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Hep C Discussion Forum -> On Treatment -> Update for me
Post Info TOPIC: Update for me
Loopy Lisa


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RE: Update for me
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Wow you go guys, sounds nasty this pill you folks have to take, and so much medicine to take to combat all the side effects....I really admire you all going such distances on these meds.....24 weeks seems like a monster, but 48 :O!

Keep going I'm rooting for you all.....nothing makes this more worth while than knowing the prize is a Hep C free future. :D



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Genotype: 3b

VL.�over 15, 000 000

Failed TX 2014: Interferon/Riba.

Cured using Sof/Dak combination.

I can eat cake again! <3 
Scruffy


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Hi Michelle

I'm on week 42 of the same tx. Advice I can give you is take it day by day. DON"T scratch it makes it worse. Drink LOTS of water and make sure you get the 20gm's of fat with the incivek. (you did say you were on that?)  Get some baby wipes for the bathroom and maybe some desetin <-- spelled wrong :) My hb tanked at about 7 weeks and I had to get a transfusion. Matter of fact I've had to go for three transfusion until the procrit made my hb some what stable. I've been undetectable since week four. I've stayed active so far through the 42 weeks much to my doctors dismay. I've stayed on the full dose of riba. To me looking back it was hard but its been worth it.

Best wished to you and yours.



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Geno 1a null responder 2004 inter/riba   finished incivek,peg/riba 48 weeks May 17th 2014. undetect weeks 4-12-32.  EOT+7 undetect. EOT+24 SVR!!!!! EOT+!YEAR SVR!!!!
Gracie


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Loads of cream when you get out of the tub. And an allergy pill like Benedryl or Reactine helped me survive. Also ice helps with the immediate itch.

Dehydration will be a big problem so you should sip on water or tea (non caffeinated) if you can all day. That will minimize the headaches and keep everything moving so to speak.

Good luck with the treatment. It's not easy bit 12 weeks goes quickly!



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  1. Gracie

1A. Previously treated non responder Rebetron in 2000 And Incevik in 2014 with a breakthrough at week 12. Fibroscan 15.5. VL 6,000,000. Finished 24 weeks harvoni on Dec. 19, 2015. SVR. Latest Fibroscan 8.8.
suffering


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Michelle. Good luck with the Incivek. It has to be the worst for side effects, at least for me it was. They stopped me from taking them at week 10 of the Incivek, because of extreme side effects and becoming very anemic. I did a 4 week lead-in to the Incivek, taking peg and riba until then, which seemed an easier way to go, got use to the other 2 drugs first. I registered UND at week 2 of the Incivek and have stayed that way since. I am now on week 26. A little more than halfway there. As s      oon as I stopped the Incivek, conditions started improving. Symptoms lasted about 5 weeks after stopping, a little improvement each week. Now the side effects of the Int-peg, riba are very tolerable. I found the Lubriderm Intense Skin Repair to be the best for the itching, expensive but worth it. 22 weeks to go and dr. says hes very sure this will work.

                          Good Luck to you!!   Charlie



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Michelle22


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Thank you Cinnamon girl - I am on Interferon, Ribavirin and the lovely itchy telepravir doh Will know my viral load on Friday morning when I go in to get my interferon injection. I currently have my 8 year old rubbing my back with cream as I had an attack of the itches! He says it is annoying him doing it lol I am excited to say the least but I suppose we all are getting our viral load checked as it shows us if all this effort and all the side effects are worth it to meet our main goal - TO BE HEP C FREE



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Always looking forward xXx
Cinnamon Girl


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Hi Michelle, good news that you`re now on treatment at last! 

Could you tell us which of the triple therapies you are taking, with incivek (telaprevir) or victrelis (boceprevir)?  By the sounds of your side effects and problems with itching I`m guessing you`re on incivek?  I`m glad the Aveeno cream is helping with that, and if you use the `search` box at the top of the page you`ll find many previous conversations where members have discussed the best ways of dealing with it.  Just type in `itch` or `itching`.  I sympathise with the dehydration, especially if you`ve already reached the limit of how much you can drink every day, and it sounds like you`ve already come up with some good ideas, like sucking on ice lollies.

Good news about your blood results so far, and best of luck with your first viral load test!  Keep us posted! smile



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
Michelle22


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ROAR!!! biggrin From what I have read there are way fewer side effects on the other treatment. As I said to my liver nurse if the side effects weren't so RANDOM they would be fine lol - I have been told if I am a non-responder by 12 weeks they will cease treatment and put me on the list for the sobospriver with interferon and ribavirin. I have to say that my liver team is A++++++ and I can't thank them enough for all their help and continued support! I have only ever known one other person infected with HepC and they were male so nice to have some female company through this. 



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Always looking forward xXx
TazKat


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Wow.. Sounds like things are going as planned.. The side effects are the worst on toxic mess. i am hoping the sovaldi (if i get on it) won't have any.  I already know what to expect with the inteferon & riba as this will be my 5th go with those two monsters.. praying for u michelle. We can do this!!! Roar like a woman..  lol  Taz



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TazKat Genotype 1A null responder x 3 riba & iterferon twice, relapsed from Incivek 2012 with only 12 weeks left to do. stage 4 mild cirrhosis 4/25/2014/ started sovaldi riba & interferon.. finished treatment 7/17/14  results 7/25  cleared..

 

 
Michelle22


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Well I got the all clear for my heart and treatment commenced 3 weeks ago. Triple therapy - whoot whoot..............oh not so much whoot whoot! The side effects are random and can be pretty extreme. Today I have sore eyes, black hairy tongue syndrome due to dehydration even though I can't physically keep down any more liquids. Also tired, not sleepy tired just blergh tired. I have itching too but I can't scratch it because if I do then my skin feels like it is on FIRE :( Have found some great cream for it called Aveeno so that helps when I forget and scratch my itch. The kids find this funny though disbelief having to sit and rub mummys back till the burning ceases, may just be the silly noises and faces I pull lol. Trying to stay upbeat but the dehydration is my biggest killer just now. I bought ice lollies to try that, we shall see if it works! I feel like a walking pharmacy as it is, I have all my treatment tablets to take as well as having pockets full of anti sickness tablets, paracetamol and anti histamines. My blood work so far has been fine (my liver nurse says my bloodwork is better than her own and she has never had Hep C) except from the fact that my white cell count has almost doubled instead of dropping but on the plus side that means I can continue treatment at the full dose. Also have a few lumps appearing on my neck, they maybe unrelated so put it in my phone to remind me to ask my nurse about them tomorrow when I get my viral load checked as well as the rest of my blood work.  



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Always looking forward xXx
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