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Post Info TOPIC: Count down to treatment


Veteran Member

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RE: Count down to treatment
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Hi, I think  you have chosen well starting treatment, but I can understand to be anxious.
Anyway,it is a good opportunity. The new drug appears to be very good and you'll have to deal with ribavirin, but you'll be under medical control.
Really you have a good chance now.
Prepare your books, favorite movies and music, and imagine that 2014 is the year of your healing.

A big huge



__________________

52 yo. Genotype 1a. 1.500.000 VL. Fibroscan : 8 . Probably I infected in 80s. I´ve never been treated. I've started Harvoni, 9/02/2015. 12 weeks. 

HR


Senior Member

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Hi Lisa, 

The first round of treatment I had no side effects.. The second round I'm taking the exact same drugs for a longer period. Before I started my second round I felt nervous, anxious, etc. I'm starting week three today and feel fine.. It's normal to feel anxious but you'll be fine. 

Hang in there



__________________

ION-3 Trial- Sofosbuvir/Ledipasvir 12 weeks.. UND 4 weeks, relapsed 12 week EOT. 

3-4 on Ischank scale

 

Retreat ION-3 Trial- Sofosbuvir /Ledipasvir 24 weeks

GT-1 (1-31-14) Week 1 VL 62 -Week 4,8,12,16,20 UND EOT 7-18-14



Veteran Member

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Hi Lisa,  I know exactly how you are feeling.  I had similar feelings before I started. I don't like taking anything either.  It has not been bad at all, and now I even find myself looking forward to taking my pills each morning...  I think because each one I take represents one day closer to the end of this part of my life.    Please know that is normal!  I am very happy to hear you are starting treatment soon, I have been following you on the forum & look forward to seeing SVR next to your name smile



-- Edited by LTChaos on Friday 14th of February 2014 04:46:13 AM

__________________

GT 2  VL on 10/23/13 7.2 Million; AST 55;ALT 79;AFP 3.2; Started 12 weeks Riba/Sovaldi 2/2/14 - Results Undetectable at 12 weeks!  



Guru

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Thank you Jill,

You speak wise words and I know in my heart you are right! Thank you for the hug, you are a lovely person and you help many people through your experience and empathy with this site. x



__________________

Genotype: 3b

VL.�over 15, 000 000

Failed TX 2014: Interferon/Riba.

Cured using Sof/Dak combination.

I can eat cake again! <3 



Guru

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Hi Lisa, it`s understandable that you`re feeling nervous and a bit anxious, it`s the fear of the unknown, but I`m sure that once you've got started on your treatment it will be a big relief.  That`s how I felt anyway, after all the waiting I was finally doing something about it!

No-one knows exactly how the side effects are going to affect them, but ribavirin without interferon is likely to be much easier, and you already have a good established support network here to keep you company along the way. 

Once it`s over with you`ll be so glad you did it!  Try not to worry, you`re doing the right thing for your health and for your future life!  Sending hugs!  ~ Jill smile

(PS - Lisa, I`ve moved this thread here to the `General Discussion` area, from `HCV News`.)



__________________

Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 



Guru

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Thanks Matt and Dustybear, I read both of your struggles and although I know Matt has to go another round, it does help to know that people come out of it the other end, stronger, healthier and it is worth it. I'm focusing now on the day they say to me, "you're done, clear, have a good life and hope to never see you again!"

Thanks, it does help! :D



__________________

Genotype: 3b

VL.�over 15, 000 000

Failed TX 2014: Interferon/Riba.

Cured using Sof/Dak combination.

I can eat cake again! <3 



Senior Member

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Posts: 230
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Hi Loopy:

Last year was the most difficult for me, yet the best year of my life.

I am hep c free and it was worth it.

Sure,I was nervous to begin with and went through a lot, but in the end I became stronger in spirit and more peaceful with myself.

Stay positive and we will be here every step of the way!

