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Hep C Discussion Forum -> Post Treatment -> 6 months post
Post Info TOPIC: 6 months post
lucy


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RE: 6 months post
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Thanks for all reply. I am felling so touched. After treatment, my life changed greatly. We are divorced and I got a permanent job and have been working. My doc told me maybe I can start the second treatment around March next year. I hope I can positively face everything.

Thanks all. your warm words makes me feel better. Right now, I lost my family, but I know I can come here, I am not alone

Thanks Mallani, I will be concerned with Ribavirin for my next treatment.

Thanks all

Lucy

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 1b, start triple treatment(incivek) on Feb 5, 2013.  UND@ 4,12,24 wks. EOT Aug 6, 2013
Bloomster


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So sorry to hear of your relapse.  Look after yourself and try not to be too hard on yourself.  Your time will come.  Caroline



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My husband had genotype 1a, 46yo, started triple therapy (peg/rib/vic) 23rd July 2012, VL prior to treatment 14 million, UNDET 12, 24 weeks, EOT 24th June 2013, EOT +1.5 weeks UNDET, EOT +12 weeks & EOT +27 weeks UNDET; SVR January 2014
ucbgal


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lucy,

sorry to learn of your relapsing. remember that it's the meds that failed and not you.

the good news is the newer drugs have fewer sx.

treat yourself well

sandy,ucbgal



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globetrotter


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Lucy

A temporary kick in the teeth but you will find the strength again to get over this and fight the fight....

 

Sally



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51 year old Geno type 1A,  possibly 30 years HCV. HBV detected but currently dormant. viral load over 1,000,000. Started triple with Telaprevir Nov 2013 for 48 weeks.

VL week 4 -179,

VL week 12 -50. 

VL WEEK 24 -UND
JoAnneh


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Lucy,
Don't give up! Keep looking ahead.
Thankfully many more options on the
Horizon.
I failed tx in 2001 and it was 10 years
Before there were other options.
Sorry you relapsed.


__________________

JoAnne

Genotype 1a, Triple therapy w/Invicek started May 19, 2012

DET 4 wk. UND 2,6,12,24 48 treatment. Achieved SVR 2013!
Cinnamon Girl


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Dear Lucy, I`m so sorry to hear this, I really feel for you and I know you must be devastated right now after the stressful time you had while on treatment.  You did the best you could though and the battle isn`t over yet, I`m quite sure you`ll beat it next time around with one of the new drug combinations.  I agree with Malcolm that it would be best to avoid ribavirin next time if possible so that you don`t experience such a drop in your Hb levels.

Give yourself some time to recover from the disappointment and try to put it out of your mind until the time comes for you to start a new treatment.  Next time it will be a shorter and much easier treatment and you won`t have to go through such an ordeal as you did on incivek again.

Take good care of yourself, and remember that we`re always here for you. 

Sending hugs, Jill xx



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
TazKat


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keep ur chin up lucy! i relapsed in 2012 on the incivek. i am hoping ins will aprove the sovaldi with interferon & riba. only 12 weeks to do if i get. keep the faith.. smile



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TazKat Genotype 1A null responder x 3 riba & iterferon twice, relapsed from Incivek 2012 with only 12 weeks left to do. stage 4 mild cirrhosis 4/25/2014/ started sovaldi riba & interferon.. finished treatment 7/17/14  results 7/25  cleared..

 

 
Kellie


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Hi Lucy,

I'm sad and my heart goes out to you. I am sorry the medication didn't work as expected. I know the tx sx were terrible. You gave your liver and body a nice break from the virus though, for a almost a year and that is good.

those easier tx will be coming your way and you'll be able to say so long once and for all. just a little while longer.

a big hug for you from me.



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HCV 1A 1980. Dual tx 2003 -UND at wk 11-discontinued due to severe depression

Started Triple 4/16/13 for 24 weeks

UND wk 4,6,8,12,17 & 24

E.O.T. 9/29/13

EOT + 12 weeks=SVR, and EOT +26 weeks=Cured!
mallani


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Hi Lucy,

Sorry to hear your news. It's a shame you had terrible anaemia, and had to reduce the Ribavirin to such a low dose.

It's just a temporary setback. Get ready for the next round of treatment, hopefully without Ribavirin. It may take a while to get the new drugs approved in Canada, but be patient.

Personally, I'd wait for Sovaldi and Ledispavir. Keep us informed. Cheers.



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
Tig


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Hi Lucy,

I'm so sorry to hear about your relapse. I know you must be devastated right now and you have every right to be unhappy. Give yourself some time to regroup and plan for the next round against the beast. As Gracie said, if you made it through the hell of Incivek, you'll handle the new DAA's easily and without those nasty Sx. The SVR rates of relapsers on the new DAA's are very impressive and treatment lengths are so much shorter. I know right now that's probably not the first thing on your mind, but once this shock is over with, you'll know that your odds of success have never been better. Take some time and then plan for the final battle.

Tig



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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Gracie


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Oh Lucy... How heartbreaking. The new treatments are so much easier from what I've been reading from everybody. 12 weeks... Pfft! And relapsers have the highest SVR with them. You'll sail through the new treatment if you handled incevik. I'm on the nasty stuff now. One of the last 48 weekers. Lots to be positive about with these new treatments on the market.

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  1. Gracie

1A. Previously treated non responder Rebetron in 2000 And Incevik in 2014 with a breakthrough at week 12. Fibroscan 15.5. VL 6,000,000. Finished 24 weeks harvoni on Dec. 19, 2015. SVR. Latest Fibroscan 8.8.
lucy


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I relapsed.  I am feeling too sad, crying.

38957.0 IU/ml

ALT:23. 



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 1b, start triple treatment(incivek) on Feb 5, 2013.  UND@ 4,12,24 wks. EOT Aug 6, 2013
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