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Hep C Discussion Forum -> On Treatment -> unsure of nurse
Post Info TOPIC: unsure of nurse
Bills


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RE: unsure of nurse
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Scout wrote:

The nurse doesn't heal you, the drugs and your positive mind set will. You woke up sober today, right? Be thankful for that and do it again tomorrow and you'll get through this.

 Agreed it's up to you/ us  with support here follow the protocal and do everything you can to stay on track you don't have to l;ike someone to get what you need



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Bills

Harvoni started 12-12-14 for 24 wks PrevTX Geno 1 stage 3 cirrhosis - non resp Int/ ribv. Started Trial  in Aug 2011 -July 2012 into Incivek relapsed  Feb 2013 Had 72 weeks on interferon & Riba.

Scout


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The nurse doesn't heal you, the drugs and your positive mind set will. You woke up sober today, right? Be thankful for that and do it again tomorrow and you'll get through this.



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Geno 1a, Viral load at 2 4, 8, 12 and 16  weeks, UND, Triple therapy Incevek done,   Peg & Riba Done, UND and making plans for the future!!
JoAnneh


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For all you Invicek users, hang in! I made
It thru it but thought I would crack around 8 weeks then it improved here and there.
It was hard, symptoms popped up continuously.
The butt pain was torturing! The rash
Too. I ate a lot and maybe that helped
Me as I never have had dose reductions.
You will feel better at 13 week! Pamper yourself,
Sleep all you can. Drink water and sleep without
Bottoms on to help air get to heal buttock area.
Ask any questions, I did and this forum was
A life saver. You just got to tx symptoms as
Quickly as possible. Side effects are not your
Fault, it's medicine! Anemic still here
But it is so much better without Invicek.
JoAnne

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JoAnne

Genotype 1a, Triple therapy w/Invicek started May 19, 2012

DET 4 wk. UND 2,6,12,24 48 treatment. Achieved SVR 2013!
willardt71


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saw dr yesterday and he told me my viral load had dropped a little.so hopefully thats a good sign



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Bouba


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Hearing Riba may cause some insomnia. Thats why recommended to take an evening dose a few hours before bedtime. Anyways, my doc has prescribed Xanax for that. Low 0.25 to start with, increase if necessary. But so far so good at 0.25. Coping with light sleep more or less. After Incivek course is over, will get back to a different timetable, which hopeully will allow to have a better sleep through the night.



-- Edited by Bouba on Friday 23rd of November 2012 11:01:30 AM



-- Edited by Bouba on Friday 23rd of November 2012 11:01:39 AM

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58 yo male, HCV since 1981. Gen 1B (IL28B, CT). Diagnosed 1999,  VL before tx 100'000. Biopsy A2, F3 fibrosis. Naive, SOT (with Incivek) Oct 26, 2012. UND @ week 4, 12, 18, 24, UND 12 and 24 weeks post-RX
Northern


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For me, it was the pharmacist. When I started this treatment again I had to go to their place and be "consulted" on the treatment. I was told they would be my go between with the MD. If I needed anything I was to contact them and they would contact the MD. After a month if sleepless night and trying everthing thing i could think of to sleep I called them yesterday. He spent minutes telling me why he could not help and kept suggesting things that I already tried. Every time I tried to talk to the guy he would cut me off. I finally popped (rib-rage, always had a problem with that) and got forcefull in order to be heard. The bottom line I ended up calling my ever pleasant nurse (I'm biased that way ) and got me a sleep aid. I wanted Trazodone but it turns out that Incivek acts as an enchantment to it and I got Ambien instead.

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1b, 3rd time around on treatment. Stage IV cirr. Undetectable at 8 weeks with Incviek. Been infected since the late 70s. 48wk treatment completed. Sustained undetectable. 
Phil G


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I was never too happy with my doctor or his staff, and at 23 week post without the riba rage, I'm still not.  For example, they would have me listed on the wrong meds and dosages, repeatedly. And last time I saw a PA for the first time, who was not informed about my case specifically, much less hep C in general. Fortunately, it was only their organization and bed side manner that was out of wack and not the technical decisions. But all that doesn't matter. We know what to do and how to do it and just keep doing it day after day.



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Geno 1A, VL 1.9 mm, SOT 12/2/11 - Pegintron/Ribavirin/Victrelis, UND since wk 8, EOT 6/15/12 (28 wks), SVR 11/30/12
news


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I did the Incivek triple, but I had the most wonderful nurse. She was always glad to see me, knew all about what I was doing and what I needed to do next. I can tell you that when the Incivek is finished your life will get so much better. The 8-hour dose schedule goes away immediately. Ribavirin twice a day and a shot each week. You can live with that. The itch will disappear, or at least drastically reduce, the butt burn will begin to go away. The anemia won't be affected, sadly, since it is caused by the ribavirin. But I guarantee you will feel so much better overall. And the rest of your life you will know that you are one tough cookie. Alan

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Geno 1A  Started Pegasys/Ribavirin/Incivek Nov. 20, 2011 .  Completed July 28, 2012 (36 weeks). For a treatment history, see:  https://jshare.johnshopkins.edu/xythoswfs/webview/_xy-9921874_1

SVR on January 14, 2013!!
mallani


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Hi Will, sorry you're having a tough time of it, but as Bouba says, things will improve when you finish the Incivek. It's disappointing about your nurse- they should help you get through treatment. We're here to help and support so ask any questions you like. Good luck with treatment- do you have any Viral Load figures ? Cheers.



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
Bouba


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Hi Will,

You are lucky to have only 3 weeks of Incivek left. I am finishing week # 4 today and feel like a vegetable. Sorry for that nurse, she must be feeling even worse than her patients ....
I hope, that right after we finish the Incivek course, the energy and mood will get better. Keep well!!!

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58 yo male, HCV since 1981. Gen 1B (IL28B, CT). Diagnosed 1999,  VL before tx 100'000. Biopsy A2, F3 fibrosis. Naive, SOT (with Incivek) Oct 26, 2012. UND @ week 4, 12, 18, 24, UND 12 and 24 weeks post-RX
willardt71


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im in week 9 of incivik and pegasus.Everytime i see nurse she never has much good to say and has a hard time remembering who i am and ,asks everytime if im still drinking.I have told her repeatedly that i dont anymore its been three years since my last one.

this treatment is really getting to me,with the butt bullets,moods and feeling like crap all the time .I really hope this round of treatment works . Dont know if i can do it again.



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