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Hep C Discussion Forum -> General Discussion -> Role Call - Counting down
Post Info TOPIC: Role Call - Counting down
Biggyb


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RE: Role Call - Counting down
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2 more



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58 yo..Relapsed in 99 and again in 2004. Started triple therapy with Victrelis July 22,2012.  genotype 1a. week 8,12,16,24 VL Undetectable..E.O.T -- 6-22-2013,,,EOT + 24., UND. 

SVR !!!

 

~Bob~
Bloomster


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19 more days for hubby - can't wait to get back to normal.  My husband is so tired and fatigued at the moment and we just need this to be done now after such a long haul of 48 weeks.  Caroline



__________________

My husband had genotype 1a, 46yo, started triple therapy (peg/rib/vic) 23rd July 2012, VL prior to treatment 14 million, UNDET 12, 24 weeks, EOT 24th June 2013, EOT +1.5 weeks UNDET, EOT +12 weeks & EOT +27 weeks UNDET; SVR January 2014
Dillo


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Cool Biggyb

I'm about 35 out...last day of July

Your almost there now!



__________________

GT 1a Started triple tx with Incivek, Pegasys, and Riba 2-6-2013. UND at 4,6,12,23,& 24 wks EOT 7-26-2013. Probably had Hep C for 20-30 years. Don't really know when I got it.

Biggyb


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12Step Guy wrote:

B. only 17 days more? Great news. I'm about 12 days out now. I'm already beginning to feel better. Still leaning toward the couch, but my thinking seems better.

 Thanks, getting antsy, i have become pretty attached to the couch myself.



__________________

58 yo..Relapsed in 99 and again in 2004. Started triple therapy with Victrelis July 22,2012.  genotype 1a. week 8,12,16,24 VL Undetectable..E.O.T -- 6-22-2013,,,EOT + 24., UND. 

SVR !!!

 

~Bob~
12Step Guy


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B. only 17 days more? Great news. I'm about 12 days out now. I'm already beginning to feel better. Still leaning toward the couch, but my thinking seems better.

I have to admit that I feel 50 times better being off the HepC drugs for 12 days, then I did being 12 days sober from alcohol and drugs (LOL).

Clear-Sailing.jpg



Attachments
__________________

Genotype 1a, IL 28 = CT  Interferon and riba 48 wks in 99, Daily Peg and Riba 18 months in 2007, Started Incivek, Peg, Riba 6/21/12. 4th stage cirrhosis. Last Dart will be May 23 2013.
Biggyb


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17 more days of this.



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58 yo..Relapsed in 99 and again in 2004. Started triple therapy with Victrelis July 22,2012.  genotype 1a. week 8,12,16,24 VL Undetectable..E.O.T -- 6-22-2013,,,EOT + 24., UND. 

SVR !!!

 

~Bob~
Biggyb


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21 more,



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58 yo..Relapsed in 99 and again in 2004. Started triple therapy with Victrelis July 22,2012.  genotype 1a. week 8,12,16,24 VL Undetectable..E.O.T -- 6-22-2013,,,EOT + 24., UND. 

SVR !!!

 

~Bob~
Bills


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Every time I see your post just makes me smile. It is a pleasure to have sailed with you. I feel a great future coming on

I like that picture of the Crew

Thanks Vern

Bill S



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Bills

Harvoni started 12-12-14 for 24 wks PrevTX Geno 1 stage 3 cirrhosis - non resp Int/ ribv. Started Trial  in Aug 2011 -July 2012 into Incivek relapsed  Feb 2013 Had 72 weeks on interferon & Riba.

12Step Guy


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Role Call - Counting up. Six months till my viral load test. SVR is what we want. 4 days since the last dose of Ribavirin. Still very tired, taking naps and having some brain fog. Fortunately the weather has been so bad lately that I haven't been tempted to get out fishing.

The crew

Pirates.jpg



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__________________

Genotype 1a, IL 28 = CT  Interferon and riba 48 wks in 99, Daily Peg and Riba 18 months in 2007, Started Incivek, Peg, Riba 6/21/12. 4th stage cirrhosis. Last Dart will be May 23 2013.
Caryn


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Congratulations!!!  



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1a, CT. Incivek triple 1/2013, vl 810 @ 2 weeks, 610 @ 4 weeks, 3000 @ 8 weeks, tx stopped. 

