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Hep C Discussion Forum -> Post Treatment -> Eyes on fire
Post Info TOPIC: Eyes on fire
mallani


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RE: Eyes on fire
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Hi Testiva,

Dry eyes and dry mouth are common symptoms of HCV. The virus seems to like the lacrimal and salivary glands.

Try some lubricants- we have 'Artificial Tears' over here.



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
Huey


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I do not know this to be 100% correct but what I believe is the tissue that the virus fancys is the kind with a lot of a organelle called a mitochondria like the liver but also many other kinds of tissue, the more complex the tissue the more of this organelle it has. So tear ducts and bursa sacks in our joints are also infused with the virons.



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  HCV Genotype 3a , now Psot-Tx was on S/riba. First VL was 5.8 mil on 7-5-13 then "und" at 3.8 weeks. 06/13/14 still und. off meds 3 days back on 7/29 Last pill 08/10/14 SVR+4

 
skewedButNotBroken


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I hope no one minds that I am posting here since I'm treatment naive, but for the last 6 months my eyes have been so dry that I cannot open them for about 5 to 10 minutes every morning when I wake up. I've never ever had dry eyes before. I'm starting to wonder if this is just one of the thousands of ways that this virus affects the body? 



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Diag. with hep c in 1992; A3:F2;  GT 1a; IL28B CT; VL 900k, ALT 150, AST 100 on 8/5/2014; SOT 9/5/2014  S/O ---VL 127 after 6 days; VL detected on day 18 but < 15.; --> UND @ EOT+ 1 year SVR!
TazKat


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I did the eye doc yesterday. think it was tig or mallani convinced to GO!! well no damage from interferon. just irritated in right eye. he did tell me that the sovaldi can cause yellow in the eye. I knew I saw some in that eye the other day.. but everything was fine. so relieved about that. the last two weeks I have had some weird things come up in the ole body. I sit & wonder oh gosh anything next week??  lol  I sure hope not.. biggrin



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TazKat Genotype 1A null responder x 3 riba & iterferon twice, relapsed from Incivek 2012 with only 12 weeks left to do. stage 4 mild cirrhosis 4/25/2014/ started sovaldi riba & interferon.. finished treatment 7/17/14  results 7/25  cleared..

 

 
Isiscat2011


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Ok, here is my new official avatar. 



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Diagnosed in 2011, Incivek triple in 2011, tx discontinued, Genotype 1a, CT, VL 7mill, cirrhosis dx in 2012, age 67, waiting for new DAAs.
jimbob


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Ahh, got it. I understood Huey's avatar and representation, but Isis's went right over my head.

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jimbob: 64 y/o, GT 1A, F1-F2, diagnosed 1996. Since 1970. SOT 3.5 mil VL on 3/10/14 with Sov/Rib/Peg for 12 weeks. Tx naive. UND @ week 4,8,12. EOT 6/2/14.
Huey


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Isiscat2011 wrote:
jimbob wrote:

Speaking of 'pillheads' Isis, I was just checking out your new avatar and trying to decipher exactly what it is telling us....Seems I've seen that color pill somewhere before, but maybe not....

It was just a gag because we were discussing Huey's head which is shaped like a pill.  Tig suggested the shape of Hueys' head was a serious side effect. I agreed and said I've never seen anything like it before while simultaneously putting up another pill head avatar.  

I guess I'm the only one who got my joke!  biggrin   Like that has never happened before.  lol

So, should I keep the avatar or put up a new one?  

 Hay ,, I laughed at it,

if you can't laugh at yourself some time, your having a hard life.  Anyone who spends a thousand dollars a day on pills is a pill head, no way around it.



-- Edited by Huey on Thursday 5th of June 2014 11:52:29 PM

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  HCV Genotype 3a , now Psot-Tx was on S/riba. First VL was 5.8 mil on 7-5-13 then "und" at 3.8 weeks. 06/13/14 still und. off meds 3 days back on 7/29 Last pill 08/10/14 SVR+4

 
Huey


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one pic is my pillhead avitar the other is my eyes, see how puffy they are, kinda burn too.



