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Richstar


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RE: Hi, New to forum
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Hey slickwilly,

My insurance has been paying for my off-label treatment of Solvadi/Olysio due to the fact that the peginteferon/Ribavarin did not work on me. Ribavarin also caused me to Break out really bad with a rash. These new meds are powerful as i am coming to a close with my treatment in 4 days i have been undetected since week 6. The only side effect i had was a lil insomnia. i Stayed out of the sun as to not get any rashes from olysio. If you get approved make sure you stay on top of your reorders way ahead of time as not to cause a disruption in you tx. Take Care and GB..Stay focused :o)



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Cinnamon Girl


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slickwilly wrote:

i am wondering is insurance covering sovaldi and olysio together my doctor says she does not know if they will i as on peg rib 12 wks und had to stop due to retinopathy now hope to take treatment without interferon

Hi there William, welcome to the forum!

Sorry to hear about your previous treatment experience and problems with retinopathy, and it`s perfectly understandable that you`ll need to avoid interferon next time round.  We do have several members here already on treatment with the Sovaldi/Olysio combo and although some have had difficulties with getting insurance approval, on the whole this is combo is being covered. 

We do have an ongoing discussion thread for people doing this new off-label treatment and there is quite a lot of info there relating to insurance if you`d like to have a read through.  Here`s a link to it...

http://hepcfriends.activeboard.com/t56648749/would-those-taking-off-label-sovaldiolysio-with-or-without-r/

There is also list of `Patient Assistance Programs` in our Knowledge Base which you might find helpful and I`ll give you a link to that as well...

http://hepcfriends.activeboard.com/t56904226/payment-assistance-programs/

I expect other members will be able to share their experiences with you.  Best of luck!  smile

 



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
slickwilly


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i am wondering is insurance covering sovaldi and olysio together my doctor says she does not know if they will i as on peg rib 12 wks und had to stop due to retinopathy now hope to take treatment without interferon



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Richstar


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We'll i am about to complete my 9th week on Sovaldi and Olysio tx. Results week two were vl count down to 383 from 8 million. Week four results i was undetected with liver functions within normal range. Week 8 still undetected with all liver functions in normal range. Bilirubin was 14 before tx now .09.

      Only side effects i have experienced has been red eyes but not so bad. 3 weeks left to go and then 4 weeks clearing my system of Olysio. I have been staying indoors to avoid exposure to sunlight. The times i have went out to Dr's office i have covered up like a mummysmile. Dont want to take chances.

 

 

 

 

Geno type 1a Diag. July/2013 Vl ct 8 million. Started tx peg/rib/Vic...Null responder week 5...stopped tx.Started Sovaldi/Olysio without Riba Jan 1,2014



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mindovermatter


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Thats awesome news Richstar,

You look to be well on your way to being 'cured'.

Cheers!



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31 year old Indian

Starting viral load 2.3 million

Started treatment: 31/12/2013 with pegylated interferon and Ribavarin.

Fibroscan score : 5.3 kpa

GT : 3

EOT: 16th June 2014
Matt Chris


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Hey Rich

Congrats on your results it was quite a big drop in viral load , that indicates that your responding very well to the Meds. 

Keep on adhering to your Meds schedule don't miss or forget any days and all should go well.

Pulling for you  together

Matt  



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"And in the end, the love you take is equal to the love you make"

61 year old Geno type A1, F4 Cirrhotic, started 24 weeks on Harvoni 12-17-14 ,EOT-5 week = UND, 8-31-15 =UND , SVR-24 Baby YES! 
Richstar


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Ty Tig,

I appreciate the prayers, I have kept the Faith and continue to stand in the Word. I will keep you all updated and i will continue to keep all who share the same battles in my prayers. Blessings brother.



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Richstar


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Ty Dustbear,

I nearly passed out trying to hold my scream. All i could say was ty Lord. I have gained 10 pounds and im eating like a horse but watching what i eat also. I appreciate your rejoicing in my victory. God Bless you.



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Tig


Admin

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Hey Richard,

All I can think to say right now is "kewl beans" man!!! That's a big WOOT brother! Those initial results are fantastic and I'm really happy for you. I believe it's a sign of really good things to come. Sounds to me like God heard your prayers! Keep praying for success and if you don't mind, I'll say one for your continued success as well. Good luck!

Best,  Tig



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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dustbear


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Richstar wrote:

 Hi Tig ....Well got off the phone with my doc,

Blood work results after 2 weeks on Sovaldi & Olysio treatment, Viral load count at 383 down from  8 million. Bilirubin down to normal from a 14, liver functions normal....ill know more once i see her next week. will keep every one posted. Blood work was done on January 15th. I  complete 4 weeks on tuesday the 28th.

 I had to reread that part about '383 down from 8 million'!  It made me scream with joy! What quick results after only 3 weeks.