4/2014 - tx with Sovaldi/Olysio/Riba. VL 39 mil. - VL 230 @ 1 week, VL 40 @ 3 weeks, 5 weeks UND, EOT - UND, EOT @ 4 weeks UND, EOT @ 12 weeks UND!
2willy


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Way to go, your there ice is gone fish are biteing and you are right silence is fullfilling.  Way to go and thankyou for your humor and firm but gentle guidence.  only downfall up here is the blackflies are out even with a -3 windchill.


 Bill and Family



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Geno type 1  rib and peg September 2012 , 5 weeks tripple and viral down to < 15 und april Aug 25 finished stay at peg 3 rib and eprex + blood transfussion finished treatment Aug 25 2013
JoAnneh


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12-Step!
Congratulations! Party!!! The end has arrived!
You will be sleeping a lot to recuperate.
5 weeks most and feeling better every day.
Thank you for all the humor!
Love the photo you found of the ship!
Xxoo

__________________

JoAnne

Genotype 1a, Triple therapy w/Invicek started May 19, 2012

DET 4 wk. UND 2,6,12,24 48 treatment. Achieved SVR 2013!
Cinnamon Girl


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Very well done, Vern, many congrats!  You`ve shown how to do it with style and humour, what a trooper!  Now relax and give yourself time to recover.  

Summer`s on it`s way with good times to be had!    Wishing you calm waters for your journey to recovery... Jill xx

ps - Love the Peter Pan and the pirate ship illustration!



__________________

Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
Matt Chris


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Vern 

Congrats, it's called a soft landing after a very long flight. You have been a good pilot with a great sense of humor.

Or like possibly you may say a humdinger, hysterical , hilarious , good humored bloke that makes the long trip bearable.

Thanks

Matt



__________________

"And in the end, the love you take is equal to the love you make"

61 year old Geno type A1, F4 Cirrhotic, started 24 weeks on Harvoni 12-17-14 ,EOT-5 week = UND, 8-31-15 =UND , SVR-24 Baby YES! 
marktrux


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Congratulations Vern. Your long hard journey is now complete. Now you've got the rest of your life to rest, recover, rejoice and fish. Well done, you did it with style, grace and one hell of a sense of humor.  



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KCCO

 

 
mallani


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Hi Vern,

Well done sir! A marathon effort to be sure, but you have sailed well and have kept us amused along the way. Recover quickly and good luck for the VL tests to come. Cheers.



__________________

Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
Biggyb


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Good job Vern,

I also agree with MJ, without this forum i would be lost on all the information i needed. My doc can only tell me what he knows in a 10 min office call. Just about every question and info i learned was from this place. Keep coming back everyone, newbies really need you.



__________________

58 yo..Relapsed in 99 and again in 2004. Started triple therapy with Victrelis July 22,2012.  genotype 1a. week 8,12,16,24 VL Undetectable..E.O.T -- 6-22-2013,,,EOT + 24., UND. 

SVR !!!

 

~Bob~
Dillo


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Good deal 12Step

 

Hope you find Safe Harbor



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GT 1a Started triple tx with Incivek, Pegasys, and Riba 2-6-2013. UND at 4,6,12,23,& 24 wks EOT 7-26-2013. Probably had Hep C for 20-30 years. Don't really know when I got it.

12Step Guy


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Landfall day for me. Last 3 Riba down the hatch. After 48 weeks at sea, it will be good to be back on solid ground. I agree with M.J. getting from beginning to end has been a joint effort. Without others the voyage would have been rougher.

Peter-Pan-and-Pirate-Ship-peter-pan-2106192-799-528.jpg

 



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__________________

Genotype 1a, IL 28 = CT  Interferon and riba 48 wks in 99, Daily Peg and Riba 18 months in 2007, Started Incivek, Peg, Riba 6/21/12. 4th stage cirrhosis. Last Dart will be May 23 2013.
Mary Jane


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Not a day goes by that I don't think of all of you... without your support , this gal wouldn't have made it.. 

all the best to the ones coming up on the finish line...and to those just starting hang in there ..

peace & love MJ



__________________

Do not go where the path may lead, go instead where there is no path and leave a trail.Ralph Waldo Emerson

1a - VL 22 million  F2- IL28B- CT / Inck-Riba- Peg triple therapy 9/15/12 UND 4/8/14  8 wks BT ..3/1/2013 done! 3wks Post UND
Biggyb


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31 more, we getting there Daook.



