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Hep C Discussion Forum -> On Treatment -> second time around on treatment/FAILURE!
Post Info TOPIC: second time around on treatment/FAILURE!
DJ


Senior Member

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RE: second time around on treatment/FAILURE!
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Just wondering.....is it possible to volunteer for a trial (non-interferon drug)? Or how do people get in these? I hope it all works out.

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Genotype 3.  Treatment started on 1/11/2013 with Ribavirin and Pegatron.  Week 4 UND.  Week 12 UND.  Ended treatment on 6/28/2013.  Six months post treatment 12/04/2013 SVR.
12Step Guy


Senior Member

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This very disappointing news must have been hard to get. Look at the bright side, no sides for the next year??? Like others have commented: the new treatments look promising. Just keep in mind that this bump in the road and isn't in anyway your doing. You're not the disease. Maybe this is a chance to let go, let go of the recent frustration and treat it as some sort of weird reprieve.

Vern



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Genotype 1a, IL 28 = CT  Interferon and riba 48 wks in 99, Daily Peg and Riba 18 months in 2007, Started Incivek, Peg, Riba 6/21/12. 4th stage cirrhosis. Last Dart will be May 23 2013.
zuzusfam


Veteran Member

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I know your feelilngs of frustration. Sometimes, I felt like I wasted 10 weeks of my life and missed a whole holiday season. But I am also hopeful that when I get my 90 day post treatment results, they will be good. Good for you for trying a second round of treatment though! That, in itself, takes courage.



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53 y.o. female, diagnosed in 1998. Started tx Oct 8th 2012. Genotype 1a. VL 600,000 before treatment; VL 98 11/12; UND 12/12. Reduced interferon to 135mcg 12/12. 12/17/12 stopped incivek due to rash. 12/20/12 Stopped all meds due to sx
Scout


Senior Member

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Sorry to hear this. The treatment is so hard on us and then to endure it and it not work, that's a cruel turn. Look to the future with an open mind and heart.



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Geno 1a, Viral load at 2 4, 8, 12 and 16  weeks, UND, Triple therapy Incevek done,   Peg & Riba Done, UND and making plans for the future!!
Cinnamon Girl


Guru

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Hi again Will, really sorry to hear this...you must be so disappointed.  Take some time out now to recover and nurture yourself before the next round begins.  Don`t give up hope...your day will come!  smile

Wishing you all the best, Jill



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
gsx1250fa


Veteran Member

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Don't be discouraged. I am on my 4th attempt (study gilead sofosbuvir/gs-5885 and riba)...without interferon and little to no side effects. The drugs that will be coming out are going to be much better with less side effects...and ORAL. I believe interferon will be a thing of the past. Personally I will never go on the interferon again. The side effects on my 3rd tx attempt were far worse than my 1st treatment attempt with it (interferon). Hang in there.

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willardt71


Newbie

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well dr just stopped my treatment again!

incivick was working,dropped viral load to 5, before christmas

then did another viral load and they told me it went back up and they stopped it.

told me that theyll look at something else in ayear or two!!!!!

WTF????????????????



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