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  HCV Genotype 3a , now Psot-Tx was on S/riba. First VL was 5.8 mil on 7-5-13 then "und" at 3.8 weeks. 06/13/14 still und. off meds 3 days back on 7/29 Last pill 08/10/14 SVR+4

 
Isiscat2011


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jimbob wrote:

Speaking of 'pillheads' Isis, I was just checking out your new avatar and trying to decipher exactly what it is telling us....Seems I've seen that color pill somewhere before, but maybe not....

It was just a gag because we were discussing Huey's head which is shaped like a pill.  Tig suggested the shape of Hueys' head was a serious side effect. I agreed and said I've never seen anything like it before while simultaneously putting up another pill head avatar.  

I guess I'm the only one who got my joke!  biggrin   Like that has never happened before.  lol

So, should I keep the avatar or put up a new one?  



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Diagnosed in 2011, Incivek triple in 2011, tx discontinued, Genotype 1a, CT, VL 7mill, cirrhosis dx in 2012, age 67, waiting for new DAAs.
Tig


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Wow! Along with the Tuinal, and that item smoldering in the pillhead's fingers explains the subject of this thread... I believe we know what will clear up those red and burning eyes, open a window and use some Visine. Wait a couple hours and your parents will never know what you've been up to.... 



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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Scruffy


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Good Lord!!! Isiscat you have a tuinal for a head. I plead the fith!



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Geno 1a null responder 2004 inter/riba   finished incivek,peg/riba 48 weeks May 17th 2014. undetect weeks 4-12-32.  EOT+7 undetect. EOT+24 SVR!!!!! EOT+!YEAR SVR!!!!
jimbob


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Speaking of 'pillheads' Isis, I was just checking out your new avatar and trying to decipher exactly what it is telling us....Seems I've seen that color pill somewhere before, but maybe not....

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jimbob: 64 y/o, GT 1A, F1-F2, diagnosed 1996. Since 1970. SOT 3.5 mil VL on 3/10/14 with Sov/Rib/Peg for 12 weeks. Tx naive. UND @ week 4,8,12. EOT 6/2/14.
Isiscat2011


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Tig56 wrote:

Yeah, I was going to mention that the size and shape of your head Huey, might be something more serious than a minor side effect. Just saying...

 

 I know what you mean, Tig.  I've never seen anything quite like it.



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Diagnosed in 2011, Incivek triple in 2011, tx discontinued, Genotype 1a, CT, VL 7mill, cirrhosis dx in 2012, age 67, waiting for new DAAs.
Tig


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Yeah, I was going to mention that the size and shape of your head Huey, might be something more serious than a minor side effect. Just saying...

Tig



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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Isiscat2011


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Huey wrote:

Mine are starting to bother me too. my profile picture, you can see how puffy under my eyes, I think it is the summer pollen. 

I noticed you've been looking a little under the weather lately but didn't want to say anything.  

The shape of you head is very attractive, though. 



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Diagnosed in 2011, Incivek triple in 2011, tx discontinued, Genotype 1a, CT, VL 7mill, cirrhosis dx in 2012, age 67, waiting for new DAAs.
Huey


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Mine are starting to bother me too. my profile picture, you can see how puffy under my eyes, I think it is the summer pollen. 



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  HCV Genotype 3a , now Psot-Tx was on S/riba. First VL was 5.8 mil on 7-5-13 then "und" at 3.8 weeks. 06/13/14 still und. off meds 3 days back on 7/29 Last pill 08/10/14 SVR+4

 
mallani


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Hi Kathi,

Good to hear from you. Yes, the dry eyes. This is often mentioned in the list of HepC problems. This is probably an auto-immune or vascular effect on the lacrimal (tear) glands. The amount and quality of 'tears' is reduced, and permanent damage has been noted in the lacrimal glands. 'Dry eyes' is also on the list of Interferon and Riba side effects. I find I have to use 'Artificial Tears' whenever I am out in the wind and don't know whether this is due to lingering effects of HCV or Tx, or just old age. It can be a nuisance but I've had my eyes checked out, and have to live with it. Enjoy life. Cheers.



