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Post Info TOPIC: new member here
Dillo


Senior Member

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Posts: 227
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RE: new member here
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Hi Angie
Welcome to the forum.
My mindset has changed so many times since I first found about my Hep C is isn't funny.
I was tested, double tested, and triple tested ;)
I am glad I waited as long as I did cause at least I got the Incivek and less treatment time. I wouldn't have at first and I was not in a doctors care that knows half as much as the one I see now does.

I'm with Vern, your at the beginning. Read and get all your test done and relax. Once you know more you can make a better decision then.

Hopefully you will get a whole new generation of drugs that are easier to take with less treatment time and without as many side effects if you do need it.

__________________

GT 1a Started triple tx with Incivek, Pegasys, and Riba 2-6-2013. UND at 4,6,12,23,& 24 wks EOT 7-26-2013. Probably had Hep C for 20-30 years. Don't really know when I got it.

AngieV123


Senior Member

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Hi Vern. Thanks for the welcome and reply.

__________________

Type 1a. Had HCV my entire life via blood transfusion. Did peg & riba in 2000, relapsed. Did triple tx with sovaldi in early 2014 & I am now undetected 
12Step Guy


Senior Member

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Posts: 413
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Welcome. I think we all freaked out when the reality of HepC rears it's head. I'd caution you to not read to much into ALT or other blood work. These findings change daily, week, monthly for many reasons. You have your age going for you. And your just beginning the diagnostic phase, biopsy's, ultra sounds, genetic testings. I'd guess that if you do need treatment, it is likely the new generation of drugs will be available to you. Keep posting, keep expressing your concerns, vent if need be. We are all here for you.

Vern



__________________

Genotype 1a, IL 28 = CT  Interferon and riba 48 wks in 99, Daily Peg and Riba 18 months in 2007, Started Incivek, Peg, Riba 6/21/12. 4th stage cirrhosis. Last Dart will be May 23 2013.
AngieV123


Senior Member

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Posts: 160
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Hello. I am a new member but not new to Hep C. I found out that I had it by donating blood in High School. I received a blood transfusion as a baby and that's how I think I got it. I took the treatment in my early 20s and in 6 months, I tested negative. Now, oven ten years later I find that I have it again :(.I'm not sure when it came back. I go for a liver sono Friday. My alt levels are slighly raised at 59.They were only 49 but they skyrocketed after taking fish oil supplements for a few months and are coming back down now. I am terrified to have liver damage since I've had it most of my life and I'm currently 32. I also have two children and I'm praying that they did not get it from birth. I am pretty sure that I've recently had it relaspe because my midwive told me that I did not have Hepatitis during the screening. However,  I will still get my children tested. I'm freaking out about that even though I know the risk is low. I'm pretty much freaking out in general right now. Anyone that can relate to me please feel free to respond. I also have always had migraines. I think they've increased. If bilirubin and ast levels are normal and just my alt is slightly raised would you think that was just inflammation or do you think its possible to have damage? The doc said my viral loads were high. I had a biopsy when I was 20 and there was no damage. .just signs of inflammation. 



__________________

Type 1a. Had HCV my entire life via blood transfusion. Did peg & riba in 2000, relapsed. Did triple tx with sovaldi in early 2014 & I am now undetected 
Loopy Lisa


Guru

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I can imagine your confusion and emotional pain after gaining SVR to only have the virus again years later. I have had this disease probably a good 20 years and as far as I am aware I am still fine. I have a normal sized liver, no visable scarring on ultra sound and all my ALTS are all within the normal range, I did have a raise in 2007, but nothing that suggested anything wrong, as liver ALTS can rise even in non Hep infected individuals (40 -75.) I was diagnosed recently a couple of months ago, but had symptoms for many years, they just never considered looking for Hep C and I never thought I would have it to consider asking for this test.

I was on the I.V.F route planning the first treatments, buying little baby things here and there, and came home with a Hep C diagnoses instead. I am 39 so I've had this probably half my life span and I am still healthy, ALTS are normal, liver size normal (biopsy results Friday.) Being female, having plenty of estrogen and a healthy lifestyle means the disease progresses very slowly in younger women, and I suspect after treatment your liver recovered so technically you are at the beginning again. I can understand your worries, but as soon as you get the all clear with your children, I think you will be a little clearer and this will reduce your stress levels. I can honestly say that although I want this disease gone, life after diagnoses confirmation became normal again. I am not worried about treatment or if I will acheive SVR as I am in good shape and the army of meds on there way something will work. hugs x

 

 

 

 



-- Edited by Loopy Lisa on Thursday 16th of May 2013 12:57:22 AM



-- Edited by Loopy Lisa on Thursday 16th of May 2013 12:58:35 AM



-- Edited by Loopy Lisa on Thursday 16th of May 2013 12:59:58 AM

__________________

Genotype: 3b

VL.�over 15, 000 000

Failed TX 2014: Interferon/Riba.

Cured using Sof/Dak combination.

I can eat cake again! <3 
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