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Hep C Discussion Forum -> New Members Area -> Hello :) Newbie here
Post Info TOPIC: Hello :) Newbie here
marktrux


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RE: Hello :) Newbie here
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Welcome Misfis! And congratulation on getting in on such a promising trial. It's good to see so many new members in on new trials. It means there a great thing coming for all those that need them so much. Keep us all up to date with your progress, many are very interested. And ask any questions you may have, there are many people who want to help.



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KCCO

 

 
Misfis


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I'm a newbie, too.  First time on any chat forum.  Not quite sure how to do it, but I'll figure it out.  Diagnosed in 2009, probably contracted it 35 years ago.  Just started clinical trial with sofosbuvir and lednesvir (sp).  12 week treatment.  I"m 1a, like a lot of us.  Glad to be here!



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genotype 1A,  baseline VL 4,000,000.  ION 3 --12 week sofos/ledis. UND at 4 week.  Probably contracted in early 70's. Diagnosed in Oct 2009.  Stage 1 to 2.  Treatment May to Aug 21st, 2013.  November 19th, 2013-- 12 SVR!!
Cinnamon Girl


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Hi Misfits, welcome!   I`m glad you found us, we`re a friendly group and you`ll soon be feeling at home here!   Well done for getting on a Gilead`s sofosbuvir and ledipasvir trial, that`s great.  We have a section especially for people doing trials, `Clinical Trial Participants`, and you`re very welcome to start a new thread there to post your updates.  If you have a browse through you`ll see we have other members also doing ION -3 trials.  We`ll be looking forward to following your progress. 

All the best of luck...stay in touch!  smile  ~ Jill



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
nurschic


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Hi Amanda and welcome! I am going to be starting treatment this Sunday, but this site has helped me so much in preparing for treatment and questions to ask the doctor! I have great hope and strength from reading the posts. Keep us informed on your progress!



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Dx:2007; Genotype 1; VL 1.4mil, start triple therapy (peg/rib/inc) 6/2/13 (Failed), Harvoni 12 weeks EOT undetected, 6 month EOT UNDETECTED!
JoAnneh


Guru

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Welcome to the forum! It's been huge
Support and world of I go and experience!
I finished 48 weeks triple w Invicek May 19th!
I felt pretty good the first few weeks then it
Wasn't easy. Easier after Invicek.
It's all worth it to save out liver.
Once again, Welcome!!

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JoAnne

Genotype 1a, Triple therapy w/Invicek started May 19, 2012

DET 4 wk. UND 2,6,12,24 48 treatment. Achieved SVR 2013!
Dillo


Senior Member

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Hi Amanda welcome.

I am on the same treatment as you. I don't think I felt the sides for the first few weeks. Maybe I thought I was superman saving my world. Got a bit tougher after that. Better when the Incivek is through.

Hope your tx goes well without a lot of sides. If you have a question there's a lot of people and information here for ya.

 



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GT 1a Started triple tx with Incivek, Pegasys, and Riba 2-6-2013. UND at 4,6,12,23,& 24 wks EOT 7-26-2013. Probably had Hep C for 20-30 years. Don't really know when I got it.

Kellie


Senior Member

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Hi Amanda,
Welcome to the forum. You are among friends - they let me express myself without judgement - its good for the heart. - Kellie



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HCV 1A 1980. Dual tx 2003 -UND at wk 11-discontinued due to severe depression

Started Triple 4/16/13 for 24 weeks

UND wk 4,6,8,12,17 & 24

E.O.T. 9/29/13

EOT + 12 weeks=SVR, and EOT +26 weeks=Cured!
Matt Chris


Guru

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Hello Amanda

Welcome to our group, you will find many helpful souls here. 

Just open up and let the forum help.

Matt



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"And in the end, the love you take is equal to the love you make"

61 year old Geno type A1, F4 Cirrhotic, started 24 weeks on Harvoni 12-17-14 ,EOT-5 week = UND, 8-31-15 =UND , SVR-24 Baby YES! 
lpetie


Newbie

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Hello fellow newbie.



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Amandums


Member

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Thank you for the welcome :) It's comforting to know that other people are going through the same thing, and that I'm not alone in this battle. My starting viral load was in the 3 million range, and I go for my first lab visit this coming Friday. I will post the results soon as I get 'em :) 

Yeah I'm already despising Incivek....I believe it's time to invest in a doughnut for me to sit on. I've never experienced such an uncomfortable feeling in my bum :( But thankfully I just read a sticky post on managing that side effect -- I will be trying some of those remedies for sure. 



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Amanda

25 years old. Genotype 1a, diagnosed in 2008. Started triple therapy May 17th, 2013 - Incivek, Ribavirin, and Interferon.
mallani


Guru

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Hi Amanda,

Welcome to the Forum. Many of us have done or are doing triple therapy with Incivek or Victrelis.  Hopefully we can help with any questions you may have.  The Incivek members have had problems with rash and anorectal issues and will be happy to give advice.  Fatigue is also common associated with anaemia. Good luck and let us know your 4 week Viral Load. Cheers.



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
Amandums


Member

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Howdy all :) I was diagnosed with Hep C in 2008, genotype 1A (lucky me lol). Due to a lack of health insurance, I didn't rush into treatment. I had a few symptoms of the disease, but they were manageable....up until a year ago. After being fed up with the random spells of nausea/vomiting, and feeling exhausted all the time, I was put on a waiting list to see a local GI who helped patients without insurance. I had a liver biopsy and was told my hep c was in stage 2, so it was a good idea to opt for treatment, but not absolutely necessary at this time. Since my current job is very flexible and not very demanding, I figured now would be a good time to give this whole treatment thing a shot. I am currently taking Incivek, Ribavirin, and Inteferon. I had my first shot Friday, May 17th. So I guess I'm going on my 3rd week of treatment. I'm beginning to struggle coping with the side effects, and hope I can find suggestions and support here :) I look forward to getting to know you all! - Amanda 



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Amanda

25 years old. Genotype 1a, diagnosed in 2008. Started triple therapy May 17th, 2013 - Incivek, Ribavirin, and Interferon.
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