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Mike716


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Huey-

I hope they get investors. That vaccine (or something similar) has been around for years. I think I first read about a one-shot vaccine in 2010 The scientific, biochemical basis for the vaccine is sound. I don't know why it hasn't been better funded. Maybe big pharma is holding it back? They've got a lot to loose if it works and ever gets approved.

M.



__________________

70-year-old male. Diagnosed HCV+ in 2008 with geno 1b. 2008 biopsy: A2/F1. Now F2+, with platelets down. No insurance, so applied for Sovaldi and Olysio patient assistance. Trying to get into a trial for 5 years with no luck.
Huey


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Mike716 wrote:

Hi, Huey.

I read something about that one-time injection, too. I think it's some sort of molecular engineering vaccine. That would be fantastic and would trump all the current therapies. I think it's a long way down the line, though. But, who knows? Anything is possible these days.

Cheers.

Mike

 FDA Approval ,,,yes way down the line.  But if it is in the news, that is for one reason, to start a trend of investors buying  the stock so they can afford to start trials...It's that simple.

 



__________________

  HCV Genotype 3a , now Psot-Tx was on S/riba. First VL was 5.8 mil on 7-5-13 then "und" at 3.8 weeks. 06/13/14 still und. off meds 3 days back on 7/29 Last pill 08/10/14 SVR+4

 
Mike716


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Hi, Fireman Rob.

Thanks for your good post. There are a lot of nice folks in this thread. I hope I can make a useful contribution to the forum.

Cheers.

Mike



__________________

70-year-old male. Diagnosed HCV+ in 2008 with geno 1b. 2008 biopsy: A2/F1. Now F2+, with platelets down. No insurance, so applied for Sovaldi and Olysio patient assistance. Trying to get into a trial for 5 years with no luck.
Mike716


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Hi, Isiscat2011.

Thanks for your post. That's a really cute kitty. I love cats.

I talked to the Gilead and Olysio patient assistance programs on the phone a few weeks ago, and they told me I wasn't eligible now for Medicare. I didn't really understand the reasons. Something to do with timing.

Also, not all Medicare plans pay for medicines. And even with the ones that do, the co-pays can be high, as much as $13,000. That's a lot of money.

If I can't get patient assistance from Gilead and Janssen, I will keep trying to get into a trial. The trouble is that I can't ever find the info about who is doing them. The gov website is useless.

I know I have to be patient and keep plugging away, but it's wearing me down. This last fiasco with the Optimist trial, where I never even got to apply for it, has got me down.

There are lots of people worse off than me, but it's no consolation. This rotten disease can ruin your life. 

Mike

 

 



__________________

70-year-old male. Diagnosed HCV+ in 2008 with geno 1b. 2008 biopsy: A2/F1. Now F2+, with platelets down. No insurance, so applied for Sovaldi and Olysio patient assistance. Trying to get into a trial for 5 years with no luck.
Mike716


Member

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Posts: 47
Date:
Permalink  
 

Hi, Huey.

I read something about that one-time injection, too. I think it's some sort of molecular engineering vaccine. That would be fantastic and would trump all the current therapies. I think it's a long way down the line, though. But, who knows? Anything is possible these days.

Cheers.

Mike



__________________

70-year-old male. Diagnosed HCV+ in 2008 with geno 1b. 2008 biopsy: A2/F1. Now F2+, with platelets down. No insurance, so applied for Sovaldi and Olysio patient assistance. Trying to get into a trial for 5 years with no luck.
Mike716


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Hi, Tig56.

Thanks for the kind words and the link to the payment assistance page.

Mike



__________________

70-year-old male. Diagnosed HCV+ in 2008 with geno 1b. 2008 biopsy: A2/F1. Now F2+, with platelets down. No insurance, so applied for Sovaldi and Olysio patient assistance. Trying to get into a trial for 5 years with no luck.
Isiscat2011


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Mike716 wrote:

I don't have any insurance and am apparently not eligible, as I never paid into social security.  

