Hep C Discussion Forum

my case (but i am only on my first week): Interferon Friday shot - bed, can't function at all, nor eat, Sat - "hangover" from shot, Sun-Tue - sleep problems, sweating, energy level 80%, Wed-Fri - pretty much normal....i guess i have to wait for Riba to accumulate.

I am no doctor...or physiologist for that matter...but I would think light cardio and light weights (if possible) would help with the blood circulation (and that of the drugs) throughout the entire body (muscles, tissue etc). I could be wrong, but seems to make sense to me. I forced my self to workout throughout all treatment attempts...even if it was just a little bit at a time.

-- Edited by gsx1250fa on Thursday 31st of January 2013 04:17:35 PM

Hey Z!!  Glad to hear you are doing well!!

I have had minimal sides as well, but not hitting the slopes by any means. Of course, we don't get much snow here in the South.  I have been carrying a low grade fever, some body aches from time to time, fatigue  and naseau. I am not 100%, but making myself get up and at least get things done.  It's weird, like one minute I feel normal, then 5 minutes later not so much.

Vern i was the same way. I lived on my couch. I had NO intrest in anything didn't want to do anything.I could not even stand up for mroe than a minute and I would have to sit down. That was the incevik kicking my ass.

Hang in there Vern it will go away. Once you are done with the incevik you will get some of your energy back. You won't start feeling better until you are done with all meds. Good luck,

 

ken

-- Edited by packerfan24 on Thursday 31st of January 2013 02:00:41 AM

Zlikster wrote:

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Hi Jonathan,

you rekon i could ski while on therapy? at least 3 times per week (maybe 1hr max? Used to ski for 3-4hrd usually)...getting my first shot tomorrow and i still don't know what to expect re new fatigue levels that will be imposed on me. You are on 6th week? Do you have particular days after interferon shot when you have more strength? any pattern? Hows with Riba, do u have any part od the day when you feel with less breath cause of it?

thanks n keep fighting!

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i think you should do whatever it is you feel you can get away with comfortably, but remember, i am not a doctor and i didn;t stay in a holiday inn express last night either!!

i mean, i have good days and i have bad days.  not one particular day overall.  i take my shots on fridays, cause they told me i would need the weekend to recuperate.  with this disease, your mileage may vary, plain and simple.  i went through therapy the first time in 2000, and it didn't work.  i was competing in karate tournaments at the time.  doctor said i wouldn't be able to do it.  that's usually all it takes for me. i won a state title that year......

right now, my worst day of the week is friday, i am noticeably fatugued and i just crash, but i am also 54 now, not 40....just do what you can to control your life, not let this treatment control you.

oh, by the way, i got the tattoo!

 

12Step Guy wrote:

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Jonathan, I don't know how you do it, but I envy you. You have posted about this before and I just figured you were like Superman's illegitimate grandson (LOL). Keep it up, I'm sure its helping.

Vern

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the funny thing is, it's not the incivek that's kicking my ass, it's the interferon.  my hemoglobin only went down a couple of points, and at the end of each day i am tired, but i just drag myself to the gym.  i usually get a second wind.  i think the advantage was that i got a running head start.

to anyone else...a little bit of something is better than a whole lot of nothing.  keep fighting.

i will say i now officially hate peanut butter, trail mix and muffins! running out of ways to get my fat!

-- Edited by 2ndTimeAround on Thursday 24th of January 2013 08:06:39 PM

Hi Vern,

Although Sx vary from person to person, some factors seem to determine how we cope with Tx. Age is definitely a factor- if you're over 60 yo, chances are you'll have more severe Sx. Length of Rx is another factor. If you just do 24 weeks, the cumulative effect of the drugs is not as profound.  Severity of liver damage seems to have a huge impact. If you're F3 or worse, your Sx will be more severe.   My impression is that the folks on Incivek have an easier ride, provided they can get through the first 12 weeks.

So, don't try to compete with the youngsters. Just try to do the best you can.  I too, am alarmed at the severe muscle wasting but that will have to wait until post Rx. Don't walk up stairs! Cheers.

I worked out 6 days a week prior tx, wasn't able to do much while on Incevik. At week 28 now got pretty good energy, manage to do a 30 min every other day hike up hill and a little strength training. Lost only 12 lbs. and 2lbs of hair.

12Step Guy wrote:

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Is anyone able to exercise while on treatment? Since I started 30 weeks ago, I can hardly go up a flight of stairs without getting winded. The lack of exercise seems to be taking a toll on me. Im gaining weight and transformed myself into a championship contender for the Couch Potato Olympics. Part of it is the incredible boredom of not having much energy or interest. Each week it feels like Im shutting down more and more. I sure look forward to May and being off this Cr*p!  

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 i started working out about 3 months before treatment in preparation.  i've dropped 30 pounds and about 7 inches in the waist.  i am 7 weeks into treatment. i go to the gym at least 6 days a week.  i have been very blessed to not have experienced most of the side effects that tx therapy can dish out.  i am fatigued, but found that i can work through it.  exercise keeps me going and even if i do less, i still drag my @$$ to the gym.

make the effort, set small goals and you'll feel better.  best of luck to ya!

Yea, I went from my bed to the shower, to work, back to the shower, then back to bed. Then I got up ate dinner and went back to bed. Lot's of up and down moves.


Seriously, in the beginning I rode my mt bike a wee bit and ran a few times but after about 4 weeks my goose was cooked. Damn ribavirin took my breath away. It just cleared up completely 5 months post tx for me. I feel great now and work out almost every day. I gained a few lbs on tx. weight isn't coming off yet but I'm feeling stronger. Now if I could only stop eating i'd be all set...lol