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Hep C Discussion Forum -> On Treatment -> Riba rage in full bloom like the spring time flowers!
Post Info TOPIC: Riba rage in full bloom like the spring time flowers!
pizzacake


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RE: Riba rage in full bloom like the summer time flowers!
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Hi everybody, 

I also have Riba rage but I realized that in certain situations it can be beneficial. Now I don't put up with or tolerate some things that I would have before treatment...and perhaps I shouldn't have tolerated all along. I'm not saying I like it. Nope. I'm irritable, grumpy, and be a general a**hole. And at times I've felt panic. But there are some benefits to the sensation.

 

 



__________________

Age: 62, Lived with Hep C since 1971 (Sharing infected needles)

Home: USA, Pacific NW

Genotype: 1A

Fibrosure stage:  F3-F4

Begin 3-month treatment June 24: Sofosbuvir, Ribavirin, and Interferon

Born in the Year of the Dragon. 

 
suziq


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RE: Riba rage in full bloom like the spring time flowers!
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Hey Taz,

I have an extra tub sitting in the back yard--none in the house yet.  At least I have a couple of window a/c's.  I have hung shower curtains for interior walls so the cool air is in two areas. 

SuziQ



__________________

Geno 1A  Age 82 Treatment naive Cirrhotic Told I had liver disease in 1966. Diagnosed as Hep C 1999.Started Merck clinical trial with Riba on 9/9/2013 Week 1 and 2 <25  Weeks 4, 8, 12,16,18 UND.  EOT Jan 14,2014  EOT +12 UND   JULY 1 2014 EOT+24= SVR
TazKat


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The Poem was spot on..

It is just wonderful to have ppl to understand. so this part of social media i love.. like u guys..



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TazKat Genotype 1A null responder x 3 riba & iterferon twice, relapsed from Incivek 2012 with only 12 weeks left to do. stage 4 mild cirrhosis 4/25/2014/ started sovaldi riba & interferon.. finished treatment 7/17/14  results 7/25  cleared..

 

 
TazKat


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oh & got a bee sting on right hand on top of it yesterday. hurt like heck all night. now my new perfume is skoal on my hand with freaking office tape trying to hold it on. Life does SO suck sometimes.. lol  but glad i am living it.



__________________

TazKat Genotype 1A null responder x 3 riba & iterferon twice, relapsed from Incivek 2012 with only 12 weeks left to do. stage 4 mild cirrhosis 4/25/2014/ started sovaldi riba & interferon.. finished treatment 7/17/14  results 7/25  cleared..

 

 
TazKat


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yep. i will be glad to know if this crap worked. doing the  12 weeks & no test.. I am about to start just crying here at work. i am sooooooo tired of waiting. i know. i will know by friday. but damnnnn.. i am getting impatient again. being broke all the freaking time now, working my butt off in office & fraking house is a wreck. i want to go to talladega in the fall for the NASCAR race.  but we can't go anymore. my mom's back is real bad, no money & my back is crappy too. god. calgon take me away. oh i forgot, can't yet, got to get bagthrub replaced.  see???  lol  son in law will get that for me in a couple of weeks. geezzzzzz........ not peace out this time just OUT!! 

Taz



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TazKat Genotype 1A null responder x 3 riba & iterferon twice, relapsed from Incivek 2012 with only 12 weeks left to do. stage 4 mild cirrhosis 4/25/2014/ started sovaldi riba & interferon.. finished treatment 7/17/14  results 7/25  cleared..

 

 
Tig


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Thank you Debra! That was very good and very accurate... After nearly 8 months, I still deal with these issues. Hopefully soon this drug will be unnecessary with any protocol. It's difficult to deal with the virus itself, and we shouldn't have to fight the effects of the cure at the same time. 

Tig



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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thepoet


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Thanks Scruff...I know that must have been rough, but look at you...you persevered and did what you had to do. We are a strong bunch. Suziq...the same is true for me. I am usually a patient, warm and kind individual. I have become impatient and intolerant. I am starting week 12 today on a 24 week regimen. I decided to write a poem, which is what I usually do when I'm troubled. I hope you all enjoy.

 

 THE RIBA RAGE

 

 

 

This riba rage

 

Is gettin' me down

 

My face is now

 

Adorned with a frown

 

 

 

The joy that once

 

Lived inside

 

Has taken a hiatus

 

And said goodbye

 

 

 

The positive words

 

That used to flow

 

Have said Uh Uh

 

We've got to go

 

 

 

The sense of confidence

 

That I once knew

 

Has packed  its bags

 

And flew the coop too

 

 

 

The warmth that once

Attracted so many

 

Has turned to ice

 

It is rather scary

 

 

 

The hallmark of my life

 

Has been my heart

 

But it too has taken flight

 

And fallen apart

 

 

 

Being aware

 

Of all these things

 

Makes my heart cry

 

And not want to sing

 

 

 

But even with

 

This going on

 

I seem to find hope

 

In the Book of John

 

 

 

So even though I whine

 

And cry a few lines

 

I never give up

 

It's not my style

 

 

 

I get into the ring

 

I fight my best fight

 

For the opportunity

 

To live my best life

 

 

 

Like Bozo The Clown

I won't stay down

 

I persevere

 

My feet on the ground

 

 

 

I'll win this fight

 

Like many before

 

With eyes sparkling

 

I come through the door

 

 

 

The door of healing

 

That I walk through

 

Wearing a wide smile

 

From here in Brooklyn to Timbuktu

 

 

 

So when the riba rages

 

And I want to scream

 

I must remember

 

This is part of the deal

 

 

 

There's nothing thats perfect

 

There's a flaw in everything

 

These wisdoms I've learned

 

On my dramatic journey

 

 

 

So these words

 

Are for me and for you

 

My warrior soldiers

 

We'll make it through.