Welcome Mike:

You may be able to get Medicare anyway since you are over 65.  Check this out: www.aarp.org/health/medicare-insurance/info-04-2008/ask_ms__medicare_9.html

Medicare would pay for your tx so even if you had to "buy in" for a while it might be worth it.  Naturally, if you can get tx paid for 100% via patient assistance programs that's even better.

 

 

 



__________________

Diagnosed in 2011, Incivek triple in 2011, tx discontinued, Genotype 1a, CT, VL 7mill, cirrhosis dx in 2012, age 67, waiting for new DAAs.
Huey


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Mike716 wrote:

Hi, all!

I'm new to this forum so posting first in the New Members section.

I'm a 70-year-old New Yorker, diagnosed HCV+ in 2008 with genotype 1b. I had a biopsy then that gave F1/A2, and have been followed since then with blood tests, ultrasound scans, and a few Fibroscans and Fibrotests. I'm currently around F3, as far as anyone can tell.

I don't have any insurance and am apparently not eligible, as I never paid into social security. But I live part of the year with my girlfriend in Buenos Aires, Argentina, where I have a pretty good hospital health plan. The only thing they don't have there is the new meds.

So I'm back in the States until I can get therapy. I applied for patient assistance from Gilead and Janssen, and I'm trying to get into a trial. I'm not having much luck with the trials (see my message to the Clinical trial Participants section).

Hoping to get some useful advice from people here.

Cheers!

Mike

 

 

 I have herd somewhere they are testing the first human with a one time injection HCV cure. If it is true, then they may have some trials on down the line for that one. If you are unsuccessful at getting the new therapy here in the USA then this may be a good plan B. 



__________________

  HCV Genotype 3a , now Psot-Tx was on S/riba. First VL was 5.8 mil on 7-5-13 then "und" at 3.8 weeks. 06/13/14 still und. off meds 3 days back on 7/29 Last pill 08/10/14 SVR+4

 
Fireman Rob


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Mike,

Welcome to the forum! Many minds combined continue to provide valuable and life changing information. Thanks for the intro.

 



__________________

Age 33, Male. GT-1 for ten years. Diagnosed in March, 2014.

Treated with Sovaldi/Olysio: SVR 24 on February 16, 2015!
Tig


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Hi Mike,

Welcome to the forum! I'm glad you found us and hope we can provide some helpful information on treatment options. I'm going to include a link to our payment assistance program links. I suggest you contact the Pan Foundation once you've spoken to your physician about a treatment plan. They are very helpful and have assisted several of our members here in the past. Gilead has their own MySupport Path assistance program that offers an excellent coupon program that reduces drug copays dramatically as do the other manufacturers. I hope you find our resource page helpful. If you have any questions please ask, good luck!

Tig

http://hepcfriends.activeboard.com/t56904226/payment-assistance-programs/



__________________

Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 
Mike716


Member

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Posts: 47
Date:
Permalink  
 

Hi, all!

I'm new to this forum so posting first in the New Members section.

I'm a 70-year-old New Yorker, diagnosed HCV+ in 2008 with genotype 1b. I had a biopsy then that gave F1/A2, and have been followed since then with blood tests, ultrasound scans, and a few Fibroscans and Fibrotests. I'm currently around F3, as far as anyone can tell.

I don't have any insurance and am apparently not eligible, as I never paid into social security. But I live part of the year with my girlfriend in Buenos Aires, Argentina, where I have a pretty good hospital health plan. The only thing they don't have there is the new meds.

So I'm back in the States until I can get therapy. I applied for patient assistance from Gilead and Janssen, and I'm trying to get into a trial. I'm not having much luck with the trials (see my message to the Clinical trial Participants section).

Hoping to get some useful advice from people here.

Cheers!

Mike

 

 



__________________

70-year-old male. Diagnosed HCV+ in 2008 with geno 1b. 2008 biopsy: A2/F1. Now F2+, with platelets down. No insurance, so applied for Sovaldi and Olysio patient assistance. Trying to get into a trial for 5 years with no luck.
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