 I am sooo happy for you! I hope the rash is better and you will be successful!



__________________

Geno 1A, since 1981. SOT 1/2013   TX stopped 11/2013 in week 45/48 due to Myositis & Interstitial Lung Disease. Completed 94% of Peg-Inter dbl TX, UND since week 4.  SVR 4/2014!  Still SVR after 4+ yrs!

"Day by day, step by step, breath by breath"
Richstar


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 Hi Matt ....Well got off the phone with my doc,

Blood work results after 2 weeks on Sovaldi & Olysio treatment, Viral load count at 383 down from  8 million. Bilirubin down to normal from a 14, liver functions normal....ill know more once i see her next week. will keep every one posted. Blood work was done on January 15th. I  complete 4 weeks on tuesday the 28th.



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Richstar


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 Hi Tig ....Well got off the phone with my doc,

Blood work results after 2 weeks on Sovaldi & Olysio treatment, Viral load count at 383 down from  8 million. Bilirubin down to normal from a 14, liver functions normal....ill know more once i see her next week. will keep every one posted. Blood work was done on January 15th. I  complete 4 weeks on tuesday the 28th.



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Tig


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Hi Richard,

Thanks for the return message! You have really been squeezed through the wringer a few times Brother. I'm sorry you had to suffer through that pain and emotional shock to your mind and body. It sounds to me like you've got a competent, caring medical team and you're a lucky man for that by itself. I think you should continue to believe in them and yourself, a positive attitude makes a big, big difference. I'm glad you're here and hope you plan to stay with us. We not only give support, but we need it too. A positive influence here can help people in many ways, so I look forward to seeing you on the forum! Good luck buddy!

Tig

PS: I removed that double post you left below, in case you were wondering where it went!



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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Richstar


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Ty Matt.smile I am glad to finally be on a forum too. I have been telling so many people to get checked too....every opportunity i get i will testify about this event in my life. Hep C may be a silent killer but we will be loud and clear biggrin



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Matt Chris


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Hello Richstar

Quite a journey for you,  but sounds like your spirit to persevere will carry you through the tough times. We all are pulling for your system to react well to the news Meds.

Keep in contact we can help.

matt



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"And in the end, the love you take is equal to the love you make"

61 year old Geno type A1, F4 Cirrhotic, started 24 weeks on Harvoni 12-17-14 ,EOT-5 week = UND, 8-31-15 =UND , SVR-24 Baby YES! 
Richstar


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Thanks Tig56

Yes i was stage 1 in July Mild in inflammation with fibrosis. Those results came after a biopsy was performed . I had my gall bladder removed at the same time and they also performed an ECRP i believe to look at my biliary ducts. My bilirubin levels were high and i was developing yellow jaundice. After being released from the hos[ital i was improving and they were monitoring my levels hoping to keep me from having to use the triple ****tail treatment but after 6-7 weeks i started to get sick , nauseaus all the time and losing weight fast. i was hospitalized and given all kinds of tests. They were trying to determine what was causing my high bilirubin levels. Finally sent home after a week but after 2 weeks i was back again that time a new biopsy was done and i was at stage 3. Doc started me on peg and riba for four weeks and waiting to start vic. I did not respond to the peg/riba. Riba flaired me up bad i was swollen and bleeding in alot of spots from scratching so much. My count was at 8-9 million at first after 4 weeks on tx i was still at 8mill. On new tx going toward three weeks on tuesday will have results by wed on next visit. The Hepc was causing my biliary ducts to shring, there were no strictures so it was confusing.

 Anyways sorry to write so much just glad to be on a tx and looking foward to my complete healing. Praying everyday and thanking God for keeping me. :o)

 



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Tig


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Hi Richard,

Welcome to the forum! I'm glad you joined us and look forward to hearing more about your case. You mentioned going from stage 1 to 3 in one month. What kind of testing was done to determine that? Was that the stage of inflammation or fibrosis? It would be helpful to have your share any lab test results and if you have had a biopsy, those results will really help us give you the best informed opinions.

It sure sounds like you've had a tough go of it thus far and I'm really hoping this times the charm! Keep us informed and we'll look forward to seeing you succeed this time without those pesky side effects!! Good luck Brother!!



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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Richstar


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         Hi, 

New to the forum and i wanted to stop in and share. I was diagnosed with Hep C stage 1 back in July of 2013. By late August i was at stage 3. I have been on the  Olysio/Sovaldi tx for 15 days, just had blood work done today and will know next wed. how im doing. First two days i had some nausea and dealt with insomnia for a week but im sleeping better now since i also rest during the day. Will keep all posted once i get results. I was on the peg/riba/vict tx for 7 weeks to which i was non responsive and i also got a severe rash from the ribavarin. My case was difficult as the Hep C was causing me to have vanishing bile ducts.

 



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