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Hep C Discussion Forum -> Post Treatment -> Followup liver imaging
Post Info TOPIC: Followup liver imaging
mallani


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RE: Followup liver imaging
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Hi Suzan,

Always good to see the liver and spleen decrease in size in cirrhotics.  Don't worry about gallstones- I have watched mine grow for the last 10 years. You can always get them out if they cause problems, but big ones are usually silent. They are very common in cirrhotics, probably related to concentrated bile.  Glad to hear you've got the extra 6 weeks- it's good insurance. Cheers.

 



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
suziq


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Had my scan today.  The person who did the scan shared some with me.  Compared to my April scan---my liver is shrinking (she said considerably) and my spleen is now normal--it was swollen in April.  Guess the meds are working-12 weeks behind me--six weeks to go to EOT.  Said to discuss my gallbladder with the doctor, but , yes, I have gallstones.   



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Geno 1A  Age 82 Treatment naive Cirrhotic Told I had liver disease in 1966. Diagnosed as Hep C 1999.Started Merck clinical trial with Riba on 9/9/2013 Week 1 and 2 <25  Weeks 4, 8, 12,16,18 UND.  EOT Jan 14,2014  EOT +12 UND   JULY 1 2014 EOT+24= SVR
Bloomster


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That all sounds very positive news Malcolm. Very happy you're travelling along so well. Caroline

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My husband had genotype 1a, 46yo, started triple therapy (peg/rib/vic) 23rd July 2012, VL prior to treatment 14 million, UNDET 12, 24 weeks, EOT 24th June 2013, EOT +1.5 weeks UNDET, EOT +12 weeks & EOT +27 weeks UNDET; SVR January 2014
suziq


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Went in for my 12 week (during treatment) appointment yesterday. I have 6 more weeks.  I have been having pain behind my right rib cage for a couple of weeks.  I go for a scan tomorrow to see what might be causing pain.  My initial scan for trial(April 2013) showed gallstones so the study doctor wants to be sure it is not something urgent.  We discussed follow up scanning and she felt --as does Mallani --that I should have a scan every six months after treatment.  I would not have asked if I hadn't read this post from Mallani.  Thanks.

Fun appt--Coordinator said she just received a call from someone on a trial to see if he could drink alcohol over the holidays.  I'll post lab results on Merck treatment thread when I get them.

 



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Geno 1A  Age 82 Treatment naive Cirrhotic Told I had liver disease in 1966. Diagnosed as Hep C 1999.Started Merck clinical trial with Riba on 9/9/2013 Week 1 and 2 <25  Weeks 4, 8, 12,16,18 UND.  EOT Jan 14,2014  EOT +12 UND   JULY 1 2014 EOT+24= SVR
Tig


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Hi JoAnne, I'm so happy to hear your comforting news! We have to keep those positive thoughts flowing, especially among each other! These results are just the first of many great one's to come. Always be strong and trust God to be there now and into the future... xo



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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newmex


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Congratulations JoAnneh, looking back over some of your posts I can see you have certainly had your share of struggles, Am very happy its all paying off for you. Heres to hoping it just gets better and better!

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John
Cinnamon Girl


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There you are, JoAnne, no need to worry!  Great news, very pleased for you!  xx



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
mallani


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Hi JoAnne,

Good news. Relax, life is good. Cheers.XX



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
Matt Chris


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Hey JoAnneh

That just makes me smile, makes me think of that Bobby Mcferrin song "don't worry be happy"

Thanks for the good news.

matt



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"And in the end, the love you take is equal to the love you make"

61 year old Geno type A1, F4 Cirrhotic, started 24 weeks on Harvoni 12-17-14 ,EOT-5 week = UND, 8-31-15 =UND , SVR-24 Baby YES! 
JoAnneh


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Love ya Sandy! Happy happy!:)

hang in there girl! 



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JoAnne

Genotype 1a, Triple therapy w/Invicek started May 19, 2012

DET 4 wk. UND 2,6,12,24 48 treatment. Achieved SVR 2013!
ucbgal


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joanneh,

"if you're happy & you know it clap your hands"

sandy,ucbgal



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JoAnneh


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My ultra sound came back with no
Abnormalities! Thankful! Xxoo

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JoAnne

Genotype 1a, Triple therapy w/Invicek started May 19, 2012

DET 4 wk. UND 2,6,12,24 48 treatment. Achieved SVR 2013!
ucbgal


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wow how did i ever miss this post & not congratulate you.  no inflammation and a decrease in the size of your liver is awesome news! you worked so rigorously hard to achieve these results that these results become so much more meaningful.

thank you for all you've done for this forum & all the wise advice you've given me.

sandy,ucbgal



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mallani


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Hi JoAnne,

I'll be thinking of you!  Don't worry, you'll be fine.  Let us know the results. Cheers.XX



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
JoAnneh


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Malcolm,
I go Monday for my six month
ultra sound that I do the rest of my life
Since I am Cirrhotic.
My friend who has liver cancer went
To get ultra sound and technician reported
All was well. The MRI found the cancer.
I know you and Tig tell me it matters who does
The ultra sound.
How cool to be radiology doctor and get
To read everything! What a blessing
You are to us.
So glad we made it to SVR!
I don't have the energy to fight
anymore!
So happy you are doing great!
You are a hero in so many ways.


