Hep C Discussion Forum

thepoet · Veteran Member

RE: Where are you in treatment and how are you feeling?

JLynch30 · Senior Member

Yes, skin is clear for me too!

Marypetrecz · Senior Member

Tgcd78, I'm in my second month of olysio and sovaldi....I had headaches the first few days so I upped the water and avoided bright days and lights.....I wear sunglasses inside if it's bright and the headaches have been gone, I feel great, my energy is high, my strength is coming back and im clear and thinking faster than I have in decades. I do have side pain but the docs think it's not related to the meds....they think it's gall bladder. They don't want to do surgery...so I'm watch g my diet and taking pain killers when necessary.

so overall, the meds are miraculas and I'm amazed at how great I feel. I told the docs yesterday, I could live my life on these meds....they don't bother me at all....and my life is improving daily. I still have 7 weeks to go....so well see....but for right now and with the exception of the first week....I've nothing but good.....

i just had my VL pulled....so I'll know next week what it is,,,,I was told to not be disappointed if it's not UD....but I think it will be,,,,,....lol

hey...does anyone else on this combo notice their skin is improving? My wrinkles are almost gone,,,,my skin is lovely and any liver spots I had are gone. I'm amazed.

Dee Dee · Senior Member

Good luck Paul B... you'll be fine. Best wishes...

Dee Dee · Senior Member

Eot was yesterday.. feeling happy, nervous and physically fine. Should know my results in about 5 days. I do have the Q80k thing that's what's making me nervous. Never felt sick from this illness so I know I'm blessed on that note. I'll post my results soon. Prayers work... fork some over. :)

Dzdayscomin · Senior Member

I had a few dull headaches thru treatment...I think it's de-hydration so drink lots of water, and sunlight can have an effect too so wear a hat and sunglasses and don't over do it outside if it's hot.

Hang in there it gets better!

tgcd78 · Member

I was feeling great the first week on sovaldi and olysio. I am UND as of week 1 but I continue to take the pills. I'm at week 3 and I am feeling cloudy in the head with a dull annoying headache. Whats that all about?

Paul B · Senior Member

4 hours in biggrin Feeling a little nervous.

Scruffy · Guru

globetrotter wrote:
Week 30 of 48 on triple with Incivek. Finally out of a really really tough phase and feeling tons better. Started 10mg Citalopram which has knocked the edge of the rage, even managed to strut my stuff in the gym for the first time in 8 months and swim 10 lengths of the pool the next day.....now resting for the rest of the week

Holy smokes!!! At week 30 they would have found me in the bottom of the pool. Some ones hbg is good. biggrin It takes me twice the effort in a pool I'm a lousy swimmer. Finished May 17, 48 weeks 40 of which I was on procrit now I hurt more than when I was on treatment guess its from all that procrit messing with my marrow. It will pass.

Seems like there is still a number of ppl on the incivek tx. Good luck to you all and hang in there!!

Cinnamon Girl · Guru

globetrotter wrote:
Week 30 of 48 on triple with Incivek. Finally out of a really really tough phase and feeling tons better. Started 10mg Citalopram which has knocked the edge of the rage, even managed to strut my stuff in the gym for the first time in 8 months and swim 10 lengths of the pool the next day.....now resting for the rest of the week

Impressive! I`m glad you`re finding the Citalopram is helping, I did too when I when I was on tx.

Go a bit easy now!!

@ Michelle...well done for finishing your 12 weeks of incivek and great that the sx have eased up now.

All the best for your 12 weeks PCR..you`ve responded well so far, fingers crossed for you!!

Best of luck, incivek people! biggrin

globetrotter · Senior Member

Wont be doing it again Jimbob !!!!!

