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Post Info TOPIC: Finishing tx Sovaldi/Olysio
Tig


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RE: Finishing tx Sovaldi/Olysio
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Hi Anna,

So happy to hear you got approved straight away! I hope to hear more instances of this same great news. I want to believe that there are people in the position to approve or disapprove this treatment, even though it's considered "off label", that understand the importance of approving this potentially life saving treatment. It's not simply about money, it's about you, your quality of life and it's about ending a deadly disease for good. It just makes good moral and ethical sense to do everything possible to stop this disease before it can harm one more person. 

I'm glad you've found the forum too! The information and support is vitally important. I hope you keep us informed of everything as you progress with treatment. We love sharing all the good news, the reports and even enjoy sharing those occasional sleepless nights! Whatever it takes, we're here to share the load!! Good luck Anna, your Hep free future is days away...

Tig smile



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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Hi, Wayne!
My doctor said to take both every day at the same time, with a meal. I chose breakfast. That's been pill taking time for years. As suggested by dr, I set my alarm for the same time every day as a failsafe. Thanks for the encouragement and I love your avatar photo!
Bless your heart,
Anna

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Hi Anna,

Glad to hear you were able to get underway with treatment. Most are reporting minimal side effects with that combo. Be sure to take the Olysio with food and drink plenty of water throughout the day. It will help with the headaches. Best of luck to you.

wayne



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66 y/o male - Geno 1b - F4 cirrhotic dx 2001 - 16 wk treatment w/ Sovaldi/Olysio/Riba - Und @ EOT+24 SVR

 



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Started Sovaldi/Olysio tx. Today is day 4. No side effects yet. A bit of nausea, headache and anxiety. But I've been battling these symptoms anyway. BTW, my tx was approved the same day doctor submitted. I got a call out of the blue from ReCept spec pharm checking details and giving me copay cost, an amazing $30/month. I recd the meds about 2-3 days later and they each have 2 refills already. Just hope I can hang with any side effects that rear an ugly head! So grateful to read/participate in this forum. I totally believe in the power of peer support.

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Tig


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Hi Gator Man,

Congrats buddy! Not too long ago, I was on the "shorter" length treatment and still had 16 weeks of nasty triple to go and was thrilled! I can only imagine how good you feel right now and rightfully so! It's great to see everything falling into place for you. The future really does look bright!!! Good luck bro....

Tig



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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I finish Sovaldi/Olysio a week from today. UND at 8 weeks and LFTs normal. My next doctor's appointment is April 2nd with followups at 3 month and 6 month EOT.  I will also have ultrasounds every 6 months to check on HCC, the next one being in July. When (fingers crossed) I reach SVR, my doctor said we will discuss future health issues regarding possible regression of liver damage and long term prognosis.

If you had asked me a year ago, I wouldn't have guessed that I would be this far along in defeating HCV, hopefully permanently. May we all have this good fortune in our future!



-- Edited by Gator Man on Tuesday 25th of March 2014 01:20:02 PM

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Geno 1b, compensated cirrhotic, 54 yo, prior null responder. Pre tx VL approx 595,000, tx with Sovaldi/Olysio (no Riba) started 1/8/14. VL 40 @ 2 weeks, UND @ 4 weeks. Still UND @ EOT + 1 year.

Gator Man SVR12, Dragon 0, Final Score.



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Congrats Richstar, please do keep us posted on improvements in your health. Others on tx (including me) will be interested in the time it takes for the fatigue and other symptoms to improve.  Be well.



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1b  Int/Riba relapse @ 48 weeks.  Stop tx Peg Int/Riba 12 weeks ill. Relapse S/O 6/23/14 :(   Started Harvoni 11/12/14  EOT 4/28/15.  EOT+4 UND :)  SVR! 8/4/15  :)     Thankful for every morning.



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Ty Fireman wish the same success and you will have it. Ill be done tomorrow . Thank God!!!

 



-- Edited by Richstar on Tuesday 25th of March 2014 03:13:27 AM

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Ty Aprilee :o)



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:o) SVR all the way 



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Yeahhh I am happy for you. I will keep you in mind as I will soon begin this ****tail.

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Carrie


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Richstar,

Awesome to hear you are at the end. Many of us on this regimen are very eager to follow your success. 

Congrats



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49 yo. G1a prior tx 2005 with peginf and RIBA 12 weeks dc due to side effects. vl 7.8mm Current tx Sovaldi/Olysio 12 weeks started 2-21-2014,  UND at 4 weeks, EOT+12 SVR



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Congrats!! :)

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33 years old Genotype 3a NO luck with Peg & Riba in 2013 but am undetected after 2 weeks of Sovaldi with Riba 2014 :)



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Great News Richstar,

I'm definitely following you as this Tx is being considered for me currently.  Good to see the great results you are experiencing!  May SVR be in your near future!

-Rob



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Age 33, Male. GT-1 for ten years. Diagnosed in March, 2014.

Treated with Sovaldi/Olysio: SVR 24 on February 16, 2015!



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Well friends i am coming to a close with my tx Sovald/ Olysio with just.... actually 3 days left of meds...Latest results were Undetected will all my Liver functions and levels normal.going for an Mri in 2 weeks and for more Labs. I am Grateful to my maker for giving wisdom to those involved in the process of developing these meds. I will continue to post all my results and to assist with any feedback about this tx from what i experienced.

 



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