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Hep C Discussion Forum -> On Treatment -> Walking on egg shells...
Post Info TOPIC: Walking on egg shells...
Kellie


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RE: Walking on egg shells...
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Yay!smile



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HCV 1A 1980. Dual tx 2003 -UND at wk 11-discontinued due to severe depression

Started Triple 4/16/13 for 24 weeks

UND wk 4,6,8,12,17 & 24

E.O.T. 9/29/13

EOT + 12 weeks=SVR, and EOT +26 weeks=Cured!
sheescraftee


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Thanks again. I contacted my husbands nurse and she will discuss it with him at his next appointment. She said she was glad I made them aware of the situation because yes, we do as the care taker have to become the critical thinkers because obviously when medicine induces side affects, sometimes the patient does not even know or understand what is happening or how they are acting. Patience, love, and support will get us through this. And God. I just have to remember to truly not take anything personal

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2willy


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treatment is hard and it did cost me my 20 year marriage, she never reached out and still I do not Know all the details only that she is gone and with some Lesbians for her support, glad you are communicating it does get better and for me I have returned back to who I once was and miss the chance to show the effection and compassion sad but I am glad for you and him that you are stronger and willing to talk about it with healthy people

bill emma and raven



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Geno type 1  rib and peg September 2012 , 5 weeks tripple and viral down to < 15 und april Aug 25 finished stay at peg 3 rib and eprex + blood transfussion finished treatment Aug 25 2013
Loopy Lisa


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I think one thing most of us don't consider is who supports the people that support us. Make sure you have someone to give you a hug and to check if you are ok. It is OK to feel upset, we all would with the shoe on the other foot. I had a couple of temper outbursts quitting smoking, I told my husband that is probably what Riba rage is like. He asked if he can move out lol! ;) x



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Genotype: 3b

VL.�over 15, 000 000

Failed TX 2014: Interferon/Riba.

Cured using Sof/Dak combination.

I can eat cake again! <3 
sheescraftee


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Thanks everyone!!!! I especially like the dart gun tranquilizer idea!!! I was riding in the car with my husband yesterday and I finally just had to tell him how bad it has become. He had been snapping at me all day long. I told him he just had to hear me out and let me tell him how much it is affecting me and how bad it has been the last two weeks. I told him his next appt he needs to bring it up to his Dr. He has an AMAZING Dr and all the men and women at the office are just a blessing from God. We were so lucky to find them. I know he is not trying to react this way and I know it is from the meds and the sx. I just also know that at some point as his care taker and out of concern you have to say and do something. We have made it this far and I am not going to let anything happen. Thank you all so much for your kind words and support!!!! Wish me luck and pray that I don't have to buy the dart gun!!!!! Hahahaha

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12Step Guy


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Based on my experience with the crud, here are two recommendations:

Antidepressents

or

unhcarted_2_tranquilizer_gun_by_officernealy1000-d4m3fzx.jpg



Attachments
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Genotype 1a, IL 28 = CT  Interferon and riba 48 wks in 99, Daily Peg and Riba 18 months in 2007, Started Incivek, Peg, Riba 6/21/12. 4th stage cirrhosis. Last Dart will be May 23 2013.
Terry


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Having just gone through some of what you describe the best thing for me was that I had a Man cave where I could go and hide and just watch the TV. At time it feels almost like you are claustrophobic and things get in the way or you feel you need space. So give him so space so he can work things out on his own.



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Geno Type 1a stage 4 cirrhosis EOT 52 weeks SVR !!
Kellie


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I'm sorry about what you are going through - my husband went through a lot with me - I was a handful and more - What the other members are saying is good and true.

The behavior of your husband is directly from a side effect from the medicine and should be treated as so, just like the rash.

The medicines are strong and effect the physical & mental. Try your best to explain this to your husband, so he can report this sx to his doc.

Severe depression and anxiety are reasons for doctors to stop treatment. It happened to me in 03 and almost this time around. It would be good to make sure this gets addressed.

You guys are in this together. My husband had to critically think for me much of the time as my judgement was way off. Thank goodness. i wouldn't have been able to make it through without his help.

 



__________________

HCV 1A 1980. Dual tx 2003 -UND at wk 11-discontinued due to severe depression

Started Triple 4/16/13 for 24 weeks

UND wk 4,6,8,12,17 & 24

E.O.T. 9/29/13

EOT + 12 weeks=SVR, and EOT +26 weeks=Cured!
Tig


Admin

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Posts: 9284
Date:
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If you haven't discussed your feelings with him directly, I would consider it. If he's aware of his issue by posting here, then he has to know it will also be affecting you and your son. He needs to hear it from you and he should address the problem with his doctor. There are things that can be done and an anti depressant may be required. They can make a world of difference. It is a difficult road at times, but your health and welfare are just as important! Seek the assistance you need now, you'll feel better for it. Good luck, there are better days ahead!



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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JoAnneh


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Antidepressant is what I needed!
I hope he will talk to his doctor and get
Help

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JoAnne

Genotype 1a, Triple therapy w/Invicek started May 19, 2012

DET 4 wk. UND 2,6,12,24 48 treatment. Achieved SVR 2013!
Cinnamon Girl


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Hi sheescraftee,

Sorry to hear things are getting so difficult for you and Brian, and we heard from him recently that he was struggling with the mental side effects.  You`re certainly not crazy and you`re not alone in feeling like this, unfortunately it`s a common problem for partners and spouses.  The treatment drugs often do cause high levels of irritability and bad temper, commonly known as `Riba rage`, and it`s not surprising that you`re feeling so worried and depressed.  

I`m afraid there`s no easy answer to your questions about the best way to deal with the situation as everyone reacts differently, but it`s probably a good idea to give each other some space whenever possible.  Do you have anyone else who could help out when Brian`s mum goes home?  It must be hard for you working and having your young son to look after, and you`re probably tired out on top of everything else.  Make sure you look after yourself as well as everyone else, you need to stay strong. I hope things start getting easier soon.

Here`s a discussion thread on this topic you might find helpful to read...

http://hepcfriends.activeboard.com/t44044399/for-those-with-riba-rage-who-cant-get-along-with-their-loved/

 



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
sheescraftee


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Posts: 7
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My husband just officially completed week six of his triple therapy. I have not posted on here in a while just from being so busy with everything but check in regularly to the posts. I am really starting to get a bit depressed from his mood swings an him lashing out towards me. It has gotten pretty bad in the last two weeks. I know that I am not supposed to take any of this personally, but it feels like a personal attack when everyday he is getting upset at me for something! I have been told off for pretty much everything and that I am not a happy person and that I don't enjoy life, to not driving correctly. I cry at work because it is the only place where he and my soon to be 4 year old son won't see me and it is my only escape. I am so scared for when his mom leaves to go back home since she has been with us for the past month and a half. He tells me I am purposely arguing with him even if I just don't agree with him on something or have a different view. I feel like I am walking on egg shells and I can't even be me anymore. Do I just agree with everything so he doesn't get upset? Do I just not say anything? But then he gets upset if I don't respond and that I am being rude. Some else that is a care provider and a spouse please tell me this gets better or that this is normal. I just need to know that I am not going crazy.

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