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Hep C Discussion Forum -> General Discussion -> Top Ten things to love about Incivek/Victrelis/Peg/Rib
Post Info TOPIC: Top Ten things to love about Incivek/Victrelis/Peg/Rib
TazKat


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RE: Top Ten things to love about Incivek/Victrelis/Peg/Rib
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lol..., that was great!!!

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TazKat Genotype 1A null responder x 3 riba & iterferon twice, relapsed from Incivek 2012 with only 12 weeks left to do. stage 4 mild cirrhosis 4/25/2014/ started sovaldi riba & interferon.. finished treatment 7/17/14  results 7/25  cleared..

 

 
Bills


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12Step Guy wrote:

Jim, well said. Love your perspective. Thanks

Vern

 Ditto well said Jim

BS



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Bills

Harvoni started 12-12-14 for 24 wks PrevTX Geno 1 stage 3 cirrhosis - non resp Int/ ribv. Started Trial  in Aug 2011 -July 2012 into Incivek relapsed  Feb 2013 Had 72 weeks on interferon & Riba.

JoAnneh


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Jim great ideas on top 10! Thanks for sharing!!!
Joe, Alan doc suggested 36; doc told him he could stop at 36 weeks.
Later as Alan realize others on forum were
Doing 48 weeks, he asked his doc about it!
Doc replied, "You didn't ask to do 48"!!
Anyway, it baffled us all. But so far all is well. He gets rechecked
In 2 weeks! I was UND 2 weeks, DET 4 wk
And UND 8,16,24 so my doc recommended 48 weeks.
Hope u r doing good as can be on tx.
I just told Alan story as u can see I am active
Member on week 33 that has received much
Advice and support from forum!
Hang in there

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JoAnne

Genotype 1a, Triple therapy w/Invicek started May 19, 2012

DET 4 wk. UND 2,6,12,24 48 treatment. Achieved SVR 2013!
joe oil


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Alan, why did you only get 36 wks of tx on Incivek. I thought it was 24 or 48??



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58yr m/G 1A/ VL 9,000,000 / F 3  / STARTED TRIPPLE TX (Incivek)7-14-12 / UND WK-4-8-12-16-20-24-36- 48- 12 weeks post tx UND. SVR 1-10-14
12Step Guy


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Jim, well said. Love your perspective. Thanks

Vern



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Genotype 1a, IL 28 = CT  Interferon and riba 48 wks in 99, Daily Peg and Riba 18 months in 2007, Started Incivek, Peg, Riba 6/21/12. 4th stage cirrhosis. Last Dart will be May 23 2013.
JIme


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10. Finding out I was not alone in fighting this disease.

9.   Meeting some great, tough, determined people.

8.   Sharing the nervousness of making the decision to start tx with people who were in the same boat as me.

7.   Sharing the sx and the tx for the sx with other people. ( DRINK WATER!!!!!!....lol )

6.   Comparing notes and keeping our Dr.'s on their toes. ( The dreaded online forum questions...lol )

5.   Finally realizing that I may not have to live with this disease the rest of my life. ( I thought it would eventually kill me )

4.   Seeing people who went through it all and came out the other side, clear.

3.   Seeing people who tried but failed, but still were determined to try again.

2.   Meeting people who have been fighting this disease for years and still had a positive attitude.

1.   Meeting some of the most giving and caring Dr's, nurses, and NP's in the world.

0.   Getting a chance to start my life over again.  This time hep c free.



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jim

GT1a, St2 Lv2 last biopsy 2002, VL  11.4m,  start triple tx 9/30/11

VL 470 @4wks.....VL 22,000 @8wks  stopped tx

Round 2-  Started 3/16/12   PSI-7977, BMS-790052, Riba Undetectable day 14

Did 24 weeks Still UND 12 weeks post tx, SVR24!!!!!!! 2/14/13

 

 

 

 

 
JoAnneh


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Alan, can't wait for you to get results!!! SVR!!! Glad ur hair is coming back too

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JoAnne

Genotype 1a, Triple therapy w/Invicek started May 19, 2012

DET 4 wk. UND 2,6,12,24 48 treatment. Achieved SVR 2013!
news


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I was going to say my number one thing to love about Incivek is one year UND and SVR bloods in two weeks.

 

Alan



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Geno 1A  Started Pegasys/Ribavirin/Incivek Nov. 20, 2011 .  Completed July 28, 2012 (36 weeks). For a treatment history, see:  https://jshare.johnshopkins.edu/xythoswfs/webview/_xy-9921874_1

SVR on January 14, 2013!!
Mary Jane


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ditto Vern.. my response was trying to find humor in all of this... but you do it so much better than I... MJ



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Do not go where the path may lead, go instead where there is no path and leave a trail.Ralph Waldo Emerson

1a - VL 22 million  F2- IL28B- CT / Inck-Riba- Peg triple therapy 9/15/12 UND 4/8/14  8 wks BT ..3/1/2013 done! 3wks Post UND
12Step Guy


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I would say my top reason to love Incivek/Victrelis/Peg/Rib is:

Using it is making a choice for health, the future and perhaps making a contribution to others. It is a Leap of Faith choice, against the odds, complications and outcomes.

