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Post Info TOPIC: Hello Everybody
Hep-C Dragon Slayer


Veteran Member

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RE: Hello Everybody
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Welcome Mark, 

The journey begins. 

Stay Strong and good luck.



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GT 1A:  VL: 4,695,000, started treatment 1/6/13 with off label Sovaldi/Olysio/Riba     No Interferon due to Sarcoid  in liver and lungs.  Recent biopsy shows Cirrhosis level 5/6.  EOT 3/30/14. SVR 8 on 5/30/14
Mark Y


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Thanks for the support and warm welcome everybody, I will give back as much as possible.



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55 yr old male. GT 1a. Diagnosed in 1985. Stopped pega/riba in 2005 due to side effects. Started Solvaldi/Olysio 2/14/14. VL 3,700,000. 2/21/14 VL 244. 3/07/14 VL Undetected.
Bloomster


Senior Member

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Hey guys, welcome to the forum.  All the best with getting through treatment.  Caroline



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My husband had genotype 1a, 46yo, started triple therapy (peg/rib/vic) 23rd July 2012, VL prior to treatment 14 million, UNDET 12, 24 weeks, EOT 24th June 2013, EOT +1.5 weeks UNDET, EOT +12 weeks & EOT +27 weeks UNDET; SVR January 2014
Loopy Lisa


Guru

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Hi guys,

It is great these new meds are ready for the taking, good luck, they sound an amazing combination. :)



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Genotype: 3b

VL.�over 15, 000 000

Failed TX 2014: Interferon/Riba.

Cured using Sof/Dak combination.

I can eat cake again! <3 
Matt Chris


Guru

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Hello Mark and Pierre

Welcome to the forum you have found a good place where people care.

Please tell us about your journey as it happens and let us help in anyway possible. Also basic info can be helpful like Geno type viral level, LFT tests etc.

matt



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"And in the end, the love you take is equal to the love you make"

61 year old Geno type A1, F4 Cirrhotic, started 24 weeks on Harvoni 12-17-14 ,EOT-5 week = UND, 8-31-15 =UND , SVR-24 Baby YES! 
Biggyb


Guru

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Mark and Pierre,

welcome to our forum. Give and take all the information you want. Lot's of it here. It helped me tremendously last year on my 48 weeks of Tx..Very good luck to you 2, and to all on treatment. And i hope 2014 is your magical year to KO Hepc.



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58 yo..Relapsed in 99 and again in 2004. Started triple therapy with Victrelis July 22,2012.  genotype 1a. week 8,12,16,24 VL Undetectable..E.O.T -- 6-22-2013,,,EOT + 24., UND. 

SVR !!!

 

~Bob~
OldenSlow


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Hi Mark and pierre. Welcome! smile

You've come to the right place. Wonderful folks here.  There is much information and support to be found.  I'm also one of those on treatment with the new DAA's (3rd week) and will be following your reports with interest.  It was indeed surprising how quickly treatment was approved after submittal.  My doctor told me he was going to submit an off label script in early January and we'd see what happened.  The pharmacy called me first (took about 5 days) and I was the one who informed the doc's office I'd been approved.  They were somewhat shocked, but delighted to hear the good news.  I've been very happy to hear that others are finding the approval process to be relatively painless.  It bodes well for us all.

Best of luck to both of you,

Wayne



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66 y/o male - Geno 1b - F4 cirrhotic dx 2001 - 16 wk treatment w/ Sovaldi/Olysio/Riba - Und @ EOT+24 SVR

 
Tig


Admin

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Hi Pierre and Mark,

I'd like to welcome you both to the forum too. You're both most fortunate to be given the approval of such a ferociously effective combination! I'm very confident that you will both have a successful year killing the beast. Good luck to you both!

Best, Tig

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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

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pierre


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Hi, let me introduce myself: Pierre, hcv 1b, live in new york. just started new Sof/Oly treatment. Agree with Mark how surprising & quick the treatment was approved by my insurance + coupons from manufacturers. Will be posting on the specific Sovaldi/Olysio area & share whatever i can. Avanti! May 2014 become the year when HCV gets KO'd.



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HCV 1b -- detected 2011 -- pre-cirrhotic -- vl has varied from 3million to 150thou-- first tx Sovaldi/Olysio started 2.6.14. finished 4.28.14. Since 4 weeks post-tx I have been UND with liver functions back to normal. SVR at 12 weeks post-tx.
Mark Y


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Hi Cinnamon Girl, yes it was a clinical trial in 05, Pegatron, Riba and one other that escapes me at the moment, the treatment was a brutal 48 weeks. Yes, I'm quite excited about the success rates with these new off label meds. Even my Dr was very surprised at how fast I was approved and the cost with my insurance and the coupons these manufacturers provide is making everything very affordable and painless up to this point. Thank you again for the welcome and I look forward to sharing whatever I can. 



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55 yr old male. GT 1a. Diagnosed in 1985. Stopped pega/riba in 2005 due to side effects. Started Solvaldi/Olysio 2/14/14. VL 3,700,000. 2/21/14 VL 244. 3/07/14 VL Undetected.
Cinnamon Girl


Guru

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Hi Mark, welcome to the forum!  As you`ve already seen, we have a group of new members here who have recently started treatment with this new `off label` drug combo, and we`re all very interested to hear about your progress.  It`s really very heartening to see how many people are getting these drugs approved so quickly, and I`m sure you must be so pleased to be about to start!

Sorry to hear you relapsed in 2005, which triple therapy were you on?  Incivek and Victrelis were both approved by the US FDA in 2011, so I`m guessing it was a clinical trial you were on back then?

Wishing you all the best of luck this time around, you should do well on this drug combo!  Do keep us posted!  smile

 

 



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
Mark Y


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New member here, I've been reading the posts, great forum here and I wanted to introduce myself. I'm Genotype 1, diagnosed 30 years ago. I went through the triple therapy in 2005, cleared the virus but relapsed shortly after. I'm now getting ready for the Solvaldi/Olysio combination. My prescription will be here tomorrow and I will start on Friday. I was both surprised and happy that everything was approved so fast and after reading the positive feedback on these medications am looking forward to hopefully good results. I am happy to share any information as I'm sure I will be asking questions myself. Once again, great forum you have here!  



__________________

55 yr old male. GT 1a. Diagnosed in 1985. Stopped pega/riba in 2005 due to side effects. Started Solvaldi/Olysio 2/14/14. VL 3,700,000. 2/21/14 VL 244. 3/07/14 VL Undetected.
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