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Post Info TOPIC: Speech problem
newmex


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Speech problem
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-- Edited by newmex on Monday 2nd of December 2013 04:14:56 AM

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John
Bloomster


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Hi JoAnneh,

Congratulations on making SVR!  I was so pleased to read this.  All the very best!  Caroline



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My husband had genotype 1a, 46yo, started triple therapy (peg/rib/vic) 23rd July 2012, VL prior to treatment 14 million, UNDET 12, 24 weeks, EOT 24th June 2013, EOT +1.5 weeks UNDET, EOT +12 weeks & EOT +27 weeks UNDET; SVR January 2014
ucbgal


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funny you mentioned speech problems...in the past 2 weeks the exhaustion has zapped me,i believe it's a combo of low hemo & white blood cells.

recently i started stuttering occasionaly, communicating  and having to pause to refresh my memory. also i totally forgot 2 important things. one of them almost caused major damage in my tub and took 1/2 a day to resolve.  i notice it happens most during late afternoons when i need to rest. the speaking part is quite embarrassing considering my backround. 

considering all the sx we go through this one is a piece of cake as long as it returns back to normal.

sandy,ucbgal

 



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JoAnneh


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I certainly am appreciative for your feedback.
2Willy you made me laugh!
Dr M, you always make me feel safe and sound!
Horsetrader, I will just use wrong words
Thinking I am using the right word.
Also, I can forget in middle of conversation
The point I was going to make.
Tig, hopefully this will pass for us.
Cinn, thanks for letting me know
It takes time to heal from a brutal
48 weeks of treatment.
The speech problem is not constantly
So maybe the mind is last in the healing.
Hopefully it is not from having chirosis.
I love this forum

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JoAnne

Genotype 1a, Triple therapy w/Invicek started May 19, 2012

DET 4 wk. UND 2,6,12,24 48 treatment. Achieved SVR 2013!
Cinnamon Girl


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Hi JoAnne, I wouldn`t be surprised if this is at least partly due to the exhaustion and worry of having one of your offspring ill and in hospital, it must have been a very trying time for you.  As Malcolm said, it can take a year or two to recover from the ravages of treatment, and for your body to adjust and start to recover and repair from all those years you had an active infection. 

I`m about two and a half years post tx now and my physical and cognitive health still seems to be improving, although it hasn`t happened in a straight line, I`ve had many setbacks along the way.  I didn`t do 48 weeks, although I`d had Hep C for a long time, like you, before I cleared the virus, and my 24 weeks really knocked me about.  I still have episodes of brain fog and confusion, especially when I`m tired or stressed...although in my case I mostly put it down to my age!  wink

Take good care of yourself, JoAnne, and try not to worry.  You`ve battled through a tremendous fight to achieve your SVR, so be patient while you heal!  xx  smile



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
2willy


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I am not making light of your situation, stress does cause problems with speech but you are lucky because you are not male, it seems males especially me have had that problem of not saying the right word at the appropriate time,especially when talking to the female gender, at least that is what I have been told on numerous times by my former spouse ha ha



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Geno type 1  rib and peg September 2012 , 5 weeks tripple and viral down to < 15 und april Aug 25 finished stay at peg 3 rib and eprex + blood transfussion finished treatment Aug 25 2013
mallani


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Hi JoAnne,

Your body has been through 48 weeks of hell. It can take 1 or 2 years to get back to normal. Don't worry about it and get plenty of rest. Of course, get it checked out if it gets worse, but it will sort itself out.cheers XX



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
Tig


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I've had the problem since the second month of treatment and with a previous nursing background, I agree with your husband that it shares similarities with patients that have neurological issues. After the constant references to "Brain Fog", I've accepted it as that and won't be too concerned about it until I'm sure that I've cleared all of the meds from my system. My doc seems to think it's also medicine related and says the same thing, wait... So for the time being, know that you're not alone and this is another thing that will be corrected in time! One day at a time!



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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JoAnneh


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I have achieved SVR, I am 6 1/2 months post treatment.

I am having difficulty saying the right words at times during 

conversations. My husband said it's like a stroke victim.

Its scary and embarrassing. This happen while on treatment

and has really been happening the last few days.

Could it be from exhaustion as our youngest was in the hospital.

anyone else having this problem.

thanks for feedback



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JoAnne

Genotype 1a, Triple therapy w/Invicek started May 19, 2012

DET 4 wk. UND 2,6,12,24 48 treatment. Achieved SVR 2013!
hrsetrdr


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Hi JoAnne,

When you refer to  "having difficulty saying the right words at times during conversations"  do you mean that you find yourself searching, and kind of pause while "trying out" the wording or phase you're composing in your mind?  That sounds like the difficulty I have been having; face-to-face conversations are a bit more demanding, but I sometimes have a bit of trouble composing written communications as well.        You mentioned being exhausted, I know from having worked 'graveyard' shifts that fatigue and lack of sleep sometimes affected my ability to verbalize my thoughts smoothly, which is a lot like the residual 'mind fog' that I still experience.  Hang in there, SVR is sweet, sometimes post tx life has a few potholes that haven't been filled in yet. 
 

gosvr.jpg        waveye.gif   waveye.gif  waveye.gif

 

 



-- Edited by hrsetrdr on Saturday 26th of October 2013 03:57:27 AM

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"hrsetrdr"=Tim

Treatment halted on Aug.8,2012 due to vision problem.  6 month post tx labs

Aug.2013 SVR

Be strong when you are weak, brave when you are scared, and humble when you are victorious.
- Unknown

 

 
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