the right dose of riba.... for sure.

i was on 1200mg a day and im 5.2 and 70kg. 200 is far to little.

GET IT CHECKED OUT ASAP. even 600 sounds low mate. riba goes on bodyweight



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kiwi. genotype 1. started pegasus and riba on 10 nov. VL 17.6 million. (4 weeks VL 1368)  week 15 UNDETECTED... :)
urespa2


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Adamos40

I wouldn't worry too much about starting off with the wrong dose of Riva. my case is just the opposite where I was taking too much and needed to have dose reduced. I'm certain the meds are flexible enough and have a long life where by doses can be altered and still achieve the desired results.

Best of success.



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Geno 1a  Start Pegasys, Ribavirin, and Incivek August 24th 2012
Adamos40


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Been on triple therapy since October 19th, ribavarin, peg interferon and incivo. Am due to collect next months medication this week. Discovered tonight I should have been taking 600 mg of ribavarin. have only been taking 200mg. Thought I had been given too much ribavarin, realised tonight that the other ribavarin bottle are 400mg tablets, the one I've been taking-200mg. Picked medication up from hospital pharmacy, there was no prescription, guidance or meds list with the medication. Am feeling pretty angry and worried that this may affect my treatment outcome. Got my first VL this Friday. My Hep c nurse did not seem too phased when I phoned her tonight, saying the incivo is the key. Maybe she is just covering her a*** Thinking of making a complaint to director of nursing. Fingers crossed I can cope with the extra ribavarin (started taking the 600 mg tonight). My last 3 bloods (weekly) have been good, with my nurse even commenting that my hg levels havn't dropped much. You'd have thought that maybe they'd have questioned this as it is normal for them to drop really fast. Anyway, managing ok with the 20g of fat for the incivo, itchiness not to bad, some fire in the hole. managing to work ok so far. Hope all you folks out there are getting on ok with your treatment, best wishes to all smile



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A weston Geno Type 1, started triple therapy October 2012, completed April 2013 UND.  December 2013 SVR
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