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Post Info TOPIC: Hello all
Kay


Member

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RE: Hello all
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Hey there JS!

I too feel like I learn something new everytime I log on. You have been through it! Prayers indeed!wink

 



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Fireman Rob


Senior Member

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Welcome Scott!

Good luck on your new Tx and thanks for the history or your status. You have come to the right place for support.

Take Care -Rob



__________________

Age 33, Male. GT-1 for ten years. Diagnosed in March, 2014.

Treated with Sovaldi/Olysio: SVR 24 on February 16, 2015!
js


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Thank you all for the warm welcome.  The wealth of knowledge on this forum is truly impressive, everytime I get on it seems I pick up another nugget of valuable information.  Many thanks cinnamon girl for the link to the EASL document, somehow I missed that one.  Got last weeks LFT in the mail today, and numbers continue to improve with the exception of red blood cell count which has been slowly dropping during the course of treatment. Nothing to cause undue concern, but they are bit low.  Might account for the continuing minor fatigue the last couple of weeks.  Only a month to go, no worries here.  Thanks again for the welcome. 

 



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HCC- transplant 1999  Non respnder interferon/riba and peg interferon/reba,

sovaldi olysio eot 7/3/14 UND +12 64 yo male infected 1970 blood xfusion -xplant infected almost immediately after xplant currently cirrhotic. 
Cinnamon Girl


Guru

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Hi JS, welcome from me too, I`m glad you found us!

Thanks for sharing your history with us, I just had to laugh at your story about the blonde reporter!  You`ve really been through some very rough times and it`s great to hear you`re now on treatment with the excellent Sovaldi/Olysio combo and sounding so positive.  A good attitude and optimistic outlook goes a long way, as I`m sure you`ve already found out.

You had a huge drop in viral load by week 4 which is very encouraging, and it`s good that you`re on top of the side effects now.  The Cosmos phase 2 trials of Sovaldi/Olysio which include patients with advanced fibrosis or cirrhosis showed excellent success rates and here`s some information about that if you haven`t already seen it...

http://www.hivandhepatitis.com/hcv-treatment/experimental-hcv-drugs/4628-easl-2014-sofosbuvir-simeprevir-shows-high-cure-rates-for-patients-with-or-without-cirrhosis

Wishing you all the best of luck, and looking forward to hearing further updates from you!  smile

 



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
Groupergetter


Guru

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Posts: 796
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Scott, welcome.  Good to see you can still have a sense of humor with all the crap you've been through. smile   You're on a good treatment for most without major side effects.  I just finished this regimen last Sunday.  Only wishing you could have started  sooner.  We'll be praying this works for you.  Keep us posted on your progress.  Take care



__________________

1b  Int/Riba relapse @ 48 weeks.  Stop tx Peg Int/Riba 12 weeks ill. Relapse S/O 6/23/14 :(   Started Harvoni 11/12/14  EOT 4/28/15.  EOT+4 UND :)  SVR! 8/4/15  :)     Thankful for every morning.
JLynch30


Senior Member

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Posts: 292
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Sounds like we are similar - but they have me on interferon with the solvaldi!  5th time a charm.



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John   non-responder  

Undetected at week 2 on solvaldi/rib/interferon:  stayed through week 12 but virus came back as soon as I stopped.  on   Harvoni and ribravirin 24 weeks undetected after two. 8/2/15  12 week EOT  UNDETECTED!  SVR

1991-2015 RIP

 
Isiscat2011


Guru

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Posts: 1724
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Welcome JS:

Love your story about passing out and waking up to the beautiful blonde.  If you have to pass out then I guess that is the way to do it.    

So, you have about 4 weeks to go and then you are home free assuming all goes well.  It sounds like you are through the worst of the side effects, and getting up and around now, which should only make you feel better.  I am sending good wishes your way.   

 

 



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Diagnosed in 2011, Incivek triple in 2011, tx discontinued, Genotype 1a, CT, VL 7mill, cirrhosis dx in 2012, age 67, waiting for new DAAs.
Tig


Admin

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Hi Scott,

Welcome to the forum my friend!!! So glad you've joined the forum and really look forward to all the good news you will hopefully share. We've got a member, Bill (DeRanger), that is also a liver transplant patient and has gone on to SVR. He's a truly inspiring individual and I hope you'll hear from him soon. He can certainly provide you with some good ideas that only you two could understand! I'm so sorry that you had to experience so much adversity to get to this point but it sounds like it has really given you some great strength's to pull from when things get dicey and from the sounds of it, you've had a few dicey moments to get where you are today. It's obvious that with the multi log reduction in your viral load,  treatment is working and working well. 

If there is anything I can do to assist you here on the forum, please ask. We've got a great group of like minded, helpful people, that are always just a click away should you need anything. Be sure to utilize our search function at the top center of each page, we have a great resource in it and if you can't find it there, just ask and we'll get you where you need to go. Good luck and keep in touch!

Tig



__________________

Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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js


Member

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Hello and greetings.  New here, a brief bio of my adventures with HCV.  Infected 1970 while in military.  HCC in 1998, transplant 1999.  I have done well with the transplant but the HCV has pretty well destroyed the new liver.  Stage 4 cirrhosis and now have edema I am guessing from portal vein hypertension.  Two rounds of interferon/riba.  Pegalyted interferon the second round.  Non response so they discontinued therapy.  I got so anemic the second time around I passed out at work shortly after beginning.  I was working as a floor director/cameraman during the 6 oclock news and went down...woke up with a beautiful blonde reporter standing over me, thought I had died and gone to heaven. Film at 11. Non response on that therapy, so discontinued.  My gastroenterologist was 4 hours away at the transplant center, so I switched to a center closer to home last summer.  My new gastro is great, went to school where I was transplanted and worked there as well so he knows many of the Dr.s there. He started me on the Sovaldi Olysio combo April 11, EOT July 4.  Labs have fluctuated quite a bit, week 4 VL was 167, from baseline 13,000,000.  Side effects have subsided quite a bit.  Had major league fatigue for first month, itching, insomnia.  Depression off and on, but walking now and that seems to help.  I have actually begun to rejoin the living I am feeling so much better.  There doesnt seem to be much info or trials on Post transplant cirrhotics so I feel a bit like a lab rat, all I need now is a wheel and I'm happy.  To recap, HCV 1970, 1a, xplant 1999, two interferon adventures, stage 4 cirrhosis and sovaldi olysio eot july 4.  Prayers are welcome and encouraged. 



__________________

HCC- transplant 1999  Non respnder interferon/riba and peg interferon/reba,

sovaldi olysio eot 7/3/14 UND +12 64 yo male infected 1970 blood xfusion -xplant infected almost immediately after xplant currently cirrhotic. 
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