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Hep C Discussion Forum -> Post Treatment -> 4 months off as a non responder
Post Info TOPIC: 4 months off as a non responder
ucbgal


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RE: 4 months off as a non responder
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tonib,

just read all your posts & from1 jersey girl to another i truly feel for you . you supported me on my journey & now i'll do the same.

as tig said so succinctly, it's the meds, not us!!!!!! the newer stuff is much more effective. how fortunate you will be to attain a svr w/ them!!!

only wishing the best for you.

 sandy,ucbgal



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Gracie


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Hi Tonib,

I join you now as triple didn't work for me either. It's a kick in the teeth for sure. We start with so much hope only to have it squashed in a single phone call. Tonight I'm depressed and sad. BUT logically, I know the new treatments are here, they work better, are easier on the body, and that I will still rid myself of this beast once and for all and so will you. Imagine a one a day pill treatment. Sounds so promising. Hope your doing well today.



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  1. Gracie

1A. Previously treated non responder Rebetron in 2000 And Incevik in 2014 with a breakthrough at week 12. Fibroscan 15.5. VL 6,000,000. Finished 24 weeks harvoni on Dec. 19, 2015. SVR. Latest Fibroscan 8.8.
tonib


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Thanks Greg, my hepa is realy good, he has checked it and I am fine.  You are sweet!



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 geno 1, started peg and riba 7/5/13, now 29th day is vicrellis ***tonib VL started 6 million, after 5 weeks 374,000, after 8 weeks 150,000....the big test for VL is 9/27 at 12 weeks  TAKEN OFF THERAPY JUST NOT WORKING FOR ME...12 WEEKS STILL HAVE 9000 VL
Greg


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Hi tonib,

 So sorry to hear that you are unwell after tx, this happened to me as well and took some time for my GP to figure it. I'm not saying that you have the same problem but tx can affect your

"Thyroid" so it might be a good idea to get that checked as mine was overactive after tx. I don't mean to alarm you but if it is it's very easily treated.

Best of luck,

 Greg



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The mind is like a parachute it works best when it is open. "The Dalai Lama" My blog: http://greghcv.wordpress.com/
Genotype 1a, started tx 1st Feb 2011, for 48 wks. Week 24 PCR 26/07/11 Non-Responder
New TX start date 12th Sept 2016 Harvoni x24 weeks.  VL 7.4 Mil. Week 4 "Undetected"
tonib


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Thanks for the kind words everyone!  And best of luck to all!



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 geno 1, started peg and riba 7/5/13, now 29th day is vicrellis ***tonib VL started 6 million, after 5 weeks 374,000, after 8 weeks 150,000....the big test for VL is 9/27 at 12 weeks  TAKEN OFF THERAPY JUST NOT WORKING FOR ME...12 WEEKS STILL HAVE 9000 VL
tonib


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Best of luck to you Tig!  Hang in there my friend!  Of course I remember you and starting with you, I will never forget you.  This disease has a way of not only killing but making lifelong friends!  

I will be waiting for the good news on your results!biggrin



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 geno 1, started peg and riba 7/5/13, now 29th day is vicrellis ***tonib VL started 6 million, after 5 weeks 374,000, after 8 weeks 150,000....the big test for VL is 9/27 at 12 weeks  TAKEN OFF THERAPY JUST NOT WORKING FOR ME...12 WEEKS STILL HAVE 9000 VL
Tig


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Hi Toni,

I'm sorry to hear you're feeling so lousy right now. I was really hoping you'd have a break in between your last go with this stuff and your next. I think once you can get your next course of treatment underway and get this cured once and for all, you'll start to feel better, much faster. You just didn't do well on the old SOC and the new drugs are proving to be so much easier on everyone. I know you've been reading and keeping up on the new meds, so do your best to be positive and get this behind you. We started together, remember? Of course you do! How could we forget those memorable days, lol? You did your best and the drugs failed, not you. The new treatments are so much better than before and I told you then, if we didn't make it this time, the new drugs were right around the corner and here they are! Try to keep your hopes up and continue to look forward to the day this is all behind you. A side note, I'm waiting right now for my EOT+12 viral load and LFT's. They have been delayed by a week and I'm so nervous right now I feel myself shake just thinking about the possibilities. I wish there was a way to find out immediately! They sent an email and told me I'd find out this coming week. I'm keeping my fingers crossed, just like everyone that goes through this hell. We all want to succeed and we will when our time is right. Your time is coming, just hold on and hang in there til it happens, because it will... Keep in touch, okay? 

Tig



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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globetrotter


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Im sorry to hear that things are tough for you at the moment. Fingers crossed that you will soon be on one of the new shorter and altogether more manageable treatments which seem to be coming onto the market thick and fast.

This is a great forum, with great people who can inspire us all when the going gets tough

Keep looking forward



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51 year old Geno type 1A,  possibly 30 years HCV. HBV detected but currently dormant. viral load over 1,000,000. Started triple with Telaprevir Nov 2013 for 48 weeks.

VL week 4 -179,

VL week 12 -50. 

VL WEEK 24 -UND
Gracie


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Sounds like you've been having a rough time with this. So sorry to hear that. Im on incevik and know how rough it can be. There are wonderful new SHORT treatments available now and even better ones on the way. You'll get rid of this beast. And then your liver can start healing itself. The liver really is a magical organ with the ability to regenerate. Keep the faith doll ... Better days ahead!

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  1. Gracie

1A. Previously treated non responder Rebetron in 2000 And Incevik in 2014 with a breakthrough at week 12. Fibroscan 15.5. VL 6,000,000. Finished 24 weeks harvoni on Dec. 19, 2015. SVR. Latest Fibroscan 8.8.
tonib


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Just wanted to check in with my 4 month stats as a non responder who had to go off the triple therapy.  I have gained every lb back and the belly bloat is back.  I have episodes of liver pain again.  

Lately I feel sick if I eat anything unhealthy, sort of when I was on the meds, but not as severe.  

My hair started to grow back, but that was short lived.  Hair is so thin, and my fingernails have those ugly ridges again.

Brain fog never really went away, it did get a little better off the meds, but I am still short of breath and I get so tired sometimes I just have to rest, again just like when I was on the tx but not as severe.file000610462012.jpg

I had a cat scan last month, and I have to make a follow up appointment with my hepa.  

All I can say is this beast inside me is slowly killing me as I wait for my turn to be SVR. no 

I hope and pray that I will someday be HCV FREE!

I often return to this forum to read about how everyone is doing and to read all your stories.  Happy Sober St. Patty's Day!!



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 geno 1, started peg and riba 7/5/13, now 29th day is vicrellis ***tonib VL started 6 million, after 5 weeks 374,000, after 8 weeks 150,000....the big test for VL is 9/27 at 12 weeks  TAKEN OFF THERAPY JUST NOT WORKING FOR ME...12 WEEKS STILL HAVE 9000 VL
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