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Hep C Discussion Forum -> On Treatment -> Starting therapy this week!
Post Info TOPIC: Starting therapy this week!
Zlikster


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RE: Starting therapy this week!
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Just got my first pegasys (120ug) shot...they left me for 10 mins to sit just in case some reaction and after they sent me home. I will be getting injections each Friday @ 12:30PM.

I feel bit odd, light headed, could be more anticipation of early sx I am gonna start with Ribavirin from tonite (1000mg per day 2+3 pills). They will do blood test in 2 weeks and PCR on 12th week (i will do on my own PCR on 4th week or even 2nd week, will check with my doc). If i get RVR on 4th week i will ask for lower dosage of Riba or/and shorter therapy.


Supplements and diet i intend to use (if approved by my doc)

PILLS

  1. Vitamin C (rose hip)
  2. Vitamin B12 (in b complex)
  3. Vitamin E + Omega 3
  4. Vitamin D (+ calcium citrate for my fractured bone)
  5. Liv.52+ (as suggested by my infektologist)
  6. Ginko bilboa (tinitus prevention?)
  7. Echinacea (if i get flu)
  8. Ginseng (also for flu)

NATURAL DRINKS

  1. Green tea (always been a huge fan of japanese green tea)
  2. Coffee (stopped with it long time ago, but i wll get on it again during therpy since some research articles point that 3 cups or more per day help in slowing down hcv replication...of course must drink plent of water, since coffee dehydrates and it's diuretic)
  3. Desmodium tea (it does according to some amazing thing to lungs and liver apparently, my mate swears it helped him with asthma)
  4. Domestic fresh goat whey juice (found people with goats who will make me 3 liters per week with some fresh goat cheese)
  5. Tablespoon of domestic olive oil mixed with organic lemon juice and honey each morning 
  6. Fresh fruit juices (orange, apple, beetroot, raspberry,etc)
  7. tablespoon of aloe vera organic juice (helps stomach)
  8. goat probiotic yogurt (hard to find, but it's low fat and helps me with stomach)



DIET


FORBIDDEN

pork
any high fat product
high fat dairy products (cheese)
processed food / junk food
hot spices
alcohol
drugs
tobacco

SMALL DOSES

non heavy processed sweets (dark chocolate?)
pies
white flour
yogurts
cannabis??? - still not sure will and how i use it for treating sx, i need a vaporiser since i do not want to use tobacco. Ingesting cannabis with sweets takes a really long time to reach brain.
fresh fruits


ALLOWED

turkey
white fish
fresh, steamed and cooked vegetables (and soups from em)
viel
chicken
fresh low fat cheese
fresh whey

will add more to the list (if anyone has any suggestions, please do say so!)

i am not sure are these first sx, but i feel even more odd now...like stuffed after flu (bit dizzy), eyes dry, heavy legs n arms...think i am gonna lay a bit.





__________________

GT 3 dg. 08-2012 / FibroScan: 5 kPa F1 / FibroTest: F0-1 A1 / SoC TX: PegInt 120mcg+Riba 1000mg UND from w8 relapse EOT+4w
01-2016 Sof+Dac+Riba UND from w8, SVR24!
Zlikster


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Hi Caryn! they postponed my first shot (on my request) for Friday, so we gonna start at same time

Hi Malcolm, have u finished your therapy yet? one or two weeks left is it??? how do u feel? all good?? Thanks for support all this time, u are my voice of reason seem so

Hi Joane, it's not anticipation...it's more "i told you so" if something goes wrong and i get perm damaged in area that woudl devastate my work abilities (scared of even louder tinitus) if in few years time interferon (well and ribavirin) free therapy becomes widely available...

What do you think would it be possible that to do some sport activities during therapy? at least 2-3 days per week? or i will be too fatigued to do any? it's mid of ski season over here and i was skiing almost each day (9-11AM)...

I agree re timeframe of possible new DAA drugs availability over here (tho i would even consider buying em directly in USA as soon as FDA approves em), thats one of the reasons why i have opted in now...i hope i won't be sorry later in case of long term consequences of interferon ;/

Re shortening therpay, i hope at least they can cut down dosage of Ribavirin if i am RVR. I managed to persuade em to do RNA VL on Friday before first shot (otherwise they would use VL check from 08.2012 as base VL!) as for 4th week VL check i will have to do it in private lab.