By not doing it alone and traveling with folks like all of us on the board, doesn't shorten the journey but at least we do it with company, support and new friends.



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Genotype 1a, IL 28 = CT  Interferon and riba 48 wks in 99, Daily Peg and Riba 18 months in 2007, Started Incivek, Peg, Riba 6/21/12. 4th stage cirrhosis. Last Dart will be May 23 2013.
zuzusfam


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Best naps ever. (Even though I slept most of 10 weeks away.)



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53 y.o. female, diagnosed in 1998. Started tx Oct 8th 2012. Genotype 1a. VL 600,000 before treatment; VL 98 11/12; UND 12/12. Reduced interferon to 135mcg 12/12. 12/17/12 stopped incivek due to rash. 12/20/12 Stopped all meds due to sx
Bouba


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i put on 15 in the first 9 weeks. All that 3 x daily fat "icing" got stuck in my belly. Off Incivek mid-Jan. Hope to lose a bit after.



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58 yo male, HCV since 1981. Gen 1B (IL28B, CT). Diagnosed 1999,  VL before tx 100'000. Biopsy A2, F3 fibrosis. Naive, SOT (with Incivek) Oct 26, 2012. UND @ week 4, 12, 18, 24, UND 12 and 24 weeks post-RX
Mary Jane


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you get to try all sort of new prodcucts on the market to elviate side effects..



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Do not go where the path may lead, go instead where there is no path and leave a trail.Ralph Waldo Emerson

1a - VL 22 million  F2- IL28B- CT / Inck-Riba- Peg triple therapy 9/15/12 UND 4/8/14  8 wks BT ..3/1/2013 done! 3wks Post UND
Bills


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I lost 25 pounds on the Incivek diet

Cause I coulldn't eat anything else but the required 20 grams of fat

 



-- Edited by Bills on Monday 31st of December 2012 04:03:43 PM

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Bills

Harvoni started 12-12-14 for 24 wks PrevTX Geno 1 stage 3 cirrhosis - non resp Int/ ribv. Started Trial  in Aug 2011 -July 2012 into Incivek relapsed  Feb 2013 Had 72 weeks on interferon & Riba.

2willy


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Yes you are so right and it gives me peace of mind, some mind anyways what I have in store in my social callender for the next 34 weeks.

Bill and Family, Season greetings to all



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Geno type 1  rib and peg September 2012 , 5 weeks tripple and viral down to < 15 und april Aug 25 finished stay at peg 3 rib and eprex + blood transfussion finished treatment Aug 25 2013
12Step Guy


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Top Ten things to love about Incivek/Victrelis/Peg/Rib

 

#10 You can get a bad case of the flu and not feel any different

 

#9  The chances of getting Hep C from a dirty needle are a lot less

 

#8  Rash is not just an impulsive response

 

#7   People from around the World get together to discuss anal itching, butt rash and shards of glass

 

#6  The number of trips to the bathroom is equal to the national debt growth rate ( well maybe its less then 1 million trips every 35 seconds but not by much)

 

#5   Wind has multiple meanings, such as being winded or passing wind or whats that horrible smell

 

#4   Brain Fog

 

#3 (Hmmm, my mind went blank)

 

#2  You never knew how many Brothers and Sisters you had until you started treatment

 

#1 And the number reason to love Incivek/Victrelis/Peg./Rib is _ _ _ _ _ _ _ _ _ _  _ _ _ _ _ _ _ _ _ _ _ _ _  _ _ _ _ _ _ _ _ _ _ _ _ _  _ _ _ ?

 

 

 



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Genotype 1a, IL 28 = CT  Interferon and riba 48 wks in 99, Daily Peg and Riba 18 months in 2007, Started Incivek, Peg, Riba 6/21/12. 4th stage cirrhosis. Last Dart will be May 23 2013.
Neil_Canuck


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#1 You always have a fairly good idea what time it is....all the time.

 

 

Once again you've made us smile Vern. Thanx.



-- Edited by Neil_Canuck on Saturday 29th of December 2012 09:26:26 PM

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58 yrs, cirrhotic, Genotype 1b 48 weeks Victrelis triple, SOT 7/13/12 victrelis started week 5. Starting VL 4,000,000  Wk 8 33 copies  Wk 24 UND, EOT UND 6 months post Tx DET. The battle goes on.
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