Hep C Discussion Forum

Members Login
Username 
 
Password 
    Remember Me  
Chatbox
Please log in to join the chat!
Hep C Discussion Forum -> New Members Area -> new to forum
Post Info TOPIC: new to forum
Isiscat2011


Guru

Status: Offline
Posts: 1724
Date:
RE: new to forum
Permalink  
 

Gouher Shah wrote:

Hi Guys... I am Gouher Shah from india kashmir. I had gone through an open heart surgery in 2006 and diagnosed with hep c with genotype 3...
and i fight hard to get into the clinical trial of sofosbuvir however couldn't....i am 28 years old..i am feeling very low.

 Welcome Gouher Shah:

I'm sorry to hear you didn't get into the clinical trial and are feeling low.   There are so many emotional ups and downs with treating, or trying to treat hepc, and you are so young to be experiencing all this.  Stay strong, though, and keep the hope.  The future always brings good things to balance out the hard times and often when we least expect it. 

 



__________________

Diagnosed in 2011, Incivek triple in 2011, tx discontinued, Genotype 1a, CT, VL 7mill, cirrhosis dx in 2012, age 67, waiting for new DAAs.
Gouher Shah


Newbie

Status: Offline
Posts: 2
Date:
Permalink  
 

Hi Guys... I am Gouher Shah from india kashmir. I had gone through an open heart surgery in 2006 and diagnosed with hep c with genotype 3...
and i fight hard to get into the clinical trial of sofosbuvir however couldn't....i am 28 years old..i am feeling very low.

__________________
Matt Chris


Guru

Status: Offline
Posts: 1782
Date:
Permalink  
 

Hey Kurt

Welcome from me as well, you have found a good place with a wealth of insight from the members.

Good to hear that you reached UND on week four, though its not guaranteed to achieve SVR the sooner your UND the better and of course staying 100% compliant afterward is the most important aspect of the treatment.

matt



__________________

"And in the end, the love you take is equal to the love you make"

61 year old Geno type A1, F4 Cirrhotic, started 24 weeks on Harvoni 12-17-14 ,EOT-5 week = UND, 8-31-15 =UND , SVR-24 Baby YES! 
Tig


Admin

Status: Offline
Posts: 9284
Date:
Permalink  
 

Kurt,

Thanks for the update. If you're interested, set up your information in your signature line (see mine at the bottom). It helps people understand your current diagnosis and point in the treatment process. It's very helpful when replying.

I commend you on your exercise regimen. It's so important to stay active while on treatment. I couldn't do much outside of occasional walks and a trip up and down the stairway when I could. Those of us on the Interferon/Riba/Protease Inhibitor protocols suffered so badly from anemia, there was barely enough strength to move from bed to chair to bed on some days! I'm so happy that you and those on your regimen are having less trouble with these ugly side effects. I do at the same time realize many of you are still having problems and it's so important that you share those issues of your treatment and how you're dealing with them. I wish you the very best!

Tig



__________________

Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 
kurt


Member

Status: Offline
Posts: 12
Date:
Permalink  
 

 My genotype is 1a. Side effects have been a little nausea which is gone,muscle aches, headaches and problems sleeping more than two hours at a time. Nothing has been too bad though. I've also started a regimen of weight training combined with treadmill and elliptical which helps my state of mind. 



__________________

61 yo male,genotype 1a for 20 yrs, undetected at 4 wks on sovaldi/olysio
Milliganus


Senior Member

Status: Offline
Posts: 168
Date:
Permalink  
 

HI Kurt and welcome.

I too am hoping to be on the same treatment you are on in an upcoming clinical trial.  Excited to hear how it goes for you.  Please keep posting.  By the way, it would be great if you could post in your signature or somewhere your genotype and stuff like that.

 

Best of luck to you!!!



__________________

Marcy

Long-term HCV, GT1a, IL28B C/T, T/G;  VL 2 mil.  Merck C-Edge Clinical trial  EOT 10/01/14. +24= UND
Tig


Admin

Status: Offline
Posts: 9284
Date:
Permalink  
 

Hi Kurt,

I'd like to welcome you to the forum too. Congrats on your early undetectable results! You've started one of the best combo's available. Your chances for success are quite high and the side effects have been low for most here on the forum. What is your genotype? Any information you can share helps us provide better informed opinions should you have any questions. Feel free to ask any questions you might have and be sure to utilize our search function at the top center of each page. Good luck!

Tig



__________________

Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 
patiently_waiting


Senior Member

Status: Offline
Posts: 170
Date:
Permalink  
 

Welcome to the forums Kurt and congratulations on your UND.  I may be joining you on that same regimen soon.



__________________

42 yrs old: geno 1b, 23mil VL, ALT/AST 269/94 as of Apr '14.  Got HCV when I was 16.  Relapsed from Peg/Riba twice, last time in '08.  Completed Sol/Oly on 9/2/14, UND as of 10/7/14
Groupergetter


Guru

Status: Offline
Posts: 796
Date:
Permalink  
 

Welcome to the forum. and way to go Kurt, another UND club member.  This is a great regimen.  We are very fortunate to be on this.   Take care.



__________________

1b  Int/Riba relapse @ 48 weeks.  Stop tx Peg Int/Riba 12 weeks ill. Relapse S/O 6/23/14 :(   Started Harvoni 11/12/14  EOT 4/28/15.  EOT+4 UND :)  SVR! 8/4/15  :)     Thankful for every morning.
Isiscat2011


Guru

Status: Offline
Posts: 1724
Date:
Permalink  
 

Hi Kurt:

I have a soft spot for the men and women who become firefighters because your work requires so much courage and helps so many.  Best of luck on your treatment.  There are a number of members on the same combo who all seem to be doing well.  smile



__________________

Diagnosed in 2011, Incivek triple in 2011, tx discontinued, Genotype 1a, CT, VL 7mill, cirrhosis dx in 2012, age 67, waiting for new DAAs.
Fireman Rob


Senior Member

Status: Offline
Posts: 334
Date:
Permalink  
 

Hi Kurt,

Welcome to the forum! I'm fairly new to this site also but have found a lot of great information on here. There are some brilliant minds that have helped me get educated. 

Feel free to place your history and lab results of Hep C in the "Signature" section of your profile if you feel like sharing. Good luck on your treatment and thanks for your years of public service! 

-Rob



__________________

Age 33, Male. GT-1 for ten years. Diagnosed in March, 2014.

Treated with Sovaldi/Olysio: SVR 24 on February 16, 2015!
kurt


Member

Status: Offline
Posts: 12
Date:
Permalink  
 

Hi all,  I'm Kurt and I'm a retired firefighter/paramedic who has been living Hep C for 20 years.

I'm starting my 4th week of treatment on Sovaldi/Olysio and so far it looks good. Viral load has gone from 3,000,000 to undetectable and my ALT went from 349 to 16.

 

 

 



__________________

61 yo male,genotype 1a for 20 yrs, undetected at 4 wks on sovaldi/olysio
Page 1 of 1  sorted by
 
Quick Reply

Please log in to post quick replies.
Hep C Discussion Forum -> New Members Area -> new to forum
Legal Disclaimer:

THIS FORUM, IT'S OWNERS, ADMINISTRATORS, MODERATORS AND MEMBERS DO NOT AT ANY TIME GIVE MEDICAL ADVICE AND IN ALL CASES REFER ANYONE HERE TO SEEK APPROPRIATE MEDICAL ADVICE FROM THEIR DOCTOR.