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58 yo..Relapsed in 99 and again in 2004. Started triple therapy with Victrelis July 22,2012.  genotype 1a. week 8,12,16,24 VL Undetectable..E.O.T -- 6-22-2013,,,EOT + 24., UND. 

SVR !!!

 

~Bob~
Daook


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Way to go 12 step. 

Pull away from the pack along the rail to victory!! 

doh

37 days and a wakeup for me.



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Geno 1a, second time around, stable viral load since 1973, timing is right for new therapy
12Step Guy


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Two days of Riba left after tonight. Seems a little surreal, now what? I'm almost to tired and fatigued to celebrate the milestone (or should I say millstone). 

Heard this in my meeting tonight

Silence is God's first language; everything else is a poor translation. In order to
hear that language, we must learn to be still and to rest in God.
 
 
Thomas Keating
 


__________________

Genotype 1a, IL 28 = CT  Interferon and riba 48 wks in 99, Daily Peg and Riba 18 months in 2007, Started Incivek, Peg, Riba 6/21/12. 4th stage cirrhosis. Last Dart will be May 23 2013.
Biggyb


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32 more days.



__________________

58 yo..Relapsed in 99 and again in 2004. Started triple therapy with Victrelis July 22,2012.  genotype 1a. week 8,12,16,24 VL Undetectable..E.O.T -- 6-22-2013,,,EOT + 24., UND. 

SVR !!!

 

~Bob~
Biggyb


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37 more.



__________________

58 yo..Relapsed in 99 and again in 2004. Started triple therapy with Victrelis July 22,2012.  genotype 1a. week 8,12,16,24 VL Undetectable..E.O.T -- 6-22-2013,,,EOT + 24., UND. 

SVR !!!

 

~Bob~
Dillo


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I think I'm getting where my brain can't count anymore (like it ever could)
All I know is I will be though at the end of July. 77 days.

Funny Vern

I can add to that ton of fatigue if I could get some brain fog cleared. (And I thought just Peg & Riba was going to be easier lol)

__________________

GT 1a Started triple tx with Incivek, Pegasys, and Riba 2-6-2013. UND at 4,6,12,23,& 24 wks EOT 7-26-2013. Probably had Hep C for 20-30 years. Don't really know when I got it.

Biggyb


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38 more, yes it is dragon-on.



__________________

58 yo..Relapsed in 99 and again in 2004. Started triple therapy with Victrelis July 22,2012.  genotype 1a. week 8,12,16,24 VL Undetectable..E.O.T -- 6-22-2013,,,EOT + 24., UND. 

SVR !!!

 

~Bob~
12Step Guy


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Last dart tomorrow night, then 7 days of Riba.

I now know why they call treatment: Slaying the Dragon. Actually they misspelled it, someone forgot to add the a hyphen. It is properly spelled Drag-on and on and on.



__________________

Genotype 1a, IL 28 = CT  Interferon and riba 48 wks in 99, Daily Peg and Riba 18 months in 2007, Started Incivek, Peg, Riba 6/21/12. 4th stage cirrhosis. Last Dart will be May 23 2013.
Biggyb


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You a funny guy Vern, i have a friend here in MI looks and jokes just like you..Laughter is the best medicine....

40 more days.



__________________

58 yo..Relapsed in 99 and again in 2004. Started triple therapy with Victrelis July 22,2012.  genotype 1a. week 8,12,16,24 VL Undetectable..E.O.T -- 6-22-2013,,,EOT + 24., UND. 

SVR !!!

 

~Bob~
Karen


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That's it Vern...time to start your own web based business...posting daily blogs. "Day in the life of Vern" I will be your first customer...I really appreciate your sense of humor.  Thanks-good laugh this morning.  



__________________

Geno Type A1- VL 16.2m - F1-F2 Moderate Fibrosis - Started treatment 4/16/13 Sofosbuvir/Ledipasvir 6 months -  UND week 4 (5/14/13) - EOT 10/1/13 - 12wk blood draw 12/20/13 UND - 24wk/final blood draw March 2014
12Step Guy


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14 days left. Time to starting look for where I left my stamina. Searched the basement and the garage. I just can't remember were I put it last June. Must be brain fog. Not sure what to do if I can't find it. I checked Ebay but none was listed, Amazon didn't have any either.

