Hep C Discussion Forum

Members Login
Username 
 
Password 
    Remember Me  
Chatbox
Please log in to join the chat!
Hep C Discussion Forum -> On Treatment -> notified to stop all treatment
Post Info TOPIC: notified to stop all treatment
Cinnamon Girl


Guru

Status: Offline
Posts: 5629
Date:
RE: notified to stop all treatment
Permalink  
 

Really sorry to hear this, Bill, take some time to recover and get well now.  And please don`t blame yourself..this is not your fault in any way!

Keep your spirits up, and remember we`re here for you anytime...keep us posted.  smile  Jill xx



__________________

Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
Iris Dragonfly


Guru

Status: Offline
Posts: 1170
Date:
Permalink  
 

Sorry to hear this. Take good care, and stay in touch. We are here for yousmileBlessings, Iris



__________________

in the silence of the woods, you will not be alone- Chief Seattle

60 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)
mallani


Guru

Status: Offline
Posts: 3398
Date:
Permalink  
 

Hi Bill, don't let them start treatment again until you get properly assessed . You need a full Haematology workup to find out why your starting Hb was low, and why it dropped so dramatically. Also, as you are diabetic, you need this to be fully assessed particularly in regard to any renal manifestations. You had a good response to treatment (VL wise), and should start again, but only after all of the above. You should ask about how any future Sx will be managed. Best of luck, you'll get there.



__________________

Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
JoAnneh


Guru

Status: Offline
Posts: 1077
Date:
Permalink  
 

Nothing u did caused this! It's side effect!
Keep us posted. Thinking of u and ur wife

__________________

JoAnne

Genotype 1a, Triple therapy w/Invicek started May 19, 2012

DET 4 wk. UND 2,6,12,24 48 treatment. Achieved SVR 2013!
Mary Jane


Guru

Status: Offline
Posts: 523
Date:
Permalink  
 

Bill & Family ... hang in there dude.. hoping for the best MJ



__________________

Do not go where the path may lead, go instead where there is no path and leave a trail.Ralph Waldo Emerson

1a - VL 22 million  F2- IL28B- CT / Inck-Riba- Peg triple therapy 9/15/12 UND 4/8/14  8 wks BT ..3/1/2013 done! 3wks Post UND
12Step Guy


Senior Member

Status: Offline
Posts: 413
Date:
Permalink  
 

 

Bill and Bill Family, keep us in the loop. Self compassion and letting in the support of others will likely do more good; then speculating on assigning blame to ourselves.  If things do get worse, lets hope its one of those - things sometimes get worse before they get better - things.

Vern



__________________

Genotype 1a, IL 28 = CT  Interferon and riba 48 wks in 99, Daily Peg and Riba 18 months in 2007, Started Incivek, Peg, Riba 6/21/12. 4th stage cirrhosis. Last Dart will be May 23 2013.
2willy


Senior Member

Status: Offline
Posts: 256
Date:
Permalink  
 

Well got the call to stop the 3x treatment and waiting to see if can still do eprex to bring up hemoglobine.  Seending me for blood work Monday and then to an Nephrologist seems they and I guess I should be worried about kidney failure.  Creat jumped to 217.  Could be my own fault since started Vict last Friday did not really drink that much fluids, started on Wednesday after notified of blood work and read information about water intake on this sight.  Well will know more by Tuesday.

Bill and Family



__________________

Geno type 1  rib and peg September 2012 , 5 weeks tripple and viral down to < 15 und april Aug 25 finished stay at peg 3 rib and eprex + blood transfussion finished treatment Aug 25 2013
Page 1 of 1  sorted by
 
Quick Reply

Please log in to post quick replies.
Hep C Discussion Forum -> On Treatment -> notified to stop all treatment
Legal Disclaimer:

THIS FORUM, IT'S OWNERS, ADMINISTRATORS, MODERATORS AND MEMBERS DO NOT AT ANY TIME GIVE MEDICAL ADVICE AND IN ALL CASES REFER ANYONE HERE TO SEEK APPROPRIATE MEDICAL ADVICE FROM THEIR DOCTOR.