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Post Info TOPIC: waiting game????
perry


Veteran Member

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Posts: 73
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RE: waiting game????
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Thanks all for youre kind words. I can prob look back now and see where health spiked and of course put it down to flu virus over the last few years. Also looking back (  dangerous to look back to much I know) there have been periods where my running has been really great and times when I have been really flat and struggling to keep the legs moving - could never work out why!!!! Had a great patch early in the year and the last couple of months have been one of those flat periods ( although still running - or moving somedays - 200 kms per week). Just need to keep looking forward and when the plan of action is in place , deal/work with it. I think in one of my early post I said " I,ve got more ultra marathons to run yet".



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Genotype 3a ; VL 4 million; ALT 168 ; AST 185. recently diagnosed but had it 25 plus years.

02/05/2015 - EOT - 24 weeks of Peg/Riba. VL - und at week 8 . ALT - 26.

Fibroscan - F3

16/05/2015 ; EOT VL Undetected. ALT - 20 ; AST - 35
Kellie


Senior Member

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Posts: 328
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Hi Perry, Welcome!

While trying to decide on treatment I had a few months, but once I made the decision everything went really fast for me. In agreement with JoAnne, it was really important to get mentally prepared and thoroughly familiar with the course of treatment. I think I did ok, but there were a few surprises once I started treatment that I didn't anticipate. Everything is working out great though as long as I keep out of my own waysmile Kellie



__________________

HCV 1A 1980. Dual tx 2003 -UND at wk 11-discontinued due to severe depression

Started Triple 4/16/13 for 24 weeks

UND wk 4,6,8,12,17 & 24

E.O.T. 9/29/13

EOT + 12 weeks=SVR, and EOT +26 weeks=Cured!
JoAnneh


Guru

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Posts: 1077
Date:
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I went theu same slow start!
It took months to get me on triple
Therapy which is frustrating when the
Mind has accepted the challenge.
Realizing treatment and tests will require
A lot of waiting, I settled in and focused on
One day at a time.
I had time to mentally prepared for tx
By being on forum few months waiting to
Start.
I completed 48 weeks and reached
UND at 3 months post tx!!!!
In October I will be tested for the last
Time at 6 month post treatment.
Sit back and be patient and kind towards
Yourself...it's a process.
Glad you both found the forum
It's a world of information and support.
Welcome!

__________________

JoAnne

Genotype 1a, Triple therapy w/Invicek started May 19, 2012

DET 4 wk. UND 2,6,12,24 48 treatment. Achieved SVR 2013!
AngieV123


Senior Member

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Posts: 160
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It's definitely is a waiting game. I saw my specialist July 1st..then had to come back after blood work just to come back again to see a nurse and I still have another appointment to go until I start treatment IF the insurance company doesn't want any more tests, that is. I got my ultrasound done early June. I thought I'd be on meds by now. The tired thing and abdominal discomfort is very common..especially if you have had it a while. I have had it my entire life and the last three years or so I've been getting symptoms.

__________________

Type 1a. Had HCV my entire life via blood transfusion. Did peg & riba in 2000, relapsed. Did triple tx with sovaldi in early 2014 & I am now undetected 
Cinnamon Girl


Guru

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Posts: 5629
Date:
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Hi Perry, welcome, I`m glad you decided to join us!  A waiting game is a good way to describe it, I think most of us here can relate to that, especially when it comes to waiting for results!

Hep C can effect people in various ways, and some have no symptoms at all, although tiredness and soreness round the abdomen are fairly common.  Many people do find they feel a lot better in general once they`ve successfully completed their treatment.

Let us know when you have more info, you can be sure of getting plenty of support and friendly advice here, so feel free to ask any questions.

Best of luck, hope you don`t have to wait too long! 



__________________

Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
perry


Veteran Member

Status: Offline
Posts: 73
Date:
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Hi all. Been lurking for a while and reading all the pretty inspiring stuff on here. Still waiting on specialist apptmt - the health system works in slow motion!!!. Had ultrasound last Monday - which was ordered before having seen specialist_ so prob wont know results till I see him ( hopefully within the month).  Interesting since I know about the HepC now I tend to read into prob to many symptoms???? Tiredness ( sleep for about 10 hours a night - which is unusual for me). a lot of nausea, soreness around the abnomin etc. Boy have I got a craving for chocolate as well - own Dr told me to take chocolate with me when I,m running - I,ll keep him on. As said I,ve prob had HepC for at least 25 - 35 years and I,m pretty sure the type will be in the 1 range ( VL 4 mil - so in medium range). ALT and AST ranged between 150 and 190. Loved reading all the posts and am learning heaps - on wit



__________________

Genotype 3a ; VL 4 million; ALT 168 ; AST 185. recently diagnosed but had it 25 plus years.

02/05/2015 - EOT - 24 weeks of Peg/Riba. VL - und at week 8 . ALT - 26.

Fibroscan - F3

16/05/2015 ; EOT VL Undetected. ALT - 20 ; AST - 35
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