Michelle22 · Member

Michelle22 wrote:
Just finished my 12 weeks of telaprivir on Wednesday. I showed PCR negative at my 4wk bloods, rest of bloods 'normal' with no fibrosis so they have told me they will cease treatment at 24 weeks if my 12 week bloods come back PRC negative :) xXx which I think is good news lol
Should have stated on 48weeks tx Interferon, Ribavirin and Telaprivir (full dosage of all as my blood levels have not altered)

And also should have said spent the first 6weeks of treatment very sick with lots of side effects - at week 13 I have no side effects except the itching but outwith that I feel like a different person xXx I have get up and go now

Michelle22 · Member

Just finished my 12 weeks of telaprivir on Wednesday. I showed PCR negative at my 4wk bloods, rest of bloods 'normal' with no fibrosis so they have told me they will cease treatment at 24 weeks if my 12 week bloods come back PRC negative :) xXx which I think is good news lol

Should have stated on 48weeks tx Interferon, Ribavirin and Telaprivir (full dosage of all as my blood levels have not altered)

jimbob · Senior Member

Hitting the gym after 8 months on that GT is a huge accomplishment. Don't know how you did it but kudos to you.

globetrotter · Senior Member

Week 30 of 48 on triple with Incivek. Finally out of a really really tough phase and feeling tons better. Started 10mg Citalopram which has knocked the edge of the rage, even managed to strut my stuff in the gym for the first time in 8 months and swim 10 lengths of the pool the next day.....now resting for the rest of the week biggrin

Tig · Admin

I have to agree with you Scruffy. I'm amazed that no matter what thread I open up on the forum now, there's a post somewhere near the top that mentions the author as being close to completion of treatment! I'm thrilled to see all of the positive attitudes and high rates of success so far. Let's keep it up people!! It's great to see these claims of success and something I'll never get used to seeing. Such great news indeed!

Taz, you know how important it is to hydrate. There's nothing more boring than plain old water. What really helped me was seeing a store display of that water flavor enhancer called "MIO". I decided to give it a try and am so glad I did. I think I tried a punch flavor and liked it. When I went back to the store, I noticed that the store had a generic store brand of the stuff and it comes in about 5 different flavors, my favorite being the sweet tea flavor. If you buy one of each, you're never without something different and that helps the water boredom problem right away. Whatever you can do to encourage proper hydration is good and will help reduce those nasty side effects.

Tig

JLynch30 · Senior Member

Yeah energy has been a real struggle - sleeping all the time. 2 more shots to go

TazKat · Senior Member

& yay for all the good news on here.. i think we have lift off Houston!! with this new stuff.. lol

TazKat · Senior Member

shot 7 Friday. not drinking enough water.. I have got to make myself do it. no energy.. just sucky feeling right now. but u got to get sick to get well.. I won't know anything anything til july 25. that part is very verey stressful & hard. i got faith.. Peace out!!

sandypsych · Veteran Member

My husband is starting week 2 of Solvaldi/Olysio. No side effects to date (**knocking on wood). First set of labs tomorrow. Viral load being drawn in two weeks. what a difference from the other treatments!

kurt · Member

Done with week 10 on Olysio/Sovaldi combo. Sun sensitivity is still an issue as is trouble sleeping. A few headaches if I don't hydrate but nothing that's hard to cope with. Labs were all normal at last visit. I'm still able to do my full workout everyday. Have cut back a little on riding my motorcycle on days I feel blown out from lack of sleep.That's a safety issue for me.Overall everything's peachy.Kurt

thepoet · Veteran Member

Hey Everybody,

Day 30 and still feelin' great...great...great. I saw my hep md today...had my blood drawn...and am looking forward to positive numbers in a couple of days. Have a great night yall.

JLynch30 · Senior Member

week 10 on triple with solvaldi - two more shots to go - undetected still.

Barnacle · Senior Member

My treatment is sovaldi/olysio/riba and I started felling the positive effects a week into treatment and although there have been some Sx I still feel my worst day on treatment is better than my best day with hepc.

8 down 4 to go. No more night itching insomnia riba rage is more like being mildly irritated some times my rash comes and goes on my wrists and lower arms and my sun tolerance is reduced but that is likely olysio doing that, not on your Tx menu.

Scruffy · Guru

Hi all

Boy, I just have to say how nice this thread is to read through. What a difference from a year ago.