Somehow i got feeling they were a bit behaving towards me in hospital as i was a junkie type (i saw couple of junkie looking guys in hospital waiting for shot), i have never did IV drugs in my life, tho i did experiment in my youth with all kinda of nasal and oral drugs, still i think no matter who you are, you should be treated equally! I know my doctor is also working part time in private hospital, so i will get apt with her there too. I want to ask more questions regarding therapy, i want to double check everything since i know doctors in state owned hospitals are overstretched and mistakes happen (their words!)

Also, with allowance from my doctor, i will try to include supplemental herbal therapy. If it won't interfere with Riba or PegInt of course. I know my chances for SVR are already good from all the factors you mentioned, but i want to up em even more if possible and of course biggest issue for me, avoiding permanent damage that would impair me for my work activites after therapy is done.

all the best

__________________

GT 3 dg. 08-2012 / FibroScan: 5 kPa F1 / FibroTest: F0-1 A1 / SoC TX: PegInt 120mcg+Riba 1000mg UND from w8 relapse EOT+4w
01-2016 Sof+Dac+Riba UND from w8, SVR24!
JoAnneh


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Lots of tension getting started, then
It's the big relief of knowing you are doing all
You can to live! It's the anticipation thAt
Makes you crazy. Once you get past a week or
Two u will be a pro at it:)

__________________

JoAnne

Genotype 1a, Triple therapy w/Invicek started May 19, 2012

DET 4 wk. UND 2,6,12,24 48 treatment. Achieved SVR 2013!
mallani


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Hi Zlikster,

Glad you finally got approval for your Rx. It may be years before the new drugs are available in Bosnia, so I'm glad you're getting started.

At your tender age, with a low VL, little liver damage (from your Fibroscan in Split) and normal platelets, your chances of SVR are >90%.

If you really want to check for RVR, you will need to pay for a VL at 4 weeks (and this must be undet.).  As 70 % of Geno 3's in your situation will get an RVR, it's not that critical. I would be careful about any shortening Rx time to less than 24 weeks.  It has been discussed at length, and there does not appear to be consensus. I saw an article about this recently, but cannot find it. Check out the following link. The Riba dosage is something to discuss with your doctor. The standard dose is 800 mgms/day.  Good luck.

 

http://www.natap.org/2011/HCV/060611_02.htm



__________________

Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
Caryn


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Congrats on getting starting. I hear you on the anxiety situation. I think my brain and heart are about to explode.  I am starting Friday, all of my meds arrived today.  I will be doing triple though.  Good luck to you!



__________________

1a, CT. Incivek triple 1/2013, vl 810 @ 2 weeks, 610 @ 4 weeks, 3000 @ 8 weeks, tx stopped. 

4/2014 - tx with Sovaldi/Olysio/Riba. VL 39 mil. - VL 230 @ 1 week, VL 40 @ 3 weeks, 5 weeks UND, EOT - UND, EOT @ 4 weeks UND, EOT @ 12 weeks UND!
Zlikster


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I got call from hospital yesterday. My therapy (PegInt+Riba) has been approved and it starts this week.

my case: HCV GT 3, diagnosed 6 months ago, VL 91k, FibroScan 5 kPa, FibroTest F1, biopsy avoided, 35 year old male, never been IV drugs user nor had any blood transfusion (dentist possibly), HCV infected since as early as 1998 or late as 2006,

since i have been dignosed with HCV stopped with any alcohol intake, reduced fat intake as much as possible, supplementing with Liv.52, reduced fried food, stopped with spicey/hot additives

I have to do on my own (private labs) PCR RNA VL tests, since in hospital they only check @ 12th week of therapy (and i presume post tx), and i want to see am i an early rapid viral responder or not (2nd week or 4th week).

Doctor said if it shows i am ERVR i could opt in, on my responsibility (in case of relapse) to shorten therapt to 20 weeks...anyone else had shorter tx in GT 3 cause of ERVR?

my anxiety about long term fx from tx is now at peak level ;/

thanks to all that supported me and gave me tips n hints!



__________________

GT 3 dg. 08-2012 / FibroScan: 5 kPa F1 / FibroTest: F0-1 A1 / SoC TX: PegInt 120mcg+Riba 1000mg UND from w8 relapse EOT+4w
01-2016 Sof+Dac+Riba UND from w8, SVR24!
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