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
KLG


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I finished treatment almost a year ago but my dry eyes never stopped. Getting worse. This will sound strange but when I wake up at night my left eyelid doesn't open for awhile. Has anyone else had a continuing problem with dry eyes. Did you get any medical advice. I know I need to see my doctor but thought I would ask the board first!

Hope everyone is doing well!

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Geno 3a, stage 3, IL28 cc, diagnosed 94, interferon 1year, relapsed immediately, started RIBA/int on 2/1/13, 4 wk und. Female, age 55, EOT 7/18/13. 4 weeks UND, 12 weeks UND, 6 months UND!!!
Mary Jane


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I bow to you & Malcom +all those 48 weekers, trail doers & re-doers ..... you all are tuff as nails...

I use the Systane lubericating drops,  & cold wash cloth to my eye lids... I've been dealing with this off and on for over 3 mo... & many other lingering sides.. but hopefully with time they will disappear just like the virus... hang in there... dring lots of H20 ...  3...2...1... done!  hugs P & L MJ



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Do not go where the path may lead, go instead where there is no path and leave a trail.Ralph Waldo Emerson

1a - VL 22 million  F2- IL28B- CT / Inck-Riba- Peg triple therapy 9/15/12 UND 4/8/14  8 wks BT ..3/1/2013 done! 3wks Post UND
JoAnneh


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I have never had allergies either!
My eyes feel on fire. I found sites that this is
Side effect.
Malcolm I picked up lubricating drops.
I was using antihistamine drops.
I am taking Benadryl and little Tylenol too.
Thanks for the support everyone.
Makes me wonder will I ever be the same
Just three more dosages of medicine to go

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JoAnne

Genotype 1a, Triple therapy w/Invicek started May 19, 2012

DET 4 wk. UND 2,6,12,24 48 treatment. Achieved SVR 2013!
Bouba


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I have the same sensation though I am a week off Riba.

Could also be a hay fever ... Spring time.

 



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58 yo male, HCV since 1981. Gen 1B (IL28B, CT). Diagnosed 1999,  VL before tx 100'000. Biopsy A2, F3 fibrosis. Naive, SOT (with Incivek) Oct 26, 2012. UND @ week 4, 12, 18, 24, UND 12 and 24 weeks post-RX
Biggyb


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I get that also but i use Visine, i better change up according to Malcom.



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58 yo..Relapsed in 99 and again in 2004. Started triple therapy with Victrelis July 22,2012.  genotype 1a. week 8,12,16,24 VL Undetectable..E.O.T -- 6-22-2013,,,EOT + 24., UND. 

SVR !!!

 

~Bob~
mallani


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Hi JoAnne,

I''m counting down with you. Just use moisturising drops- don't go for the antihistamine/ vasoconstrictor drops like Visine, Murine etc.  Will think of you on Friday (Saturday here). Well done!



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
JoAnneh


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hello Hep C friends,

I have two days of RIBA pills left. 

My eyes are on fire, burning stinging itching.

my lower lids hurt too. It's awful.

any one had this happen? suggestions ?



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JoAnne

Genotype 1a, Triple therapy w/Invicek started May 19, 2012

DET 4 wk. UND 2,6,12,24 48 treatment. Achieved SVR 2013!
Karen


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Hi JoAnne,

I am having the same issue.  Ouch!

I am thinking more allergy related than drug related...not sure-never had allergies.



-- Edited by Karen on Thursday 18th of April 2013 03:04:02 PM

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Geno Type A1- VL 16.2m - F1-F2 Moderate Fibrosis - Started treatment 4/16/13 Sofosbuvir/Ledipasvir 6 months -  UND week 4 (5/14/13) - EOT 10/1/13 - 12wk blood draw 12/20/13 UND - 24wk/final blood draw March 2014
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