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Hep C Discussion Forum -> On Treatment -> My GI Group
Post Info TOPIC: My GI Group
jimbob


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RE: My GI Group
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David-
A lot of people on here have had similar compliments re: their GI's. Wish I could too.I'd like to have that kind of realtion with them, but it just isn't there. I glad you and some others do have it.
Best wishes.

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jimbob: 64 y/o, GT 1A, F1-F2, diagnosed 1996. Since 1970. SOT 3.5 mil VL on 3/10/14 with Sov/Rib/Peg for 12 weeks. Tx naive. UND @ week 4,8,12. EOT 6/2/14.
Barnacle


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My GI people have been nothing short of miraculous. I get a call from the pharma distributor reminding me it's time to reorder. I email GI nurse she says "no problem thats where we're here for" an hour later another email "meds on their way"
I just can't say enough wonderful things about them.

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57yo male gen 1a since '70s. Fib F3-4 VL >2M Tx started 5 Apr 14 Sov/Oly/Rib

wk 4 UND wk 8 UND, wk 12 EOT UND...keep em coming 24wks UND = SVR!
patiently_waiting


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jimbob wrote:
Given the circumstances PW, I dont think it would be all that difficult.

I know I mentioned earlier on this forum that I had been lucky in that I hadn't experienced any riba rage. A few moments ago I got so frustrated trying to edit a post that I had to sign off. Either that or I was going to turn green and rip my clothes off....

 I'm giving my teenage son (13) fair warning now.  Luckily most of this will happen over the summer when I'm not at war with him to do his math.



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42 yrs old: geno 1b, 23mil VL, ALT/AST 269/94 as of Apr '14.  Got HCV when I was 16.  Relapsed from Peg/Riba twice, last time in '08.  Completed Sol/Oly on 9/2/14, UND as of 10/7/14
jimbob


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patiently_waiting wrote:

Maybe my  pharmacy will do the same and I'll set some aside for Zilkster too. I'll say I just took it since they sent it - brain fog and all you know. ;) 3 screw ups and we'll have a full 12 weeks worth for him. :)

 Given the circumstances PW, I dont think it would be all that difficult.

I know I mentioned earlier on this forum that I had been lucky in that I hadn't experienced any riba rage. A few moments ago I got so frustrated trying to edit a post that I had to sign off. Either that or I was going to turn green and rip my clothes off....



-- Edited by jimbob on Friday 30th of May 2014 10:44:45 PM



-- Edited by jimbob on Friday 30th of May 2014 10:47:06 PM

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jimbob: 64 y/o, GT 1A, F1-F2, diagnosed 1996. Since 1970. SOT 3.5 mil VL on 3/10/14 with Sov/Rib/Peg for 12 weeks. Tx naive. UND @ week 4,8,12. EOT 6/2/14.
patiently_waiting


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Maybe my pharmacy will do the same and I'll put some aside for Zilkster too. I'll say I just took it since they sent it - brain fog and all you know. ;) 3 screw ups and we'll have a full 12 weeks worth for him. :)

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42 yrs old: geno 1b, 23mil VL, ALT/AST 269/94 as of Apr '14.  Got HCV when I was 16.  Relapsed from Peg/Riba twice, last time in '08.  Completed Sol/Oly on 9/2/14, UND as of 10/7/14
jimbob


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Wayne you are absolutely right. I'm not faulting CuraScript tho as they aren't responsible for maintaining my appointment records or length of tx, that falls to the GI's....Actually, in my case, CuraScript has done way more to to help me than my GI's. At least they called me every 2 weeks to check on me and make sure I ordered my meds.



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jimbob: 64 y/o, GT 1A, F1-F2, diagnosed 1996. Since 1970. SOT 3.5 mil VL on 3/10/14 with Sov/Rib/Peg for 12 weeks. Tx naive. UND @ week 4,8,12. EOT 6/2/14.
jimbob


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Zilkster was the first person I thought of Tig.

jimbob

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jimbob: 64 y/o, GT 1A, F1-F2, diagnosed 1996. Since 1970. SOT 3.5 mil VL on 3/10/14 with Sov/Rib/Peg for 12 weeks. Tx naive. UND @ week 4,8,12. EOT 6/2/14.
OldenSlow


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They fight us tooth and nail on treatment approval, then do their best towards the end to send us drugs we no longer need. It would be even funnier if it weren't so sad. 



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66 y/o male - Geno 1b - F4 cirrhotic dx 2001 - 16 wk treatment w/ Sovaldi/Olysio/Riba - Und @ EOT+24 SVR

 
Tig


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If they send you the drugs, I believe Zlikster would be happy to take them off your hands at a tidy profit!! (Of course we wouldn't want to do that, would we? >>>>WINK, WINK<<<<

Tig



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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jimbob


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Yet another reason my GI people are worthless:

Lying in bed this a.m.because fatigue and apathy have hit me especially hard this week. Phone rings, it's my GI nurse. Says she got urgent call from CuraScrip stating I haven't reordered meds for next month. Although they called me twice, I forgot to return call as my head and memory are cheese right now. I explained to her I'm on a 12 week tx and I have an EOT appointment next Wed with them (lots of paper shuffling and movement noises in background) . Then she stammers,studders and says "oh, yes you are. We new that but CuraScript was afraid you'd stop taking your meds. I will call them back and let them know."  Well yes I didn't reorder and yes, I will stop taking them in 2 days because it'll be the end of 12 weeks! These are the same people who told me they have treated thousands....Not one  of them could hit their ass with both hands.

To clarify, my own GI people didn't realize my 12 week EOT had arrive and were calling to find out why I hadn't ordered.

 



-- Edited by jimbob on Friday 30th of May 2014 08:38:36 PM



-- Edited by jimbob on Friday 30th of May 2014 08:40:21 PM



-- Edited by jimbob on Saturday 31st of May 2014 12:53:08 AM

__________________

jimbob: 64 y/o, GT 1A, F1-F2, diagnosed 1996. Since 1970. SOT 3.5 mil VL on 3/10/14 with Sov/Rib/Peg for 12 weeks. Tx naive. UND @ week 4,8,12. EOT 6/2/14.
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