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JoAnne

Genotype 1a, Triple therapy w/Invicek started May 19, 2012

DET 4 wk. UND 2,6,12,24 48 treatment. Achieved SVR 2013!
2willy


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great news and you sounded happy, hope you continue with good news and thanks for all the support to me and this forum

bill emma and raven



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Geno type 1  rib and peg September 2012 , 5 weeks tripple and viral down to < 15 und april Aug 25 finished stay at peg 3 rib and eprex + blood transfussion finished treatment Aug 25 2013
Terry


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Great news Malcolm you sound in great shape now. It's nice to see the odds in our favor for once and one by one people are clearing this thing.  You take care and keep us informed.



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Geno Type 1a stage 4 cirrhosis EOT 52 weeks SVR !!
Matt Chris


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Hey Malcolm

Good news feels good, looks good and reads good.

And for you Malcolm you can actually look, read and understand radiology imagines it must very gratifying. Thank you you giving hope and encouragement for all us cirrhotic patients yet to be cured and cured ones.

matt



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"And in the end, the love you take is equal to the love you make"

61 year old Geno type A1, F4 Cirrhotic, started 24 weeks on Harvoni 12-17-14 ,EOT-5 week = UND, 8-31-15 =UND , SVR-24 Baby YES! 
Biggyb


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Awesome news Malcolm, you really deserve it.



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58 yo..Relapsed in 99 and again in 2004. Started triple therapy with Victrelis July 22,2012.  genotype 1a. week 8,12,16,24 VL Undetectable..E.O.T -- 6-22-2013,,,EOT + 24., UND. 

SVR !!!

 

~Bob~
JIme


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That's great news Malcolm. It feels great to hear that news for you.



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jim

GT1a, St2 Lv2 last biopsy 2002, VL  11.4m,  start triple tx 9/30/11

VL 470 @4wks.....VL 22,000 @8wks  stopped tx

Round 2-  Started 3/16/12   PSI-7977, BMS-790052, Riba Undetectable day 14

Did 24 weeks Still UND 12 weeks post tx, SVR24!!!!!!! 2/14/13

 

 

 

 

 
Loopy Lisa


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Congratulations on a great result. I can't imagine what it is like to have cirrohis but it sounds like you are in good hands. :)



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Genotype: 3b

VL.�over 15, 000 000

Failed TX 2014: Interferon/Riba.

Cured using Sof/Dak combination.

I can eat cake again! <3 
suziq


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Hi Malcolm,

That is wonderful!  So glad you have access to latest technology and understanding of what it means.  Your sharing that your liver is getting better less than a year into SVR brings hope to those of us with cirrhosis.  And your suggestions are very helpful. 

SuziQ



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Geno 1A  Age 82 Treatment naive Cirrhotic Told I had liver disease in 1966. Diagnosed as Hep C 1999.Started Merck clinical trial with Riba on 9/9/2013 Week 1 and 2 <25  Weeks 4, 8, 12,16,18 UND.  EOT Jan 14,2014  EOT +12 UND   JULY 1 2014 EOT+24= SVR
Cinnamon Girl


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This is very good news indeed, Malcolm, and how amazing for you to be able to get such detailed information!  Having access to the latest MRI equipment is wonderful.  Very encouraging for many others too, especially those with cirrhosis.  Very pleased for you, you`ve worked so hard to achieve such a turnaround in your health!



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
newmex


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Good news Mallani, congrats on the improving health. And thanks for sharing. Its amazing how fast the technology and the drugs are changing. Seems like I learn of  advances every day on here. Cheers to you my friend, and heres to hoping it gets better every day!



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John
Tig


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That sounds like great news Malcolm! I'm very happy for you and so glad you've got the best equipment and doctors available when it's most important. I wish you continued good news and following seas! Cheers to you friend!



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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mallani


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Hi all,

Had my post SVR followup MRI today.  My old practice has just installed the latest Siemans 3T machine, and the results are breathtaking. The same Radiologist has reported my liver imaging with Ultrasound, CT and MRI for the last 10 years.  I was able to sit in a room with a bank of monitors, and review my old studies, which are kept on disc.

My haemangioma is unchanged, and the liver is 1.5 cm smaller. The spleen has also decreased by 1 cm. The previous fatty infiltration has gone, and the liver parenchyma is completely normal.  No sign of the dreaded HCC, and the Radiologist said she would report it as normal, without knowing my history and without the old studies.

She said with the new machine and new sequences, she would be 100% confident in differentiating a benign lesion from an HCC. I am fortunate in that I can chose my Radiologist and where I go for Imaging. For those post-SVR patients that choose to be followed up, it's important to have any old films for comparison, and to try to get the study done in a Radiology practice that is large and modern, and specialises in liver disease. She wants me to go back in 6 months for an Ultrasound, which she will check, and will do another MRI if not satisfactory.

The latest thoughts about followup only apply to the F3's and F4's. The incidence of HCC is greatly reduced after SVR, but 6 monthly Imaging is still recommended. Ultrasound is adequate for most patients, but it's obviously up to the individual how careful they wish to be. It is a pain, but I wouldn't rely on AFP's.

I'll get a repeat Fibroscan next month, and hopefully it will have dropped. Cheers.



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
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