 

 

 

Have a great day!

 

 

© 2014 DAJenkins aka ThePoet

 

 



 



-- Edited by thepoet on Monday 21st of July 2014 08:36:58 PM

__________________

DJ...dx 2005...geno 4c...twice interferon/riba failure....completed 24 weeks Sovaldi & Riba on 10/18/14....SOT VL 600,000 after 16 days VL <43. Day 45 <43 again. Day 59...8 weeks UNDETECTED.

Happy and grateful to God for new life....
suziq


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I am wondering when the effects of riba goes away.  It has been six months since my last pill and I still get very agitated--something I have rarely been in all my years.  I do have a lot of things to deal with right now, but my usual optimism just isn't taking over. I'm just hoping this period of chaos is soon over.  On the bright side, we had a day with a high of 77 degrees in mid July in Texas. I have not gotten over my dislike of the humidity here in Texas after years in California.  And, this year the mosquitos are big as flies with all the rain.   

SuziQ  



-- Edited by suziq on Monday 21st of July 2014 02:35:48 PM

__________________

Geno 1A  Age 82 Treatment naive Cirrhotic Told I had liver disease in 1966. Diagnosed as Hep C 1999.Started Merck clinical trial with Riba on 9/9/2013 Week 1 and 2 <25  Weeks 4, 8, 12,16,18 UND.  EOT Jan 14,2014  EOT +12 UND   JULY 1 2014 EOT+24= SVR
Scruffy


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Hiya's thepoet

Yep thats the riba. I went through 48 weeks of it while I took care of my 83 yr. Mom asking me the same questions over and over. I HAD to learn the skills to deal with the riba. Every time I felt the rage before I did or said some thing I would try to remember myself pre tx and put my state of mind back there.



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Geno 1a null responder 2004 inter/riba   finished incivek,peg/riba 48 weeks May 17th 2014. undetect weeks 4-12-32.  EOT+7 undetect. EOT+24 SVR!!!!! EOT+!YEAR SVR!!!!
thepoet


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I seem to be in a constant weird state of mind. I'm usually so positive and persevere through anything. However, I am waking up with this frustrated sense of mind. Life challenges that are usually a piece of cake now have me baffled. I feel like a little girl who wants to pick up my toys and run home to my mother. When I'm in church I feel great or when I'm at an AA meeting, but even when I'm dealing with my therapist, I feel this sense of distrust towards her. Where I usually give everyone the benefit of the doubt, I am now doubting their capabilities. It is a weird somewhat hostile worldview that I now have. I suppose the more this medicine is concentrated in my body, the worse this will get. HELP! HELP! HELP! Someone give me some wisdom.



__________________

DJ...dx 2005...geno 4c...twice interferon/riba failure....completed 24 weeks Sovaldi & Riba on 10/18/14....SOT VL 600,000 after 16 days VL <43. Day 45 <43 again. Day 59...8 weeks UNDETECTED.

Happy and grateful to God for new life....
Caryn


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The rage is in full bloom this way too. My alarm that tells me it is time to take my meds pisses me off! LOL!! My brain feels so jacked up right now, I am starting to irritate myself. 



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1a, CT. Incivek triple 1/2013, vl 810 @ 2 weeks, 610 @ 4 weeks, 3000 @ 8 weeks, tx stopped. 

4/2014 - tx with Sovaldi/Olysio/Riba. VL 39 mil. - VL 230 @ 1 week, VL 40 @ 3 weeks, 5 weeks UND, EOT - UND, EOT @ 4 weeks UND, EOT @ 12 weeks UND!
Enavigo3891


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I was so excited when I realized it was Wednesday and Law & Order SVU is on! Waited until about 9:30 to go watch it (so I could fast forward through commercials) ... get into the living room, can't for the life of me figure out why the dish won't turn on... got off the couch to do it manually, still nothing. Realize the stupid receiver is unplugged. I don't watch tv often (netflix instead), I usually let my shows build up on DVR and then watch them. I know the dish was plugged in 2 weeks ago as I watched the last episode of SVU. I can feel the rage building immediately; there's no room in the surge protector; I KNOW this this was plugged in. I follow the mess of wires back and realize my fiance unplugged the dish receiver to plug something of his in instead of getting a new surge protector. So now I have to figure out what I can unplug that's not gonna mess his stuff up - finally plug the thing back in, turn it on - realize the DVR isn't recording my show because it was unplugged... Now its 40 minutes into the show at this point and I don't even have it to watch on DVR later. I could literally feel my blood boiling and I felt like there were those little angle and devils sitting on my shoulders.... the devil going off about the fact the receiver was unplugged and the angel telling me that it's just the meds. Was definitely one of those moments where I felt within seconds, the desire to put my fist through the wall and smash all of the electronics in the living room; however at the very same time being entirely aware of how unreasonable I was being! I think that made me angrier and one of those evil "not hydrated enough" headaches has begun.

On the bright side... I could see the bottom of my Riba bottle this evening. For those of you who also have had the pleasure of the 168 tablet bottles instead of the packs; you understand how never ending that bottle seems... It's like you're never getting anywhere with it, no matter how many days you have left. So I was excited to see the bottom... 5 days to go!

Keep it real everyone!

 



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Born HepC + in 1983 ... diagnosed @ age 13 ... GT2 ... 12 wks of Sovaldi/Riba from 2/11/14 to 5/5/14  #ribazombie

1/30/14 - Starting VL 1,922,967 * 3/11/14 - UND @ 4 wks * 7/29/14 - SVR12 * 11/6/14 - SVR24 * May 2015 - SVR52 * MAY 2016 - STILL UND * FEB 2018 - STILL UND

 
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