If you recall I was trying to sell some of my irritability and grumpiness last Fall, hope I didn't accidentally sell the box with stamina. If anyone has any extra, maybe we can work out a trade?  I've got a ton of fatigue that I could make someone a real deal on.

Vern

 



__________________

Genotype 1a, IL 28 = CT  Interferon and riba 48 wks in 99, Daily Peg and Riba 18 months in 2007, Started Incivek, Peg, Riba 6/21/12. 4th stage cirrhosis. Last Dart will be May 23 2013.
Biggyb


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41 more days.



__________________

58 yo..Relapsed in 99 and again in 2004. Started triple therapy with Victrelis July 22,2012.  genotype 1a. week 8,12,16,24 VL Undetectable..E.O.T -- 6-22-2013,,,EOT + 24., UND. 

SVR !!!

 

~Bob~
mallani


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Hi Vern,

I'm mentally taking every pill with you. You and Xeno were there when I needed you most. After my 8week post-Rx ALT went up, I spent 4 weeks rehearsing my post announcing my relapse. 

Whatever happens you know you've tried your best, and that's all you can do. Onya mate.              



__________________

Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
JoAnneh


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Awesome point, Captain 12-step! It's better to try 

and loose than to never have given it a chance.

It could never be a waste to try and save our liver.

Glad you only have 1 shot left.

you certainly have been in my thoughts

encouraging you to the finish line. 

 You have made the journey more bearable for me

and countless others

with your encouragement and great sense of humor



__________________

JoAnne

Genotype 1a, Triple therapy w/Invicek started May 19, 2012

DET 4 wk. UND 2,6,12,24 48 treatment. Achieved SVR 2013!
12Step Guy


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Next to last - #47 done. This one I'm calling Trust. Trust is different from faith and hope. Trust is where I find the strength to move forward. Trust is what causes me to drag my vulnerable imperfect self forward in life. Trust gives the power to both hope and faith.

Hardly a week goes by that someone who knows about this journey I've been on doesn't ask if it is "really worth it", "What if it doesn't work this time", "What are the chances that doing nothing might have been best; rather then dragging myself through another treatment".

If I acheive SVR will that mean it was? If I don't will that mean I wasted the last year? The answer I think isn't if it was or if it did, I suspect the answer is "was I true to myself?" And if the answer to that is "yes, then what else matters"?



__________________

Genotype 1a, IL 28 = CT  Interferon and riba 48 wks in 99, Daily Peg and Riba 18 months in 2007, Started Incivek, Peg, Riba 6/21/12. 4th stage cirrhosis. Last Dart will be May 23 2013.
Biggyb


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46 more



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58 yo..Relapsed in 99 and again in 2004. Started triple therapy with Victrelis July 22,2012.  genotype 1a. week 8,12,16,24 VL Undetectable..E.O.T -- 6-22-2013,,,EOT + 24., UND. 

SVR !!!

 

~Bob~
Biggyb


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47 more



__________________

58 yo..Relapsed in 99 and again in 2004. Started triple therapy with Victrelis July 22,2012.  genotype 1a. week 8,12,16,24 VL Undetectable..E.O.T -- 6-22-2013,,,EOT + 24., UND. 

SVR !!!

 

~Bob~
12Step Guy


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18 more days? Two more darts. I'm ready to start rebuilding. Take up thy bed and walk is starting to have more meaning. Except for me it might be take up your couch and walk.

couch_potato_2047051.jpg

 



Attachments
__________________

Genotype 1a, IL 28 = CT  Interferon and riba 48 wks in 99, Daily Peg and Riba 18 months in 2007, Started Incivek, Peg, Riba 6/21/12. 4th stage cirrhosis. Last Dart will be May 23 2013.
Karen


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LOVE THIS!!! Vern...



-- Edited by Karen on Tuesday 7th of May 2013 08:34:59 PM

__________________

Geno Type A1- VL 16.2m - F1-F2 Moderate Fibrosis - Started treatment 4/16/13 Sofosbuvir/Ledipasvir 6 months -  UND week 4 (5/14/13) - EOT 10/1/13 - 12wk blood draw 12/20/13 UND - 24wk/final blood draw March 2014
mallani


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Hi Mark,

Congratz on your achievement! . Get some rest and get rid of those drugs. Best wishes for the fiture VL tests. Cheers.