 



__________________

Geno 1A, since 1981. SOT 1/2013   TX stopped 11/2013 in week 45/48 due to Myositis & Interstitial Lung Disease. Completed 94% of Peg-Inter dbl TX, UND since week 4.  SVR 4/2014!  Still SVR after 4+ yrs!

"Day by day, step by step, breath by breath"



Guru

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Hey Loopy

To be anxious, scared or excited is absolutely normal. This is what you have talked about, planned and may even dreamed about.

Embraced it with full arms and welcome it with love and your full commitment, in doing so you will be successful and the power will be with you.

Prepare your body and mind (which you have) I would suggest to take off the first three days and stay at home or where ever you feel most comfortable and envelop the experience.

matt 



__________________

"And in the end, the love you take is equal to the love you make"

61 year old Geno type A1, F4 Cirrhotic, started 24 weeks on Harvoni 12-17-14 ,EOT-5 week = UND, 8-31-15 =UND , SVR-24 Baby YES! 



Guru

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Thank you, it is really good to hear it is worth it, I appreciate you reminding me of the goal and why we all have to go through this! I am lucky it is the new treatment, but I am still weary of the Ribaviren. I don't want to wait anymore though, it is actually beginning to wear me down knowing I have it and don't need to.

Thanks for sharing, it is much appreciated!



__________________

Genotype: 3b

VL.�over 15, 000 000

Failed TX 2014: Interferon/Riba.

Cured using Sof/Dak combination.

I can eat cake again! <3 



Guru

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Posts: 733
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It's a big decision to start Lisa. I think everybody goes through what you described to some degree.

For me, I just knew it would get worse eventually and I had a chance to treat it now. So I decide I would try. Whether it worked or not I promised myself I would follow through with it and do everything possible to make it work. First time for me it didn't work but the second time it did. I'm glad I tried.

I feel great now and it was all worth it. I want to be around for as long as possible so I can continue to aggravate my wife..lol

One more thing from me. I really trusted my Dr. and if she told me to do something I did it in spades. That really helped me too.

Good luck and keep us posted. I think what your going through is pretty normal. I'm excited for you.

__________________

jim

GT1a, St2 Lv2 last biopsy 2002, VL  11.4m,  start triple tx 9/30/11

VL 470 @4wks.....VL 22,000 @8wks  stopped tx

Round 2-  Started 3/16/12   PSI-7977, BMS-790052, Riba Undetectable day 14

Did 24 weeks Still UND 12 weeks post tx, SVR24!!!!!!! 2/14/13

 

 

 

 

 



Guru

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Thanks Sally,

I am not normally one to wobble really, sometimes this whole thing seems surreal. I will treat, but today I feel a little blah. I guess I shouldn't complain reading about people who are treating and are having hard days....

Thank you ...



__________________

Genotype: 3b

VL.�over 15, 000 000

Failed TX 2014: Interferon/Riba.

Cured using Sof/Dak combination.

I can eat cake again! <3 



Senior Member

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Posts: 111
Date:
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Hi Loopy Lisa

 

completely understand your feelings.. waiting was the worst thing for me. I had many a wobble, scared, excited, should I, shouldn't I...but when I actually started I knew I had made the right decision

You have a great outlook on life

 

Best wishes Sally



__________________

51 year old Geno type 1A,  possibly 30 years HCV. HBV detected but currently dormant. viral load over 1,000,000. Started triple with Telaprevir Nov 2013 for 48 weeks.

VL week 4 -179,

VL week 12 -50. 

VL WEEK 24 -UND



Guru

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Well in March I go to the specialist to give more blood and begin treatment. I am actually a little scared to start these drugs. I know its not really rational, but considering I hate even taking mild pain killers - before I knew I had hep, it is really a big deal for me. I know the new drugs are much easier and I follow all comments, but still I am not excited, just dreading it. I feel like a coward even though I know it will be all OK, I guess I am having a weak moment. How do you all cope, does anyone else feel or felt like that?

 



__________________

Genotype: 3b

VL.�over 15, 000 000

Failed TX 2014: Interferon/Riba.

Cured using Sof/Dak combination.

I can eat cake again! <3 

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