My best wishes for you all biggrin biggrin biggrin

pl1952 · Senior Member

My husband finishes his treatment of Sovaldi/Olysio in 9 more days. He initially started with Riba but Dr. removed it on week 3 saying it wasn't needed. He's had hardly any symptoms and feels great. Undetected since week 6...Very grateful...

thepoet · Veteran Member

Hey Everybody,

Day 29...and feelin great...great...great...I can almost envision my liver virus free...I go for my 1 month bloods tomorrow. ..

hopefully I will be UND...I can feel the difference in my body. I am so grateful to God for this new treatment and for keeping me around to have an opportunity to participate in it. I had an uncle who had lots of money...but that didn't save him from this disease. He passed away last year...Oh but for the grace of God go I....have an amazing day yall.

Dee Dee · Senior Member

Hi all.. I complete my treatment on June 13th, 12 weeks on Solvadi/Olysio. I feel better than I have in a long time. This treatment had been so easy to take, almost no side effects. Slight headaches a couple of times, body aches come and go,but no insomnia at all. Getting a little itchy but nothing like the past treatment ( peginter/riba). The sun has been a little bothersome to my eyes only. I've been UND since my first blood work at 5 weeks. Over all if I had to continue this treatment for another 12 weeks I'd do it happily if I come out with SVR in the end. biggrin

-- Edited by Dee Dee on Monday 2nd of June 2014 10:21:23 PM

-- Edited by Dee Dee on Monday 2nd of June 2014 10:22:26 PM

thepoet · Veteran Member

okay...gotcha

Jener · Member

Hi Poet,

I'm also taking Sovaldi + Ribavirin. I'm on week 14 of 24 and been not detectable since week 3 1/2!

I confess I have had up and down days since starting. My main issue at the beginning was headaches. It would usually come at the end of the day. But they have gone away. My second month was really good and I felt a burst of energy that came from nowhere. Month four has been a bit more challenging as I feel more lethargic and lack energy. My last blood work showed a bit of anemia was setting in. That has kept me from working out. I tried this past weekend to do a bit of T25 (Shaun T exercise video) and I was on the floor gasping for air in just about 5 minutes in.

Seeing my doc this Friday for my monthly blood tests.

I've been eating lots of dark greens such as spinach, kale, swiss chard. In the morning I drink a NutriBullet shake that I make with spinach, pear, ginger, pineapple, and kiwi all fresh. In the afternoon I put beets, carrots, chard, cucumber, watercress, lemon, pear in the juicer and take it. It actually tastes pretty good.

I found out that, to me at least, changing my diet has been a big helper in keeping me feeling well and energized.

Best of luck to you on your journey.

Marypetrecz · Senior Member

I'm on a deferent treatment,,,,sovaldi and olysio for 12 weeks.....I'm early...3 weeks in...and its odd that you mentioned skin....I was looking at mysefl and thought my skin looked better, smoother and good color....

im haveing pain in my side but outside of that I feel great,,,,high energy and sleeping like a baby...I'm also eating better and feel like I'm losing weight,,,,which I need to do,,,

sorry about the digestive issue and energy issues you're having,,,,,but for right now,,,today...I feel great except for the pain in my side,,,,,I guess things can change fast but I'll take the good days,,,,,

Cinnamon Girl · Guru

Hello Poet, good to hear you`re feeling much better after all the digestive problems you were going through last week!

Interesting that you mentioned how much better your skin feels already, that was something I noticed post tx that my skin felt softer and my complexion looked better than it had done for years! Keep moving forward and best of luck! smile

(I`m moving this thread to the `On Treatment` section where I`m sure you`ll hear back from others on the same treatment.)

thepoet · Veteran Member

Today is day 28 of the six month regimen with sovaldi and ribavirin. Today I am feeling fantastic. Last week was the week from HELL. I had so many digestive issues and I had no energy and constantly felt like I was going to faint. Many times I walk from 2nd st to 9th street and back, but last week I had to make several stops along the way to get myself together and regain my footing. I am so grateful that today I am back in action...I went to church and got some wisdom and direction...I'm feeling free and moving on in life. People are complimenting me, saying how well and young I look. I even noticed it in myself. My skin seems to have a nice glow and a caramel hue. When the disease is actively destroying the liver...it seems to dry the skin and it has an ashen appearance...Wow we are all so blessed to be among the number who are receiving treatment with such a high success rate. Have an amazing day everyone.

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