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Hep C Discussion Forum -> On Treatment -> Frustrated
Post Info TOPIC: Frustrated
DJ


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RE: Frustrated
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I had a 4 week and 12 week UND and I was told my next virus load test would be 6 months after treatment ends. So I have to wait until January for my next one. I was guessing it was expensive or else they would do it more often.

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Genotype 3.  Treatment started on 1/11/2013 with Ribavirin and Pegatron.  Week 4 UND.  Week 12 UND.  Ended treatment on 6/28/2013.  Six months post treatment 12/04/2013 SVR.
Bloomster


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Hi there, sorry to hear of your frustration - treatment is hard enough.  We didn't get my husband's very first viral load test (at 8 weeks) as the sample was 'damaged' - very annoying. 

BiggyB, hubby is the same as you, had a VL at 24 weeks and none further until he gets to 48 weeks.  They also said they will not be doing any VL tests until 6 months after treatment - absolutely nothing in between.

Anyway, GodsGrl - thinking of you and hope things travel along a bit smoother for you.  Caroline

 



-- Edited by Bloomster on Monday 6th of May 2013 04:57:37 AM

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My husband had genotype 1a, 46yo, started triple therapy (peg/rib/vic) 23rd July 2012, VL prior to treatment 14 million, UNDET 12, 24 weeks, EOT 24th June 2013, EOT +1.5 weeks UNDET, EOT +12 weeks & EOT +27 weeks UNDET; SVR January 2014
Dillo


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Biggyb wrote:
Dillo wrote:

 I don't know about 48 wks. You'd think they would want to know if your UND at the end of treatment but I guess they know they have tortured your body enough by then so it doesn't matter. biggrin

 Oh, he said he will have one done at 48, sorry forgot to mention that..duh

 Your getting short bro. Not  many weeks left. Love the AV

Take care



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GT 1a Started triple tx with Incivek, Pegasys, and Riba 2-6-2013. UND at 4,6,12,23,& 24 wks EOT 7-26-2013. Probably had Hep C for 20-30 years. Don't really know when I got it.

Biggyb


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Dillo wrote:

 I don't know about 48 wks. You'd think they would want to know if your UND at the end of treatment but I guess they know they have tortured your body enough by then so it doesn't matter. biggrin

 Oh, he said he will have one done at 48, sorry forgot to mention that..duh



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58 yo..Relapsed in 99 and again in 2004. Started triple therapy with Victrelis July 22,2012.  genotype 1a. week 8,12,16,24 VL Undetectable..E.O.T -- 6-22-2013,,,EOT + 24., UND. 

SVR !!!

 

~Bob~
Dillo


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Biggyb wrote:
Dillo wrote:

The nurse told me the VL test were expensive and that Insurance was pretty picky about paying for them except at 4, 12, 24 so maybe that's the reasoning. You could always see if you can get one done at Quest or somewhere but Ins may not pay for it.

 I was wondering about that, i haven't had a vl test since week 24 and i am on wk 42..Dr said if your und at 12 and 24 very rarely comes back by wk48..I think it's a money thing..I could have the virus raging through me again..hope not.

 I don't know about 48 wks. You'd think they would want to know if your UND at the end of treatment but I guess they know they have tortured your body enough by then so it doesn't matter. biggrin



__________________

GT 1a Started triple tx with Incivek, Pegasys, and Riba 2-6-2013. UND at 4,6,12,23,& 24 wks EOT 7-26-2013. Probably had Hep C for 20-30 years. Don't really know when I got it.

Biggyb


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Dillo wrote:

The nurse told me the VL test were expensive and that Insurance was pretty picky about paying for them except at 4, 12, 24 so maybe that's the reasoning. You could always see if you can get one done at Quest or somewhere but Ins may not pay for it.

 I was wondering about that, i haven't had a vl test since week 24 and i am on wk 42..Dr said if your und at 12 and 24 very rarely comes back by wk48..I think it's a money thing..I could have the virus raging through me again..hope not.



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58 yo..Relapsed in 99 and again in 2004. Started triple therapy with Victrelis July 22,2012.  genotype 1a. week 8,12,16,24 VL Undetectable..E.O.T -- 6-22-2013,,,EOT + 24., UND. 

SVR !!!

 

~Bob~
Dillo


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The nurse told me the VL test were expensive and that Insurance was pretty picky about paying for them except at 4, 12, 24 so maybe that's the reasoning. You could always see if you can get one done at Quest or somewhere but Ins may not pay for it.

__________________

GT 1a Started triple tx with Incivek, Pegasys, and Riba 2-6-2013. UND at 4,6,12,23,& 24 wks EOT 7-26-2013. Probably had Hep C for 20-30 years. Don't really know when I got it.

Jennifer20


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I'm sorry that you're having such a rough part in your journey right now. Sending you cool A/C thoughts and well-wishes from SoCal!

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GodsGrl


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I agree Malcom, been trying to get Dr. To do vl for months. She said no at 12 weeks is fine. Very frustrated, but shes the Dr. Right. Thanks for the support!! I'll keep trudging forward, there is light at the end of tunnel, right. :)

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Geno Type 3A  Double TX 1-30-13 2 1/2 week labs VL >43 Lab error on 12 week VL no result

 
mallani


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Hi Jeri,

I can understand your frustration. Maybe the Lab. tech misread the form. I once had a Tech. take blood for a Qualitative RNA test instead of a Quantitative one. Is this your first VL since 2.5 weeks- seems a long time. Good luck when you finally get it done. Stay out of the sun. Cheers.



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
GodsGrl


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Got a text from HCV compliance nurse on Friday. She said my Dr. ordered wrong 12 week VL labs, so I've been waiting for 2 weeks to get results and they only go down to 650 VL. So I still dont know if I'm undetected or not. Not sure when they will retest. Tired of shots and pills. My skin looks like crap, my eye lashes are falling out, I cant be in the heat or sun for any length of time. Thats hard living in central Ca. it was 97 today. I am frustrated and need prayer to continue on this journey. Thanks for your support!!



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Geno Type 3A  Double TX 1-30-13 2 1/2 week labs VL >43 Lab error on 12 week VL no result

 
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