__________________

Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
JoAnneh


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Mark, So happy for you! Join me in post
Treatment soon. Been a long road

__________________

JoAnne

Genotype 1a, Triple therapy w/Invicek started May 19, 2012

DET 4 wk. UND 2,6,12,24 48 treatment. Achieved SVR 2013!
Neil_Canuck


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All right Mark, you've done it.

 

Keep Cool and Chive On



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58 yrs, cirrhotic, Genotype 1b 48 weeks Victrelis triple, SOT 7/13/12 victrelis started week 5. Starting VL 4,000,000  Wk 8 33 copies  Wk 24 UND, EOT UND 6 months post Tx DET. The battle goes on.
marktrux


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1 day!



__________________

KCCO

 

 
Neil_Canuck


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43 left if my counting is right,



__________________

58 yrs, cirrhotic, Genotype 1b 48 weeks Victrelis triple, SOT 7/13/12 victrelis started week 5. Starting VL 4,000,000  Wk 8 33 copies  Wk 24 UND, EOT UND 6 months post Tx DET. The battle goes on.
JIme


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I hear you Vern. Mine is pretty calm compared to me. I guess that's the way it's supposed to work. Thank goodness. If we were both like me you'd be visiting both of us at the big house.

Have a great night!



__________________

jim

GT1a, St2 Lv2 last biopsy 2002, VL  11.4m,  start triple tx 9/30/11

VL 470 @4wks.....VL 22,000 @8wks  stopped tx

Round 2-  Started 3/16/12   PSI-7977, BMS-790052, Riba Undetectable day 14

Did 24 weeks Still UND 12 weeks post tx, SVR24!!!!!!! 2/14/13

 

 

 

 

 
Dillo


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Hoping for 84 more days. I'll know sometime in the next week or so.

Last day of Incivek! got a couple of doses I missed still taking.... figured couldn't hurt.

Been clean for over 20 years. Never drank much. Of course I haven't always been the most straight and narrow kid on the block.

Paying for it now I guess. Worked a lot of construction not the most blood born pathogen job in the early days...but it's getting better now.



-- Edited by Dillo on Thursday 2nd of May 2013 12:14:52 AM

__________________

GT 1a Started triple tx with Incivek, Pegasys, and Riba 2-6-2013. UND at 4,6,12,23,& 24 wks EOT 7-26-2013. Probably had Hep C for 20-30 years. Don't really know when I got it.

Biggyb


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52 more days.



__________________

58 yo..Relapsed in 99 and again in 2004. Started triple therapy with Victrelis July 22,2012.  genotype 1a. week 8,12,16,24 VL Undetectable..E.O.T -- 6-22-2013,,,EOT + 24., UND. 

SVR !!!

 

~Bob~
12Step Guy


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Jim what I meant was that in order to be my sponsor, he developed more humility then I have been able to. It is sort of like, if you want something from AA, giving it to others is the best way to obtain it for yourself. Paradoxical isn't it. I was joking about often driving him to the brink.



__________________

Genotype 1a, IL 28 = CT  Interferon and riba 48 wks in 99, Daily Peg and Riba 18 months in 2007, Started Incivek, Peg, Riba 6/21/12. 4th stage cirrhosis. Last Dart will be May 23 2013.
JIme


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lol.....I have become my sponsors sponsor, that's how sober I am.....lol.........yea right!!!!!!

 

I love the sound of the iron gate locking when we are on our way out of the meetings in there. Gives me chills. I spent a few nights in the hoosecow myself. Many moons ago.

Good luck to everybody on the tx countdown. ( sorry for the hijacking...;( )



__________________

jim

GT1a, St2 Lv2 last biopsy 2002, VL  11.4m,  start triple tx 9/30/11

VL 470 @4wks.....VL 22,000 @8wks  stopped tx

Round 2-  Started 3/16/12   PSI-7977, BMS-790052, Riba Undetectable day 14

Did 24 weeks Still UND 12 weeks post tx, SVR24!!!!!!! 2/14/13

 

 

 

 

 
Biggyb


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53 more days.



__________________

58 yo..Relapsed in 99 and again in 2004. Started triple therapy with Victrelis July 22,2012.  genotype 1a. week 8,12,16,24 VL Undetectable..E.O.T -- 6-22-2013,,,EOT + 24., UND. 

SVR !!!

 

~Bob~
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